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Helen Buxton; Manuel Gomes; Rafael Gafoor; Zac Taylor; Vaso Totsika – Journal of Applied Research in Intellectual Disabilities, 2024
Background: The Personal Outcomes Scale (POS) is a scale developed to measure quality of life of adults (18+) with intellectual disability. Previous studies have reported good fit for Spanish and Portuguese language versions of POS. Aims: This study aimed to evaluate the factor structure of the English language version of POS when used to measure…
Descriptors: Foreign Countries, Quality of Life, Intellectual Disability, Adults
Victoria Hogan; Martin Power; Michael Hogan; Margaret Hodgins – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Scant attention has been paid to the quality of working life of social care workers in Ireland. This study sought to characterise both the quality of working life and the well-being of social care workers in the disability sector. Method: A cross-sectional survey of social care workers (n = 307) was conducted. Measures of work-related…
Descriptors: Quality of Life, Job Satisfaction, Social Services, Disabilities
Angus Y. K. Lam; Matthew K. S. Yau; Richard C. Franklin; Peter A. Leggat – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Sexual well-being significantly impacts the overall quality of life for individuals with and without intellectual disabilities. Notably, parents play a pivotal role in influencing their children's sexual development, and their attitudes towards this topic are shaped by Chinese sociocultural values. Methods: This study employed…
Descriptors: Foreign Countries, Well Being, Quality of Life, Intellectual Disability
Diane Fox; Julie Beadle-Brown; Jill Bradshaw; Christine Bigby; Lisa Richardson – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Previous research identifies organisational culture as one of a number of factors associated with the quality of life outcomes of group home residents' with intellectual and developmental disabilities. This study aims to elaborate on the dimensions of group home culture in settings in England. Method: Participant observations and…
Descriptors: Intellectual Disability, Group Homes, Developmental Disabilities, Organizational Culture
Kimberly J. Cheah; Vivienne Riches; Vimallan Manokara – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Despite various government initiatives, people with disabilities all over the world face some degree of hindrance when they try to contribute to society. Aim: This project sought to give voice to and understand the perceptions and experiences of persons with disabilities in Singapore when contributing to society through volunteerism…
Descriptors: Foreign Countries, Adults, Disabilities, Volunteers
Beadle-Brown, Julie; Beecham, Jennifer; Leigh, Jennifer; Whelton, Rebecca; Richardson, Lisa – Journal of Applied Research in Intellectual Disabilities, 2021
Background: With increasing reductions in funding for social care across many countries, the need to ensure that resources are used to best effect is becoming increasingly important, in particular for those with severe and complex needs. Methods: In order to explore the outcomes and costs of skilled support for this group of people, quality of…
Descriptors: Severe Intellectual Disability, Social Services, Program Effectiveness, Costs
Muñoz-López, Saray; Molina-Garcia, Pablo; Gutiérrez-Cruz, Carmen; Ubago-Díaz, Rocio; Romero-Ayuso, Dulce; Ariza-Vega, Patrocinio – Journal of Applied Research in Intellectual Disabilities, 2023
Background: The COVID-19 pandemic might negatively impact the quality of life and functional autonomy of Spanish adults with intellectual disability, and meaningful activities could prevent this negative progression. Methods: This is a prospective cohort study in Spanish adults with intellectual disability during the COVID-19 pandemic. Quality of…
Descriptors: Foreign Countries, Adults, Intellectual Disability, Quality of Life
Zonneveld, Ellen; van Schelven, Femke; Boeije, Hennie – Journal of Applied Research in Intellectual Disabilities, 2023
Background: The COVID-19 pandemic poses risks to the quality of life (QoL) of relatives of individuals with intellectual disabilities. This paper investigates relatives' QoL and associated risk and buffering factors before and during the pandemic. Method: Surveys were administered to three samples of relatives in the Netherlands in 2019 (N = 105)…
Descriptors: COVID-19, Quality of Life, Pandemics, Intellectual Disability
Reid, Nadine; Kron, Amie; Lamanna, Denise; Wen, Sophia; Durbin, Anna; Rajakulendran, Thanara; Lunsky, Yona; Roy, Sylvain; DuBois, Denise; Stergiopoulos, Vicky – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Adults with intellectual and developmental disabilities (IDD) have high rates of homelessness. This observational study evaluates Bridges to Housing, a cross-sector intervention offering immediate access to housing and supports to this population in Toronto, Canada. Methods: Twenty-six participants, enrolled between April 2016 and…
Descriptors: Housing Needs, Homeless People, Community Services, Program Effectiveness
Kim, Jinhee; Kim, Hyunlye; Park, Seojin; Yoo, Jaeyong; Gelegjamts, Delgersuren – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Intellectual disabilities are characterized by constant and complex needs for care that place a heavy burden on the families of affected individuals and affect their overall quality of life. We evaluated the mediating effects of family functioning on the relationship between care burden and the family quality of life of caregivers of…
Descriptors: Family Relationship, Family Life, Quality of Life, Child Caregivers
Talman, Lena; Wilder, Jenny; Stier, Jonas; Gustafsson, Christine – Journal of Applied Research in Intellectual Disabilities, 2019
Background: Participation is a central aspect of quality of life, and it is indicative of high-quality outcomes for people with intellectual disabilities. However, participation is difficult to achieve for adults with profound intellectual and multiple disabilities. Aim: To describe staff members' perceptions of what participation means for adults…
Descriptors: Severe Intellectual Disability, Multiple Disabilities, Adults, Participation
McCausland, Darren; McCallion, Philip; Carroll, Rachael; McCarron, Mary – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Friendship is important to quality of life, yet people with intellectual disability have more restricted social networks and fewer friends outside family and support staff. Method: Data from a nationally representative longitudinal study of older adults with intellectual disability (aged >40) examined rates and types of friends.…
Descriptors: Friendship, Quality of Life, Intellectual Disability, Older Adults
Rodrigues, Stephania A.; Fontanella, Bruno J. B.; Avó, Lucimar R. S.; Germano, Carla M. R.; Melo, Débora G. – Journal of Applied Research in Intellectual Disabilities, 2019
Background: This study investigated the psychocultural perspectives concerning family quality of life among Brazilian families with children who have severe or profound intellectual disability. Methods: Individual in-depth semi-structured interviews conducted with 15 mothers, selected by convenience, were analysed using a categorical thematic…
Descriptors: Foreign Countries, Quality of Life, Severe Intellectual Disability, Family Environment
Forrester-Jones, Rachel; Beecham, Jennifer K.; Barnoux, Magali; Oliver, David; Couch, Elyse; Bates, Claire – Journal of Applied Research in Intellectual Disabilities, 2017
Background: People with intellectual disabilities have a shorter life expectancy, but healthcare improvements mean that they are beginning to live longer, with associated health difficulties. This means that there is an urgent need to focus research on ageing as well as end-of-life care. This study aimed to explore a specialist intellectual…
Descriptors: Intellectual Disability, Aging (Individuals), Death, Older Adults
Vilaseca, Rosa; Gràcia, Marta; Beltran, Francesc S.; Dalmau, Mariona; Alomar, Elisabeth; Adam-Alcocer, Ana Luisa; Simó-Pinatella, David – Journal of Applied Research in Intellectual Disabilities, 2017
Background: The study assesses the support needs of individuals with intellectual disability and their families in Catalonia. The present authors examine family quality of life (FQoL), identify the individual services required and assess families' perceptions of the extent to which their family member with intellectual disability and they…
Descriptors: Foreign Countries, Intellectual Disability, Needs Assessment, Family Needs