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Direct linkKumaresan Cithambaram; D. Corby; Shankar Shanmugam Rajendran – Journal of Applied Research in Intellectual Disabilities, 2024
Background: India has a significant prevalence of people with intellectual disabilities. Despite their higher prevalence, they receive poor support. Therefore, this review aims to explore the experiences of family carers in providing care for children with intellectual disabilities in India. Methods: A qualitative evidence synthesis was…
Descriptors: Foreign Countries, Intellectual Disability, Family Role, Caregivers
Luitwieler, Nicole; Luijkx, Jorien; Stege, Heleen A.; Grootoonk, Anneke; Schans, Cees P.; Putten, Annette A. J.; Waninge, Aly – Journal of Applied Research in Intellectual Disabilities, 2024
Background: For families with adolescent children, the transition to adulthood is usually challenging. This period may be extra demanding for families with a child with profound intellectual and multiple disabilities due to the child's strong and persistent support needs. To support these families during this phase and to facilitate the transition…
Descriptors: Adolescents, Adolescent Development, Family Role, Severe Intellectual Disability
Dorsman, Naomi I.; Waninge, Aly; van der Schans, Cees P.; Luijkx, Jorien; Van der Putten, Annette A. J. – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Adult siblings are important in the lives of individuals with profound intellectual disabilities, especially as parents age. However, little is known about the roles they assume. Method: We examined these roles among 58 participants from the Netherlands, who completed an online questionnaire. Results: Most participants (89.7%) assumed…
Descriptors: Foreign Countries, Adults, Siblings, Severe Intellectual Disability
Sara Colaianni; Madison M. Walsh; Sara Onnivello; Miranda E. Pinks; Chiara Marcolin; Kaylyn Van Deusen; Elisa Rossi; Nathaniel R. Riggs; Francesca Pulina; Lisa Daunhauer; Deborah J. Fidler; Silvia Lanfranchi – Journal of Applied Research in Intellectual Disabilities, 2025
Background: People with Down syndrome (DS) are predisposed to challenges with executive functions (EF), which are crucial for adaptive outcomes and academic success. Early interventions targeting EF are therefore critical. The present study analysed Italian data on the acceptability, enjoyability and household implementation of EXPO (EXecutive…
Descriptors: Foreign Countries, Down Syndrome, Parent Role, Intervention
Deb, Shoumitro; Limbu, Bharati; Nancarrow, Tom; Gerrard, David; Shankar, Rohit – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Overprescribing of off-licence psychotropic medications, particularly antipsychotics, for challenging behaviours in people with intellectual disabilities without a psychiatric disorder is a significant public health concern. In the United Kingdom, the National Health Service England launched an initiative in 2016, 'STopping…
Descriptors: Foreign Countries, Psychiatry, Experience, Adults
Laura C. Koch; Yona Lunsky; Laura St. John – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Canadian 24-h movement guidelines recommend that adults achieve 150 min per week of moderate-to-vigorous physical activity (MVPA), 7-9 h of sleep per night and spend no more than 8-h per day sedentary to optimise health and wellbeing. Method: Using a cross-sectional survey of 131 family caregivers of adults with intellectual and…
Descriptors: Foreign Countries, Physical Activity Level, Sleep, Adults
Sonja M. Kalf-Scholte; Renate van Zoonen; Dina Sijperda-Abdul; Henk Algra; Cees Valkenburg – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Toothbrushing, limiting intake frequency, and scheduled visits to an oral healthcare professional (OHP) are key for good oral health. We aimed to explore factors influencing these oral health behaviours in Dutch adolescents with mild to borderline intellectual disabilities (MBID) in residential care. Method: Using a qualitative,…
Descriptors: Dental Health, Health Behavior, Adolescents, Mild Intellectual Disability
Yu-Jung Hsieh; Wei-Sho Ho; Shu-Jou Sun – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Parents play a key role in the transition process of their children. After high school students with intellectual disabilities leave the school system, they need the cooperation of schools and families to ensure successful employment and independent living. Methods: A case study was conducted in a Taiwanese high school special…
Descriptors: Foreign Countries, Parent Role, Students with Disabilities, Intellectual Disability
Kelly, Kathyan; Margaret, Haigh; McCarron, Mary; McCallion, Philip; Burke, Eilish; Wormald, Andrew David – Journal of Applied Research in Intellectual Disabilities, 2023
Background: This article aims to understand moral distress in carers of people with an intellectual disability during the COVID-19 pandemic. Method: Nine staff carers of seven people with an intellectual disability, who had been participants of the IDS-TILDA study in Ireland, who died during the COVID-19 pandemic participated in in-depth,…
Descriptors: Intellectual Disability, COVID-19, Pandemics, Death
Embregts, Petri J. C. M.; Tournier, Tess; Frielink, Noud – Journal of Applied Research in Intellectual Disabilities, 2022
Background: The aim of this study was to explore the experiences of psychologists working with people with intellectual disabilities during the initial stage of the COVID-19 lockdown in the Netherlands. Method: Five psychologists, who were affiliated with three intellectual disability services, participated in this descriptive qualitative study.…
Descriptors: Foreign Countries, COVID-19, Pandemics, Psychologists
Navas, Patricia; Verdugo, Miguel Ángel; Martínez, Sergio; Amor, Antonio M.; Crespo, Manuela; Deliu, Madalin M. – Journal of Applied Research in Intellectual Disabilities, 2022
Aim: This study analysed the impact that COVID-19 and the response measures implemented by the Spanish Government have had on families of individuals with intellectual and developmental disabilities. Method: Data on 323 family members (M = 52.3 years old; SD = 10.5) were collected through an online survey, which was focused on analysing…
Descriptors: COVID-19, Pandemics, Foreign Countries, Intellectual Disability
Noorlandt, Hanna W.; Korfage, Ida J.; Sar, Lisa J.; Felet, Freek M. A. J.; Tuffrey-Wijne, Irene; van der Heide, Agnes; Echteld, Michael A. – Journal of Applied Research in Intellectual Disabilities, 2023
Background: We aimed to gain more insight into autonomy of older people with intellectual disabilities in a residential care facility in making choices. Methods: We performed a descriptive ethnographic study in a residential facility in the Netherlands for 22 persons, aged 54-89 years, with mild to moderate intellectual disabilities (IQ <70)…
Descriptors: Personal Autonomy, Older Adults, Residential Care, Mild Intellectual Disability
Sanna Fjellström; Jessica Hölttä; Anna Nordström; Eva Flygare Wallén; Marie Lund Ohlsson; Elisabeth Hansen – Journal of Applied Research in Intellectual Disabilities, 2024
Background: People with intellectual disabilities are less physically active and suffer from ill-health more than the general population. Support staff play an important role in the person's life. This study aimed to explore the support staff's experiences regarding the feasibility of adapted web-based exercise for people with intellectual…
Descriptors: Intellectual Disability, Physical Activity Level, Health Behavior, Web Based Instruction
Vereijken, Frances R.; Giesbers, Sanne A. H.; Jahoda, Andrew; Embregts, Petri J. C. M. – Journal of Applied Research in Intellectual Disabilities, 2022
Background: At the start of the COVID-19 pandemic, some parents in the Netherlands decided to bring their offspring with intellectual disabilities, who normally live in residential care, home. The present study explored why the mothers decided to bring their offspring home. Method: Interviews were carried out with seven mothers of adults with…
Descriptors: Mothers, Motivation, Adults, Intellectual Disability
Embregts, Petri J. C. M.; Tournier, Tess; Frielink, Noud – Journal of Applied Research in Intellectual Disabilities, 2021
Background: The present study aimed to explore the experiences and needs of direct support staff during the initial stage of the COVID-19 lockdown in the Netherlands. Method: Overall, eleven direct support staff were recruited from five intellectual disability services to participate in this descriptive qualitative study. They recorded 34 audio…
Descriptors: Foreign Countries, COVID-19, Pandemics, Intellectual Disability
