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Mélina Rivard; Catherine Mello; Shaneha Patel; Marjorie Morin; Diane Morin – Journal of Autism and Developmental Disorders, 2025
The pathway for post-diagnostic services for autism tends to be complex, heterogeneous, and fraught with delays. This situation has repercussions for families' experience with care systems, the quality of early interventions, and family adjustment. To date, studies of parents' point of view on autism services have predominantly focused on the…
Descriptors: Foreign Countries, Autism Spectrum Disorders, Parents, Students with Disabilities
Höfer, Juliana; Hoffmann, Falk; Dörks, Michael; Kamp-Becker, Inge; Küpper, Charlotte; Poustka, Luise; Roepke, Stefan; Roessner, Veit; Stroth, Sanna; Wolff, Nicole; Bachmann, Christian J. – Journal of Autism and Developmental Disorders, 2022
Autism spectrum disorders (ASD) are associated with high services use, but European data on costs are scarce. Utilisation and annual costs of 385 individuals with ASD (aged 4-67 years; 18.2% females; 37.4% IQ < 85) from German outpatient clinics were assessed. Average annual costs per person were 3287 EUR, with psychiatric inpatient care…
Descriptors: Foreign Countries, Health Services, Health Care Costs, Autism
Lenart, Anna; Pasternak, Jacek – Journal of Autism and Developmental Disorders, 2023
The article refers to resources, problems and challenges of autism diagnosis and support system in Poland. The resources include: the increasing number of specialists, diagnostic and therapeutic centres, well-established course of education for people working with youths, standardised and normalised diagnostic tools. The diagnostic process is not…
Descriptors: Foreign Countries, Autism Spectrum Disorders, Clinical Diagnosis, Health Services
Trine Lise Bakken; Jane Margrete Askeland Hellerud; Arvid Nikolai Kildahl; Ann Magritt Solheim-Inderberg; Oddbjørn Hove; Sissel Berge Helverschou – Journal of Autism and Developmental Disorders, 2025
Autistic people with intellectual disabilities appear to be at increased risk of schizophrenia. While current recommendations emphasize adapting interventions used for people with schizophrenia in general, few studies to date have investigated treatment of co-occurring schizophrenia in this specific population. To explore what interventions are…
Descriptors: Autism Spectrum Disorders, Intellectual Disability, Schizophrenia, Comorbidity
Zhou, Ling; Wang, Jiebiao; Huang, Jin – Journal of Autism and Developmental Disorders, 2022
Little is known on the financial well-being of families raising children with autism spectrum disorders (ASD). Family financial well-being has important impacts on the development of children with ASD. The study uses a 2019 survey collected from Chinese families raising a child with ASD (N = 3064) to examine their financial well-being and its…
Descriptors: Costs, Health Services, Children, Autism
Maljaars, Jarymke; Gijbels, Eef; Evers, Kris; Spain, Debbie; Rumball, Freya; Happé, Francesca; Noens, Ilse – Journal of Autism and Developmental Disorders, 2023
Using a mixed methods design, this study aimed to examine the impact of the COVID-19 pandemic on autistic and non-autistic adults. We conducted an online survey with 196 autistic and 228 non-autistic adults from Belgium, the Netherlands and the United Kingdom focusing on their experiences during the first period of the pandemic. Our results…
Descriptors: COVID-19, Adults, Autism Spectrum Disorders, Experience
Hayward, Susan M.; Flower, Rebecca L.; Denney, Kathleen E.; Bury, Simon; Richdale, Amanda L.; Dissanayake, Cheryl; Hedley, Darren – Journal of Autism and Developmental Disorders, 2023
The efficacy of the Australian Disability Employment Services (DES) for autistic jobseekers has not been examined and is currently undergoing Government reform. To help inform the new DES strategy, we sought the views of: 24 autistic individuals; seven family members of autistic individuals, and; 46 DES employees. Data were collected using surveys…
Descriptors: Foreign Countries, Autism Spectrum Disorders, Employment Services, Employees
Scattoni, Maria Luisa; Micai, Martina; Ciaramella, Antonio; Salvitti, Tommaso; Fulceri, Francesca; Fatta, Laura Maria; Poustka, Luise; Diehm, Robert; Iskrov, Georgi; Stefanov, Rumen; Guillon, Quentin; Rogé, Bernadette; Staines, Anthony; Sweeney, Mary Rose; Boilson, Andrew Martin; Leósdóttir, Thora; Saemundsen, Evald; Moilanen, Irma; Ebeling, Hanna; Yliherva, Anneli; Gissler, Mika; Parviainen, Tarja; Tani, Pekka; Kawa, Rafal; Vicente, Astrid; Rasga, Célia; Budisteanu, Magdalena; Dale, Ian; Povey, Carol; Flores, Noelia; Jenaro, Cristina; Monroy, Maria Luisa; Primo, Patricia García; Charman, Tony; Cramer, Susanne; Warberg, Christine Kloster; Canal-Bedia, Ricardo; Posada, Manuel; Schendel, Diana – Journal of Autism and Developmental Disorders, 2021
Research providing an evidence-base for autistic adult services is sparse. The Autism Spectrum Disorders in the European Union (ASDEU) network implemented an on-line survey to determine gaps in autistic adult diagnostic evaluation and post-diagnostic support services. More than 55% in all groups experienced most of the recommended features for…
Descriptors: Foreign Countries, Autism, Pervasive Developmental Disorders, Adults
Maria Löthberg; Tatja Hirvikoski; Sonya Girdler; Sven Bölte; Ulf Jonsson – Journal of Autism and Developmental Disorders, 2024
In Sweden, people living independently and requiring daily living support can access 'housing support', a form of practical, educational, and social support provided by the municipalities. About two-thirds of those receiving this support have neurodevelopmental conditions, primarily autism or ADHD. Many are young adults in the process of adapting…
Descriptors: Foreign Countries, Young Adults, Attention Deficit Hyperactivity Disorder, Autism Spectrum Disorders
Htut, Myint; Ho, Elsie; Wiles, Janine – Journal of Autism and Developmental Disorders, 2020
This study reviews the demographic characteristics of Asian children diagnosed with autism spectrum disorder (ASD) in Auckland, New Zealand, the support services they can access, and how more equitable access to health services can be provided. We examined government and non-government support services for Asian children diagnosed with ASD and…
Descriptors: Foreign Countries, Health Services, Access to Health Care, Asians
Ayhan, Aynur Bütün; Beyazit, Utku; Topuz, Senay; Tunay, Çagla Zeynep; Abbas, Maryam Nazhad; Yilmaz, Serkan – Journal of Autism and Developmental Disorders, 2021
We aimed to examine the opinions of parents' having a child with ASD, on genetic testing, in a Turkish sample. 951 parents' attitudes towards genetic testing were included. 89.1% of the parents did not take a genetic test during pregnancy. 87.6% of the parents agreed to take a genetic test if it could explain the cause of ASDs. 93% agreed to take…
Descriptors: Foreign Countries, Autism, Pervasive Developmental Disorders, Children
Rah, Sung Sil; Hong, Soon-Beom; Yoon, Ju Young – Journal of Autism and Developmental Disorders, 2021
As the prevalence of developmental disorders (DDs) has increased, many OECD countries provide a national screening examination for early detection and intervention for DDs. This study examined effects of the National Health Screening Program in Korea. 65,334 children (39%) were DD-screened and 35,466 children (21%) received a false negative among…
Descriptors: Screening Tests, Health Services, National Programs, Developmental Disabilities
Bernie, C.; Williams, K.; O'Connor, B.; Rogers, S.; May, T. – Journal of Autism and Developmental Disorders, 2021
Children with developmental concerns in Australia continue to experience inequitable healthcare and service-related delays, even when diagnostic risk is identified. This study sought to explore service and demographic pathway factors leading up to autism spectrum disorder (ASD) assessment, including value of screening measures applied at triage.…
Descriptors: Foreign Countries, Children, Autism, Pervasive Developmental Disorders
Anderson, Anastasia H.; Carter, Mark; Stephenson, Jennifer – Journal of Autism and Developmental Disorders, 2020
An on-line survey of 102 (51 females; undergraduate and graduate) university students with ASD across Australia and New Zealand examined student characteristics and satisfaction with academic and non-academic supports. A broad range of disciplines were studied, and the participants' reported strengths included a passion for learning, strong…
Descriptors: Foreign Countries, Student Attitudes, College Students, Autism
Hong, Minha; Lee, Sang Min; Park, Saengryeol; Yoon, Seok-Jun; Kim, Young-Eun; Oh, In-Hwan – Journal of Autism and Developmental Disorders, 2020
The prevalence of autism spectrum disorder (ASD) is increasing worldwide. We investigated the economic burden of ASD in South Korea using a nationally representative data source. The direct medical and non-medical costs, and indirect costs resulting from ASD were estimated. The total prevalence was 5.04 (per 100,000) in 2008, and 10.97 in 2015.…
Descriptors: Health Insurance, Autism, Pervasive Developmental Disorders, Costs