Concerns have been raised about genomic studies of autism. Most recently, the Spectrum 10 K study was paused due to criticism from the autistic community. This situation raised important questions about how the autistic and autism communities perceive genomic research. The Personal Experiences of Autism and Perceptions of DNA-based-research study…

Children should be heard on matters that impact their educational lives. However, meaningfully engaging autistic children can be difficult for researchers and policymakers. Therefore, this systematic review aimed to summarise methods used to gather the views of autistic children on their primary educational experiences. Database searches…

The purpose of this study is to explore the views of autistic adults on randomised controlled trials, specifically on processes such as randomisation and blinding, to understand the barriers and facilitators for recruiting autistic people to randomised controlled trials involving medications. We conducted one-to-one interviews with 49 autistic…

Currently there is a severe lack of research on autism and Indigenous people in Canada. This scoping review explores this literature gap and assesses the same literature from an Indigenous perspective. Scoping reviews are an effective means to explore the literature in a specific area, in this case, autism and Indigenous people in Canada. We…

Reviews have called for the greater involvement of autistic young people in developing methods for eliciting their views. Methodologically, co-design is important for developing credible and acceptable approaches; conceptually and practically, co-design offers a means through which to address the double empathy problem for research and practice,…

Systematic reporting of cultural variables in research publications is important to address disparities in diagnostics and treatment for children with ASD from diverse backgrounds. The present review examined reporting of cultural factors in ASD publications in the Swedish research context by using the GAP-REACH checklist developed by the Cultural…

Little is known about services for individuals with autism spectrum disorder (ASD) in India. We systematically reviewed the literature to identify studies of ASD interventions in India. Among the 13 articles meeting review criteria, nearly all described efforts to culturally adapt interventions and/or outcome measures for Indian participants.…