Background: This study sought a holistic understanding of lived experiences of individuals with a sibling who has intellectual and developmental disabilities using photovoice. Methods: Seven adult female siblings of individuals with intellectual and developmental disabilities in South Korea engaged in six weekly photovoice sessions, including an…

Non-disabled siblings of individuals with intellectual and developmental disabilities (IDD) usually experience trajectories to gradually intensify their involvement in caregiving. However, non-disabled siblings in Asian countries have been woefully overlooked in research despite the fact that Asian countries hold over half of the world's…

Sisters and brothers play an important role in the lives of their siblings with intellectual and developmental disabilities (IDD), starting in childhood and commonly increasing in adulthood. The current study compared typically-developing adult sisters' and brothers' level of involvement in the care of their siblings with IDD. Beyond this, the…

The goal of this study is to propose the Siblings' Experience Quality Scale (SEQS), a measure for the assessment of cognitive, emotional and behavioral experience of adult individuals having a brother or sister with an intellectual/developmental disability, chronic physical illness or mental illness, on five dimensions: Closeness, Conflict,…

Adult siblings of people with autism and a learning disability have hitherto been largely overlooked by research, policy and practice in the UK. As part of a qualitative study focussing on adult siblings, we met twelve people with autism plus severe learning disability with their brother or sister. Individually tailored resources were used to make…

Background: Depending on the severity of their disabilities, children with Down syndrome (DS) and with cerebral palsy (CP) may remain pre-symbolic for prolonged periods of time. When interacting with pre-symbolic children, communication partners have a role in identifying which of their behaviours are communicative, to be able to respond to those…