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Direct linkIlse Harmina Zaal-Schuller; K. Kruithof; M. Hoogsteyns; A.M. Nieuwenhuijse; D.L. Willems; S.A. Huisman – Journal of Intellectual & Developmental Disability, 2025
Background: Patients with profound intellectual and multiple disabilities (PIMD) cannot clearly express themselves. Therefore, tacit knowledge (TK) is crucial in caring for individuals with PIMD, while it possibly also plays a significant role in medical consultations. Method: A qualitative inductive, thematic analysis was performed of 14…
Descriptors: Patients, Severe Intellectual Disability, Multiple Disabilities, Knowledge Level
Marie Matérne; Marie Holmefur – Journal of Intellectual & Developmental Disability, 2024
Introduction: There is little research regarding quality of health care for people with profound intellectual and multiple disabilities (PIMD), who often are represented by their relatives, because of their limited communication. The aim of this study was to explore experiences and perspectives of relatives regarding healthcare services for adults…
Descriptors: Access to Health Care, Adults, Severe Intellectual Disability, Multiple Disabilities
Skarsaune, Synne Nese; Hanisch, Halvor Melbye – Research and Practice for Persons with Severe Disabilities, 2023
Persons with profound intellectual and multiple disabilities (PMID) are in danger of not being granted the human right to experience self-determination. Attitudes questioning the relevance of the rights of persons with significant support needs and a lack of guidance on how to practically go about ensuring self-determination might explain this.…
Descriptors: Self Determination, Severe Intellectual Disability, Multiple Disabilities, Civil Rights
B. W. Masondo; N. P. M. Mabaso – Interchange: A Quarterly Review of Education, 2025
Almost two decades later since the promulgation of the White Paper 6 on inclusive education policy in South Africa, the nation has yet to attain what the policy provided as practical inclusion guidelines within the education fraternity. Parental involvement is one of the guidelines that continue to be highlighted as an area of development in the…
Descriptors: Severe Intellectual Disability, Students with Disabilities, Partnerships in Education, Inclusion
Sawako Furukawa; Nobutoshi Nawa; Yui Yamaoka; Takeo Fujiwara – Journal of Intellectual Disabilities, 2024
Background: People with intellectual disabilities (IDs) and their caregivers face difficulties during the COVID-19 pandemic. However, limited studies have comprehensively investigated their challenges, especially in Japan. We aimed to clarify the concerns and needs of people with IDs and their caregivers during the COVID-19 pandemic in Japan.…
Descriptors: Foreign Countries, Barriers, COVID-19, Pandemics
Adams, Tracey Marie; Jahoda, Andrew – International Journal of Developmental Disabilities, 2019
Individuals with severe or profound intellectual disabilities may be at a greater risk of developing mental health problems. Despite this, evidence suggests individuals can face difficulties in getting mental health support, and little is known about effective psychological therapies for this population. Hence, this study explored mothers'…
Descriptors: Mother Attitudes, Severe Intellectual Disability, Mental Disorders, At Risk Persons
