Publication Date
| In 2025 | 4 |
| Since 2024 | 11 |
| Since 2021 (last 5 years) | 38 |
| Since 2016 (last 10 years) | 62 |
| Since 2006 (last 20 years) | 67 |
Descriptor
| Foreign Countries | 67 |
| Multiple Disabilities | 67 |
| Severe Intellectual Disability | 49 |
| Intellectual Disability | 17 |
| Children | 13 |
| Parent Attitudes | 11 |
| Interpersonal Relationship | 9 |
| Communication Skills | 8 |
| Quality of Life | 8 |
| Young Adults | 8 |
| Attitudes | 7 |
| More ▼ | |
Source
Author
| Vlaskamp, Carla | 8 |
| van der Putten, Annette A. J. | 8 |
| Embregts, P. J. C. M. | 3 |
| Luijkx, Jorien | 3 |
| Olsman, Erik | 3 |
| Waninge, Aly | 3 |
| Broberg, Malin | 2 |
| De Deyn, Peter P. | 2 |
| Dekker, Alain D. | 2 |
| Dijkstra, Roos | 2 |
| Jakub Niedbalski | 2 |
| More ▼ | |
Publication Type
| Journal Articles | 66 |
| Reports - Research | 63 |
| Tests/Questionnaires | 4 |
| Reports - Evaluative | 2 |
| Dissertations/Theses -… | 1 |
| Reports - General | 1 |
Education Level
| Elementary Secondary Education | 3 |
| Postsecondary Education | 3 |
| Higher Education | 2 |
| Secondary Education | 2 |
| Adult Education | 1 |
| High Schools | 1 |
Audience
Location
| Netherlands | 27 |
| Australia | 6 |
| Sweden | 6 |
| United Kingdom | 4 |
| United Kingdom (England) | 4 |
| Canada | 3 |
| Finland | 3 |
| Norway | 3 |
| Poland | 3 |
| Turkey | 3 |
| Belgium | 2 |
| More ▼ | |
Laws, Policies, & Programs
Assessments and Surveys
| Maslach Burnout Inventory | 2 |
| Wechsler Intelligence Scale… | 1 |
What Works Clearinghouse Rating
Peer reviewed
Direct linkRushton, Rosie; Kossyvaki, Lila; Terlektsi, Emmanouela – British Journal of Learning Disabilities, 2023
Background: Inclusive research advocates for the involvement of people with intellectual disabilities to be more than passive participants within the research process. Methods: This study used a participatory design with proxies to consult with 13 people with profound intellectual and multiple disabilities, on their musical preferences. Four…
Descriptors: Music, Music Appreciation, Preferences, Severe Intellectual Disability
Femmianne Bredewold; Simon van der Weele – Journal of Intellectual & Developmental Disability, 2025
Background: Researching the perspectives of people with profound intellectual and multiple disabilities (PIMD) presents complexity and uncertainty. Traditional research often prioritises rational, objectivist methods, which may overlook this complexity. Aims: This study aimed to develop methodological cues for researchers studying the perspectives…
Descriptors: Research Methodology, Cues, Family Influence, Caregivers
Luitwieler, Nicole; Luijkx, Jorien; Stege, Heleen A.; Grootoonk, Anneke; Schans, Cees P.; Putten, Annette A. J.; Waninge, Aly – Journal of Applied Research in Intellectual Disabilities, 2024
Background: For families with adolescent children, the transition to adulthood is usually challenging. This period may be extra demanding for families with a child with profound intellectual and multiple disabilities due to the child's strong and persistent support needs. To support these families during this phase and to facilitate the transition…
Descriptors: Adolescents, Adolescent Development, Family Role, Severe Intellectual Disability
Ilse Harmina Zaal-Schuller; K. Kruithof; M. Hoogsteyns; A.M. Nieuwenhuijse; D.L. Willems; S.A. Huisman – Journal of Intellectual & Developmental Disability, 2025
Background: Patients with profound intellectual and multiple disabilities (PIMD) cannot clearly express themselves. Therefore, tacit knowledge (TK) is crucial in caring for individuals with PIMD, while it possibly also plays a significant role in medical consultations. Method: A qualitative inductive, thematic analysis was performed of 14…
Descriptors: Patients, Severe Intellectual Disability, Multiple Disabilities, Knowledge Level
Jakub Niedbalski – Journal of Intellectual Disabilities, 2024
Introduction/background: This study aims to determine the impact of a person with profound intellectual and multiple disabilities on peer relationships of their siblings. Methods: Information obtained from typically developing siblings of individuals with profound intellectual and multiple disabilities served as research material for this study.…
Descriptors: Severe Intellectual Disability, Multiple Disabilities, Peer Relationship, Siblings
Jakub Niedbalski – Journal of Intellectual & Developmental Disability, 2025
Background: The aim of this study was to establish the perceived quality of life in twin siblings of individuals with profound intellectual and multiple disabilities (PIMD) living in Poland. Method: Semi-structured interviews were conducted with siblings of people with PMID. The interviews were subjected to thematic analysis according to grounded…
Descriptors: Twins, Quality of Life, Siblings, Severe Intellectual Disability
Anna Rensfeldt Flink; Sofia Wallin; Johanna Larsson; Ellen Westling; Jakob Åsberg Johnels – Journal of Research in Special Educational Needs, 2025
This mixed methods survey study aims to investigate school staff's perspectives on using augmentative and alternative communication (AAC) with students with the most severe disabilities in Swedish school settings. The study employed a convergent mixed methods design, where both quantitative and qualitative data were collected and analysed in…
Descriptors: Foreign Countries, School Personnel, Attitudes, Augmentative and Alternative Communication
Sedlácková, Dagmar; Kantor, Jirí; Dömischová, Ivona; Kantorová, Lucia – British Journal of Learning Disabilities, 2023
Background: The objective of this study is to explore experiences of Czech mothers caring for children with profound intellectual and multiple disabilities. Methods: Semistructured interviews combined with biographical narration of mothers of children with profound intellectual and multiple disabilities and a short questionnaire for demographic…
Descriptors: Experience, Mothers, Severe Disabilities, Severe Intellectual Disability
Nijs, S.; Zijlmans, M.; Schuengel, C.; Embregts, P. J. C. M. – Journal of Intellectual & Developmental Disability, 2023
Background: The high support needs of persons with profound intellectual and multiple disabilities hamper their possibilities for self-determination. To support their self-determination understanding of what this means for this group is necessary. Method: A three-round Delphi procedure with international experts was undertaken to operationalise…
Descriptors: Severe Intellectual Disability, Multiple Disabilities, Self Determination, Individual Characteristics
Wessels, Marleen D.; Van Assen, Arjen A. G.; Post, Wendy J.; Van der Putten, Annette A. J. – Journal of Intellectual & Developmental Disability, 2023
Background: There are no psychometrically validated instruments available to measure motor skills of children with profound intellectual and multiple disabilities (PIMD). In this study, the construct validity and reliability (Rho) of the Motor Development List for children with PIMD (MDL-PIMD), a proxy-reported measure, was investigated. Methods:…
Descriptors: Severe Intellectual Disability, Multiple Disabilities, Psychomotor Skills, Test Validity
Kasper Kruithof; Maartje Hoogsteyns; Ilse Zaal-Schuller; Sylvia Huisman; Dick Willems; Appolonia Nieuwenhuijse – Journal of Intellectual & Developmental Disability, 2024
Background: Parents' tacit knowledge plays an important role in the care of persons with profound intellectual and multiple disabilities (PIMD). As little is known about its nature and use, we aimed to explore this parental tacit knowledge. Method: We conducted semi-structured interviews with parents (n = 11) about their tacit knowledge of their…
Descriptors: Parents, Parent Child Relationship, Knowledge Level, Children
Wessels, Marleen D.; van der Putten, Annette A. J.; Paap, Muirne C. S. – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Knowledge about the quality of assessment methods used in the support of people with profound intellectual and multiple disabilities (PIMD) is scarce. This study aimed to provide an overview of the assessment methods used in practice and to examine whether these instruments were studied for their psychometric properties for people with…
Descriptors: Foreign Countries, Severe Intellectual Disability, Multiple Disabilities, Evaluation Methods
Flink, Anna Rensfeldt; Broberg, Malin; Strid, Karin; Thunberg, Gunilla; Johnels, Jakob Åsberg – International Journal of Developmental Disabilities, 2023
There is limited research targeting communication interventions for children with severe/profound intellectual and multiple disabilities. This study addressed outcomes from a communication course for parents of children with severe/profound intellectual and multiple disabilities and follows up on a previous publication by Rensfeldt Flink et al.…
Descriptors: Severe Intellectual Disability, Multiple Disabilities, Interpersonal Communication, Parent Child Relationship
Marie Matérne; Marie Holmefur – Journal of Intellectual & Developmental Disability, 2024
Introduction: There is little research regarding quality of health care for people with profound intellectual and multiple disabilities (PIMD), who often are represented by their relatives, because of their limited communication. The aim of this study was to explore experiences and perspectives of relatives regarding healthcare services for adults…
Descriptors: Access to Health Care, Adults, Severe Intellectual Disability, Multiple Disabilities
Skarsaune, Synne Nese; Hanisch, Halvor Melbye – Research and Practice for Persons with Severe Disabilities, 2023
Persons with profound intellectual and multiple disabilities (PMID) are in danger of not being granted the human right to experience self-determination. Attitudes questioning the relevance of the rights of persons with significant support needs and a lack of guidance on how to practically go about ensuring self-determination might explain this.…
Descriptors: Self Determination, Severe Intellectual Disability, Multiple Disabilities, Civil Rights
