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Patient Perspectives on Research Use of Residual Biospecimens and Health Information: On the Necessity of Obtaining Societal Consent by Creating a Governance Structure Based on Value-Sharing
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Yamanaka, Mayumi; Suzuki, Mika; Sato, Keiko – Research Ethics, 2021
Very few attempts have been made to survey patient opinions, particularly regarding the use of residual biospecimens and health information in research, to clarify their values. We conducted a questionnaire survey that targeted outpatients of a university hospital to gauge their awareness levels and understand patient perspectives on research that…
Descriptors: Patients, Researchers, Medical Research, Information Utilization
Distributed Digital Contexts and Learning: Personal Empowerment and Social Transformation in Marginalized Populations
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Chib, Arul; Bentley, Caitlin; Wardoyo, Reidinar-Juliane – Comunicar: Media Education Research Journal, 2019
The role of digital media and learning has often been synonymous with the use of open education resources in formal institutional settings. Further, open and distance learning has been criticized for focusing narrowly on educational objectives, ignoring sociopolitical issues of access and participation by marginalized populations. This study…
Descriptors: Foreign Countries, College Students, Females, Migrant Workers
The Ten Information Commandments.
Kirby, Michael D. – Transnational Data and Communications Report, 1986
In response to fears that current institutions and laws may not adapt to rapid technological change with the necessary alacrity, a justice of the Supreme Court of New South Wales presents and briefly discusses ten information commandmants, summarized as follows: (1) contemporary technological developments endanger human rights and civil liberties…
Descriptors: Access to Information, Communications, Foreign Countries, Futures (of Society)
Watching the Watchers: The Coordination of Federal Privacy Policy. Number 5.
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Trubow, George – 1989
In this policy briefing, the technological developments of recent years are linked to the erosion of individuals' informational privacy under the press of bureaucratic efficiency and the ever-growing needs of executive agencies for more information. It is noted that privacy protection within federal agencies may entail costs, and therefore, may be…
Descriptors: Access to Information, Agency Role, Disclosure, Foreign Countries
The Ethics of Information Use: A Guide for Teachers.
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School Libraries in Canada, 2001
Presents a resource on the ethics of the use of information developed by the British Columbia Teacher-Librarians Association which supplements the Information and Communication Technology Integration Project for teachers of grades 6-9. Highlights include plagiarism; resources sheets; citing references; Internet privacy; Internet communication; and…
Descriptors: Citations (References), Computer Mediated Communication, Ethics, Evaluation Methods
Rights of Access in the Information Society: Europe's Quandary Over the Exploitation of Public Sector Data.
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Worlock, David R. – 1996
This paper reviews 10 years of debate in Europe on commercial rights of access to government information, starting with the United Kingdom's innovative Government Tradable Information Guidelines of 1996 and ending with the European Commission's Draft Green Paper on Rights of Access in 1996. United States market development and commercial rights of…
Descriptors: Access to Information, Business, Case Studies, Copyrights