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ERIC Number: EJ1342259
Record Type: Journal
Publication Date: 2022-Aug
Pages: 14
Abstractor: As Provided
ISBN: N/A
ISSN: ISSN-0162-3257
EISSN: N/A
Available Date: N/A
"I Don't Do Much without Researching Things Myself": A Mixed Methods Study Exploring the Role of Parent Health Literacy in Autism Services Use for Young Children
Lindly, Olivia J.; Cabral, Jacqueline; Mohammed, Ruqayah; Garber, Ivonne; Mistry, Kamila B.; Kuhlthau, Karen A.
Journal of Autism and Developmental Disorders, v52 n8 p3598-3611 Aug 2022
Little is known about how parent health literacy contributes to health-related outcomes for children with autism. This mixed-methods study included 82 U.S. parents of a child with autism 2-5 years-old and sought to describe (1) health literacy dimensions, (2) how health literacy influences services use, and (3) health literacy improvement strategies. Results showed: autism information was accessed from multiple sources; understanding autism information involved "doing your own research"; autism information empowered decision-making; health literacy facilitated behavioral services use; health literacy influenced medication use; family and system characteristics also affected services use; autism education remains needed; services information is needed across the diagnostic odyssey; and greater scientific information accessibility would increase uptake. Findings demonstrate how parent health literacy affects services use.
Springer. Available from: Springer Nature. One New York Plaza, Suite 4600, New York, NY 10004. Tel: 800-777-4643; Tel: 212-460-1500; Fax: 212-460-1700; e-mail: customerservice@springernature.com; Web site: https://link.springer.com/
Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: US Department of Health and Human Services; Agency for Healthcare Research and Quality (AHRQ) (DHHS/PHS); National Institute on Minority Health and Health Disparities (NIMHD) (DHHS/NIH)
Authoring Institution: N/A
Grant or Contract Numbers: UA3MC11054; T32HS000063; U54MD012388
Author Affiliations: N/A