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A Study of the Clinical and Demographic Characteristics of Adults with an Intellectual Disability Who Remain in Learning Disability Assessment and Treatment Units Despite Being Clinically Ready for Discharge
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Jonathan Williams; Fiona Pender; Saman Shahzad; Ceri Woodrow; Rimsha Dar; Matthew Humphreys; Joanne Evans-Stone; Sharleen Nall-Evans; Peter Wilson – British Journal of Learning Disabilities, 2024
Background: This study investigated differences in the clinical and demographic characteristics of individuals with intellectual disabilities delayed in assessment and treatment hospitals versus individuals who were not delayed. The study further investigated the clinical outcomes of the individuals whose discharge from the hospital was delayed.…
Descriptors: Intellectual Disability, Adults, Individual Characteristics, Hospitals
Healthcare for People with Intellectual Disabilities: An Exploration of Intellectual Disability Service Providers' Experiences of Joint Working with Acute Service Providers When People with Intellectual Disabilities Access Healthcare in Acute Services
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Eileen Kelleher; Maria Caples; Teresa Wills; Anne-Marie Martin – British Journal of Learning Disabilities, 2025
Background: Individuals with intellectual disabilities often require various supports in their everyday lives. Many access both acute and intellectual disability services depending on their needs. Previous research has highlighted suboptimal experiences of care provided in acute services. Joint working between both services has been recognised as…
Descriptors: Health Services, Intellectual Disability, Allied Health Personnel, Access to Health Care
Hard to Reach, or Struggling to Be Heard? Real-Life Experience of Coproduction with People with Learning Disabilities
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David Dobel-Ober; Paul Moloney; Sarah Millichap – British Journal of Learning Disabilities, 2024
Background: Coproduction is a fast-developing approach to patient involvement. It entails health and social care services users working as equals in partnership with providers and other public institutions to produce novel research and information, usually aimed at the improvement of service planning and delivery. Methods: This paper presents two…
Descriptors: Foreign Countries, Males, Learning Disabilities, Health Services
The Demographic and Diagnostic Profile of Women with Intellectual Disability and Mental Health Disorder in New South Wales and Patterns of Service Use: A Data Linkage Study
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Erin L. Whittle; Karen Fisher; Preeyaporn Srasuekbul; Julian Trollor – British Journal of Learning Disabilities, 2024
Background: Current evidence indicates that intellectual disability and gender are both factors in differential usage of services. However, there are limited data about the demographic and service usage patterns of people with intellectual disability who use mental health services. This is particularly true in relation to women with intellectual…
Descriptors: Females, Mental Health, Clinical Diagnosis, Profiles
Health and Healthcare of People with Learning Disabilities in the United Kingdom through the COVID-19 Pandemic
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Chris Hatton; Richard P. Hastings; Sue Caton; Jill Bradshaw; Andrew Jahoda; Rosemary Kelly; Roseann Maguire; Edward Oloidi; Laurence Taggart; Stuart Todd; The Coronavirus and People with Learning Disabilities Study Team – British Journal of Learning Disabilities, 2024
Background: During the COVID-19 pandemic in the United Kingdom, many health services were withdrawn from people with learning disabilities, with negative impacts on people's health. What has happened to people's health and healthcare as we move beyond the pandemic? Methods: Access to health services and health status were tracked for 550 UK adults…
Descriptors: Learning Disabilities, COVID-19, Pandemics, Foreign Countries
Records of Quality Indicators for Management of Long-Term Health Conditions of Patients with Intellectual Disabilities in Dutch Residential Care
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Milou van den Bemd; Viviana Suichies; Erik Bischoff; Geraline L. Leusink; Maarten Cuypers – British Journal of Learning Disabilities, 2024
Background: Type 2 diabetes mellitus, cardiovascular disease and chronic obstructive pulmonary disease contribute significantly to societal and individual impact globally. High-quality management of these long-term health conditions is important to prevent deterioration of health, although potentially more complex for patients with intellectual…
Descriptors: Foreign Countries, Diabetes, Heart Disorders, Diseases
What Are the Experiences of Families Facilitating the Repatriation of Their Relatives with Learning Disabilities and/or Autism Back to Guernsey?
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Rebecca Wallace; Julian Morris; Melanie Hodgkinson – British Journal of Learning Disabilities, 2024
Background: Recent Government guidelines have promoted returning people with learning disabilities and/or autism from out-of-area placements to their local communities. These transitions not only impact the individuals but also their families. Methods: This study explores the experiences of family members who have been involved in the repatriation…
Descriptors: Learning Disabilities, Autism Spectrum Disorders, Transitional Programs, Geographic Location
What Supports Are People with Intellectual Disability Living in Group Homes Provided to Access Health Care? A Case Study
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Rachel Skoss; Paola Chivers; Glenn Arendts; Caroline Bulsara; Rena Vithiatharan; Jim Codde – British Journal of Learning Disabilities, 2024
Background: People with intellectual disabilities living in group homes often have complex health needs, are high health service users and need support from their service provider to access health services. In Australia, little is known about the types and amounts of these supports. Methods: A case study was conducted on a large Western Australian…
Descriptors: Foreign Countries, Health Services, Group Homes, Intellectual Disability
Expressive Touch in Health and Social Care: A Review of Touch Guidance to Explore the Extent to Which Social and Communication Needs of Adults with Learning Disabilities Are Considered
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Collett, Zoe; Moll, Deborah; Colston, Amanda; McKim, Jules; Elsworth, Julie – British Journal of Learning Disabilities, 2023
Background: People with a learning disability can present with complex physical and social needs, and sometimes rely on touch for communication. Historically, touch-related staff guidance has been described as risk-averse, lacking an evidence base, control-orientated and potentially harmful. This project reviews local touch-related guidance from…
Descriptors: Tactual Perception, Health Services, Social Services, Interpersonal Communication
Palliative Care Needs of Direct Care Workers Caring for People with Intellectual and Developmental Disabilities
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Gray, Jennifer A.; Kim, Jinsook – British Journal of Learning Disabilities, 2020
Background: Direct care workers (DCWs) caring for people with intellectual and developmental disabilities (PWIDD) provide palliative care, but research indicates DCWs are ill-equipped to do so. This study aimed to assess DCWs' palliative care experience and training and their perceived training needs. Materials and Methods: Staff trained as DCWs…
Descriptors: Caregivers, Health Services, Intellectual Disability, Developmental Disabilities
Barriers and Enablers to Optimal Diabetes Care for Adults with Learning Disabilities: A Systematic Review
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Holden, Ben; Lee, Andrew – British Journal of Learning Disabilities, 2022
Background: Individuals with diabetes and a learning disability have poorer health outcomes than those without a learning disability. In the UK, the health inequalities faced by people with learning disabilities are often the result of barriers they face in accessing timely, appropriate and effective health care. The aim of the study was to review…
Descriptors: Barriers, Affordances, Diabetes, Health Services
Co-Producing Ethics Guidelines Together with People with Learning Disabilities
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Mary Bottomley; Jodie Bradley; Lisa Clark; Bryan Collis; Bojana Daw Srdanovic; Victoria Farnsworth; Annie Ferguson; Dan Goodley; Andrew Fox; Nikita K. Hayden; Charlotte Lawthom; Rebecca Lawthom; Claudia Magwood; Robert McLean; Ian Middleton; Alison Owen; Matty Prothero; Simon Rice; Simon Richards; Katherine Runswick-Cole; Kelly Scargill; Rohit Shankar; Toni Ann Wood – British Journal of Learning Disabilities, 2024
Background: We are a research team of clinical, academic and advocacy-based researchers with and without learning disabilities, working on the "Humanising Healthcare" (for people with learning disabilities) project. The project is dedicated to finding and sharing healthcare practices that enhance the lives of people with learning…
Descriptors: Ethics, Learning Disabilities, Guidelines, Researchers
Culturally Adaptive Healthcare for People with a Learning Disability from an Ethnic Minority Background: A Qualitative Synthesis
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Christina Roberts; Nicola Ditzel; Nicola Cooper-Moss; Katie Umbleby; Umesh Chauhan – British Journal of Learning Disabilities, 2025
Background: People with a learning disability face health inequality. Those from ethnic minority backgrounds with a learning disability face 'double discrimination' as members of two marginalised groups. Methods: This codesigned review consolidated the evidence on the healthcare experiences of individuals and their carers from ethnic minority…
Descriptors: Health Services, Access to Health Care, Learning Disabilities, Cultural Background
Advances for Future Working Following an Online Dramatherapy Group for Adults with Intellectual Disabilities and Mental Ill Health during the COVID-19 Pandemic: A Service Evaluation for Cumbria, Northumberland Tyne and Wear NHS Foundation Trust
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Bourne, Jane; Brown, Claire; Corrigan, Debbie; Goldblatt, Phil; Hackett, Simon – British Journal of Learning Disabilities, 2022
Background: During the COVID-19 pandemic, social distancing measures were enforced and the national lockdown underlined our reliance on virtual means as a way to communicate. This new way of interacting highlighted that people with an intellectual disability were a large proportion of a digitally excluded population. Methods: A service evaluation,…
Descriptors: Drama, Therapy, Intellectual Disability, COVID-19
Challenges in Care and Service Provision for Older Adults with Intellectual Disabilities and Complex Age-Related Conditions in Ireland
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Fintan Sheerin; Sandra Fleming; Peter May; Philip McCallion; Mary McCarron; Amara Naseer; Georgia Lalor; Maureen D'Eath – British Journal of Learning Disabilities, 2024
Background: People with intellectual disabilities are living longer and are increasingly diverse, with health and care needs that are varied and complex. Without changes to funding, services have found it difficult to respond to needs and wishes. Method: A descriptive mixed methods design study, data were collected through questionnaire, focus…
Descriptors: Foreign Countries, Intellectual Disability, Older Adults, Stakeholders
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