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Çiftçi, Esra Karaca; Kahraman, Selma – International Journal of Psychology and Educational Studies, 2016
Epidermolysis Bullosa (EB) is a chronic disease, some types of which may have morbidity and mortality. That is why the patients must receive multidisciplinary care in case any complications arise. Families must be informed about the disease, about home care and receive genetic counselling. The importance of genetic counselling cannot be stressed…
Descriptors: Chronic Illness, Human Body, Child Caregivers, Genetic Disorders

Dudzinski, Deanna; Peters, Donald L. – Child Care Quarterly, 1977
Describes various types of home-based programs for young retarded or severely handicapped children, identifying key elements and benefits. Model programs involve home visits, parent group meetings, workshops and combinations of these with preschool experience or group care, as well as a variety of other techniques. (BF)
Descriptors: Handicapped Children, Home Programs, Home Visits, Homebound

Soyka, Patricia W. – Child Welfare, 1976
The benefits of home care for the severely handicapped child and his family are discussed. The Homemaker-Home Health Aide Service has been successfully adapted to fulfill the needs of these families. (GO)
Descriptors: Child Abuse, Early Childhood Education, Handicapped Children, Home Programs