Epidermolysis Bullosa (EB) is a chronic disease, some types of which may have morbidity and mortality. That is why the patients must receive multidisciplinary care in case any complications arise. Families must be informed about the disease, about home care and receive genetic counselling. The importance of genetic counselling cannot be stressed…

This paper describes a platform for administering questionnaires on smart-phones and tablets. The project arises from the need of acquiring data for monitoring the outcomes of different homecare interventions. First a model has been defined for representing questionnaires, able to support adaptivity in the dialog with the user and enforce some…

This document presents witnesses' testimonies and prepared statements from the Congressional hearing held in Philadelphia, Pennsylvania to examine reports of inappropriate, at times illegal, denials of critical home health care to sick older Americans. In his opening statement, Senator John Heinz presents examples of victims who were denied proper…

Implications of P.L. 94-142 (the Education for All Handicapped Children Act) for individualized education programs (IEPs) for homebound/hospitalized students are examined. Difficulties in Florida's interpretations of the IEP regulations are cited, and the general trend of overly elaborate IEPs is noted. Special considerations with…

A review of the kinds of jobs available in services developed to help the homebound elderly: Home health care, homemaker-home health aide, chore service, home repair and maintenance, home-delivered meals, telephone reassurance, and friendly visiting. (JT)

Describes a program for physically challenged students at Queensborough Community College of the City University of New York that allows students majoring in business to be placed with selected employers and to obtain real work experience. The areas of employment were related to the skills and career objectives of the students, who remained at…

Describes various types of home-based programs for young retarded or severely handicapped children, identifying key elements and benefits. Model programs involve home visits, parent group meetings, workshops and combinations of these with preschool experience or group care, as well as a variety of other techniques. (BF)

A photo essay on the outreach extension of Coosa Valley's child development program, operated by the Cartersville center, is given. (FF)

Research has found that approximately 80 percent of the care received by elderly people living at home is provided by family members. Although assistance provided by informal supports can be important in sustaining the functionally disabled elderly at home, caregiving can have important negative effects on the informal providers. To examine the…

Describes activities in the development of the project, Home-based Employment to Accomplish Rehabilitation (HEAR). This description is intended to serve as a guideline for replicating similar programs with any group of homebound individuals. Project objectives, effect of home-based employment, guidelines, and enhancing professionalism are topics…

Presents case reports to illustrate importance of technique of transtelephonic cardiac monitoring in home care and use of technique to provide objective marker upon which physicians' decisions could be made. (Author/NB)

The benefits of home care for the severely handicapped child and his family are discussed. The Homemaker-Home Health Aide Service has been successfully adapted to fulfill the needs of these families. (GO)

Describes Homebound Learning Opportunities, innovative health promotion and educational outreach service for homebound older adults and their caregivers. Notes that program provides over 125 topics for individualized learning programs delivered to participants in homes, audiovisual lending library, educational television programing, and peer…

This extensive report describes and provides documentation on Special Communications Services for the Sensory Impaired (SCS), a Virginia-based telecommunications delivery system developed by the Center for Excellence, Inc. (CenTex), to provide information and entertainment broadcasting services to the visually handicapped, the hearing impaired,…