Background: People with intellectual disabilities are often left out of research on important topics. This exploratory study investigated their views on barriers and facilitators to accessing care at end of life, both at home and in a hospice setting. Method: This qualitative study used reflexive thematic analysis. Two focus groups were held via…

The Institute of Medicine (2015) reported that hospice and palliative care are generally not taught in medical or nursing schools. The aim of the study was to discover the palliative care self-competence of faculty who teach in pre-licensure nursing programs, determine if the "Competencies and Recommendations for Educating Nursing…

Background: This study reports the process evaluation of the In-Dialogue conversation aid to facilitate shared decision-making with people with intellectual disabilities in the palliative phase. Methods: Training for In-Dialogue was evaluated by 53 support staff members through questionnaires. The use of In-Dialogue in four residential care…

As time is limited, creation of a legacy document, particularly when aided by a care partner, is an effective method of facilitating a sense of dignity. However, access to care has been a problem for many individuals enrolled in community dwelling hospice care. Providing Dignity Therapy, (DT) a short-term individualized psychotherapy intervention…

This study explores the learning of volunteer end of life caregivers (EOLCG). Using the profound learning framework, the researchers will use a grounded theory approach to generate transferable characterizations of how learning occurs for EOLCGs and what the content of that learning is. As a unique population of adult learners who perform an…

Speech-language pathologists often lack preparation for working with patients near the end of life (EoL). Few academic training programs offer dedicated or sufficient content in the area of end-of-life care (EoLC). Furthermore, traditional knowledge-focused outcomes are not the most effective pedagogical strategy in teaching EoL and palliative…

Service learning can bridge the gap between traditional and transformational learning, as students are able to relate the course terminology directly to field experience. This project was set up to determine if volunteering for a semester at Hospice had any effect on emotional intelligence and positivity. A paired samples t-test compared…

As the main symptom in palliative care, pain requires careful assessment. Repeating patient answers is one recommended communication technique for helping convey to patients that they have been heard, and to encourage them to say more. We examined 23 episodes where experienced doctors repeat patients' answers with mirrored rhythm and…

Problem was few African Americans in rural southwest Georgia took advantage of hospice care. Primary purpose was to determine beliefs of hospice nonphysician medical care providers relative to referring African American patients for hospice care. Secondary purpose was to identify cultural and other factors hindering some African American families…