This document presents the text of the Congressional hearing called to discuss the provision of health care services to people with Acquired Immune Deficiency Syndrome (AIDS) outside of hospitals, including home health care, hospice care, nursing home care, personal care and counseling, and other support services for patients and their families.…

Developed Hospice Caregiver Assessment Inventory to identify problems of those caring for dying patients, and Caregiver Intervention Plan. Analysis of 24 inventories and assessment plans identified problems of caregivers of dying older people. Results suggest that caregivers often need counseling assistance prior to death of patient, as well as…

A new measure of concerns about dying was investigated in this psychometric study. The Concerns About Dying instrument (CAD) was administered to medical students, nursing students, hospice nurses, and life sciences graduate students ( N = 207) on two occasions; on one occasion they also completed three related measures. Analyses included…

Context: Approximately 20% of North Americans and 25% of Europeans reside in rural areas. Planning and providing end-of-life (EOL) care in rural areas presents some unique challenges. Purpose: In order to understand these challenges, and other important issues or circumstances, a literature search was conducted to assess the state of science on…

In a survey conducted to assess the state of death education available to pharmacy students, 85 percent of the schools of pharmacy provided information concerning attitudes toward teaching death education; present offerings; academic background of instructors and departments responsible for death education programs; and course information.…

Provides a case analysis of a child with a medically complex profile in which early-intervention staff and special-education staff worked to determine family priorities and utilized the local hospice agency to devise creative programming that meets the needs of the family and child. (Author/CR)

Although social work participation on interdisciplinary teams is long-standing, little research has been done to examine its effectiveness. This study used the Index of Interdisciplinary Collaboration to explore relationships between selected variables and teamwork in the hospice setting. The findings indicate that hospice social workers report a…

Examines feasibility of palliative approach for all patients, showing reasonable people may refuse even the most exemplary care for themselves or an incompetent relative. Medical realities and alleviation of pointless suffering necessitate that policymakers consider other options, including "active" euthanasia, consistent with patient…

Participant-observation research was conducted in the home care components of a free-standing inpatient facility associated with several hospice organizations over three years. The data are reported using negotiated order theory as a framework for understanding the hospice movement and its attempts to change the experience of dying. (JPS)

Medical family therapy grew out of the experiences of family therapists working with other professionals to provide comprehensive, integrated healthcare for patients. This is the story of one such patient and provides an account of the experience through quotes from videotaped sessions and electronic mail communications that occurred throughout…

The author's reflections on Becky's legacy (see Werth, this issue) revolve around the idea that she can serve as a role model and that Becky's and Jim's experiences provide guidance to others who will inevitably go through the dying process. She also highlights several themes she saw in Werth's article: a cultural revolution around dying, the…

Purpose: This study explored the psychosocial dynamics of short hospice stays (less than 2 weeks) of cancer patients age 65 and older. Design and Methods: In-depth interviews with 59 caregivers of 50 patients were audiotaped, transcribed, and coded by using Atlas ti software. Results: A descriptive typology is presented. A late diagnosis (n = 22…

Grounded theory methods were used to study the experiences of 8 bereaved fathers whose children received care in a home-based hospice program. In-depth, unstructured interviews were audiotaped, transcribed, and coded for themes and categories. Every aspect of fathers' lives was affected by their experiences, which were described in metaphoric…

An educational CD-ROM/video program was developed to educate nursing home staff about two research-based techniques for reducing agitation and aggression during bathing of persons with Alzheimer's disease, including person-centered showering and the towel bath. This educational program was distributed free of charge to all 15,453 US nursing homes…

This study examined the work behaviors of individuals with graduate degrees who provide clinical services to terminally ill individuals, family members, and the bereaved. An instrument was developed to assess the frequency and importance of work behaviors of individuals working with dying individuals and their families. Participants were randomly…