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Walter Zahorodny; Josephine Shenouda; Kate Sidwell; Michael G. Verile; Cindy Cruz Alvarez; Arline Fusco; Audrey Mars; Mildred Waale; Tara Gleeson; Gail Burack; Paul Zumoff – Journal of Autism and Developmental Disorders, 2025
Purpose: Almost all epidemiologic studies estimating autism spectrum disorder (ASD) prevalence have focused on school-age children. This study provides the first population-based data on the prevalence and expression of ASD among adolescents in a large US metropolitan region. Methods: Active multiple source ASD surveillance of adolescents aged…
Descriptors: Autism Spectrum Disorders, Incidence, Adolescents, Symptoms (Individual Disorders)
Jessica E. Goldblum; Tyler C. McFayden; Stephanie Bristol; Orla C. Putnam; Amanda Wylie; Clare Harrop – Journal of Autism and Developmental Disorders, 2024
Purpose: An official autism diagnosis is required to access timely intervention and is associated with better long-term wellbeing and mental health. Certain demographic characteristics, such as being female or a racially or ethnically minoritized youth, have been associated with significant diagnostic lag. However, it remains unclear how assigned…
Descriptors: Autism Spectrum Disorders, Individual Characteristics, Clinical Diagnosis, Incidence
Mental Health Care Use of Autistic Adults: Identifying Longitudinal Patterns Using Sequence Analysis
Iris Selten; Tim Ziermans; Iris Rapoport; Kim Jonkman; Hilde M. Geurts – Autism: The International Journal of Research and Practice, 2025
To improve mental health care for autistic adults, a better understanding of their real-world intervention use is required. The aim of this study is to investigate individual differences in the intervention trajectories of autistic adults, by examining longitudinal patterns of therapy, counseling, and medication use. Self-reported intervention use…
Descriptors: Mental Health, Autism Spectrum Disorders, Access to Health Care, Intervention
Holly K. Harris; Georgios D. Sideridis; William J. Barbaresi; Elizabeth Harstad – Journal of Autism and Developmental Disorders, 2024
Compare developmental profiles and core ASD symptom manifestation between male and female toddlers with DSM-5 ASD. Retrospective record review of 500 toddlers (79% male) at time of ASD diagnosis. There were no differences in developmental functioning between males and females. When adjusting for multiple comparisons, sex differences were only…
Descriptors: Autism Spectrum Disorders, Symptoms (Individual Disorders), Toddlers, Gender Differences
Tulsi A. Radhoe; Joost A. Agelink van Rentergem; Carolien Torenvliet; Annabeth P. Groenman; Wikke J. van der Putten; Hilde M. Geurts – Autism: The International Journal of Research and Practice, 2024
Differences in (autism) characteristics are often reported between autistic and non-autistic adults but also between autistic adults. We aimed to determine whether mean differences correspond to differences in network structure of these characteristics in (1) autistic and non-autistic adults and (2) two previously identified autism subgroups. A…
Descriptors: Adults, Autism Spectrum Disorders, Control Groups, Social Networks
Rachel L. Moseley; Darren Hedley; Julie M. Gamble-Turner; Mirko Uljarevic; Simon M. Bury; Grant S. Shields; Julian N. Trollor; Mark A. Stokes; George M. Slavich – Autism: The International Journal of Research and Practice, 2025
Despite very high rates of suicidal thoughts and behaviors (STB) in autistic adults, the key psychosocial drivers of this phenomenon remain unknown. To investigate, we examined how lifetime stressor exposure and severity, which have been found to predict STB in non-autistic populations, related to STB in a multinational dataset of 226 autistic…
Descriptors: Autism Spectrum Disorders, Adults, Stress Variables, Suicide
Tsai, Shih-Jen; Chang, Wen-Han; Cheng, Chih-Ming; Liang, Chih-Sung; Bai, Ya-Mei; Hsu, Ju-Wei; Huang, Kai-Lin; Su, Tung-Ping; Chen, Tzeng-Ji; Chen, Mu-Hong – Autism: The International Journal of Research and Practice, 2023
Evidence suggests increased mortality rates among autistic individuals. However, risks of mortality, including natural-cause, suicide, and accident mortalities, among autistic individuals remain unclear. Among the entire Taiwanese population (N = 29,253,529), between 2003 and 2017, 45,398 autistic individuals were identified and 1:4 matched to…
Descriptors: Autism Spectrum Disorders, Mortality Rate, Accidents, Suicide
Jessica V. Smith; Michelle Menezes; Sophie Brunt; Jessica Pappagianopoulos; Eleonora Sadikova; Micah O. Mazurek – Autism: The International Journal of Research and Practice, 2024
The capacity of the workforce lags behind the current demand for timely autism diagnostic assessment. Primary care providers (PCPs) are well-positioned to diagnose autism at earlier ages than providers from other disciplines. Thus, bolstering PCPs' diagnostic capabilities has been the focus of many recent capacity-building initiatives. Using data…
Descriptors: Autism Spectrum Disorders, Clinical Diagnosis, Age Differences, Primary Health Care
Monya Anne Thompson – ProQuest LLC, 2024
Autism spectrum disorder is diagnosed more in males than females, this difference is even more prevalent if the female is of at least average intelligence. The problem addressed by this qualitative exploratory case study was the under-identification of females with autism due to their masking behavior. This problem directly impacts females who…
Descriptors: Autism Spectrum Disorders, Behavior, Females, Individual Characteristics
Dillon, Emily F.; Kanne, Stephen; Landa, Rebecca J.; Annett, Robert; Bernier, Raphael; Bradley, Catherine; Carpenter, Laura; Kim, So Hyun; Parish-Morris, Julia; Schultz, Robert; Wodka, Ericka L.; Wodka, Ericka L.; Wodka, Ericka L. – Journal of Autism and Developmental Disorders, 2023
Discernment of possible sex-based variations in presentations of autism spectrum disorder (ASD) symptoms is limited by smaller female samples with ASD and confounds with ASD ascertainment. A large national cohort of individuals with autism, SPARK, allowed parent report data to be leveraged to examine whether intrinsic child characteristics and…
Descriptors: Gender Differences, Autism Spectrum Disorders, Individual Characteristics, Children
Kristen T. MacKenzie; Mario J. Crown; Jessie B. Northrup; Elizabeth Rutenberg; Amy G. Hartman; Carla A. Mazefsky – Journal of Autism and Developmental Disorders, 2025
The purpose of this project was to investigate potential correlates of family life impairment in families of young autistic children. This project incorporated measures of specific child and parent challenges in addition to a commonly used unidimensional measure of autism characteristics. In this way, we could assess whether such challenges…
Descriptors: Family Environment, Young Children, Autism Spectrum Disorders, Barriers
Marie Antoinette Hodge; Rebecca Sutherland; Kelsie A. Boulton; Sarah Jane Baracz; Natalie Ong; Beverley Bennett; Adam J. Guastella; Natalie Silove – Autism: The International Journal of Research and Practice, 2025
Studies have shown that there are differences between the presentations of males and females diagnosed with autism. There remains a developing understanding about how the presentation of autism differs between boys (hereafter referred to as 'assigned males at birth') and girls (assigned females at birth). This study sought to investigate the…
Descriptors: Autism Spectrum Disorders, Symptoms (Individual Disorders), Children, Gender Differences
Kyla Arcebido; Emily Val Tuliao; Andryella Maxie Ibarra; Kai Russell; Aracelly Valdes; Sohum Shinkre; Samantha Gefen; Amelia Evans; Sabrina Barella; Joelle Wadei; Isabella Quinon; Takahiro Soda – Autism: The International Journal of Research and Practice, 2025
Genetic tests, such as Fragile X and Chromosomal Microarray, are recommended as a standard of care during the evaluation of autism spectrum disorder (ASD) and other neurodevelopmental disorders. However, previous research demonstrates low rates of genetic testing. This study aimed to identify the rates of genetic testing and patient demographic…
Descriptors: Genetic Disorders, Autism Spectrum Disorders, Neurodevelopmental Disorders, Databases
Williams, Zachary J.; Cascio, Carissa J.; Woynaroski, Tiffany G. – Autism: The International Journal of Research and Practice, 2023
Quality of life is widely acknowledged as one of the most important outcomes in autism research, but few measures of this construct have been validated for use in autistic people. The goal of the current study was to examine the psychometric properties of the Patient-Reported Outcomes Measurement Information System Global--10, an established…
Descriptors: Quality of Life, Autism Spectrum Disorders, Adults, Psychometrics
Simon M. Bury; Darren Hedley; Mirko Uljarevic; Xia Li; Mark A. Stokes; Sander Begeer – Autism: The International Journal of Research and Practice, 2024
Autistic adults experience high rates of unemployment, yet research investigating what predicts employment success produces inconsistent results. By utilising longitudinal person-oriented analyses, this study aimed to identify employment trajectories of autistic adults to better understand what may predict stable autistic employment. Participants…
Descriptors: Employment Patterns, Profiles, Autism Spectrum Disorders, Adults
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