Consent is one necessary foundation for ethical research and it's one of the research ethics committee's major roles to ensure that the consent process meets acceptable standards. Although on Oxford 'A' REC (an NHS Research Ethics Committee based in the UK) we've been impressed by the thought and work put into this aspect of research ethics, we've…

As our modern world has become increasingly digitalized, various types of data from different data domains are available that can enrich survey data. To link survey data to other sources, consent from the survey respondents is required. This article compares consent to data linkage requests for seven data domains: administrative data, smartphone…

The management of human fetal and embryological collections presents an ethical challenge that can be explored from different perspectives, particularly when considering informed consent. The "micro ethics" level focuses on parties engaged in giving and receiving human tissue while the "macro ethics" level focusses on the…

Involving children as stakeholders and including their voices in updating the Australian Early Years Learning Framework (for children birth to age 5) was a focus of this project design. The design was grounded in participatory approaches with a children's rights perspective, as the team prioritised seeking children's views and encouraging their…

Members of research ethics committees (RECs) face a number of ethical challenges when reviewing genomic research. These include issues regarding the content and type of consent, the return of individual research results, mechanisms of sharing specimens and health data, and appropriate community engagement efforts. This article presents the…

The growing importance of researching online activities, such as cyber-deviance and cyber-crime, as well as the use of online tools (e.g. questionnaires, games, and other interactive tools) has created new ethical and legal challenges for researchers, which can be even more complicated when researching adolescents. In this article, we highlight…

The term "human fetal and embryological collections" refers to repositories or archives that house remains of human fetuses and embryos. Most of these remains have been obtained without informed consent from the next of kin, thus reflecting a time in history where this may have been acceptable. Previous quantitative studies seeking…

The establishment of a research ethics committee (REC) is necessary in Philippine higher education institutions (HEI), but at present not all HEIs have an accredited REC. While past studies focused on how RECs are perceived by its different stakeholders, these perceptions have not been explored in the context of educational institutions without an…

Communication-intervention strategies for reducing vaccine hesitancy have been primarily based on survey and interview data. Virtually absent is an understanding of how vaccine hesitancy is organized interactionally in its primary, natural environment of medical consultations between parents and healthcare providers. This article uses conversation…

The establishment of a Research Ethics Committee (REC) is a significant step to ensure the standard procedures in ethics review process that protect human participants. However, in instances when RECs are not yet established, surrogate activities are practiced by some institutions. The objective of this study was to identify prevailing research…

Obtaining informed consent can be challenging during peer research when the boundaries between researcher and participant are blurred. We developed a novel visual consent method with illiterate artists in Nepal who conducted peer interviews in their communities. Artists discussed and sketched images related to ethical principles to create a visual…

Purpose: This study investigates the relationship between mental well-being (MWB) and social support (SS) whilst addressing the paucity of research on students' support for emergency contact schemes (ECSs) and their views on how and when such schemes should be implemented. Design/methodology/approach: In total, 113 students recruited via…

Notions of consent, including assent and dissent, are paramount ethical considerations in human research, but have different connotations in research involving young children (aged 3 to 8). While discussion surrounding consent in the early childhood literature has progressed from paternalistic views surrounding the need to protect the child, to…

Although the use of the cluster randomized trial (CRT) design to evaluate vaccines, public health interventions or health systems is increasing, the ethical issues posed by the design are not adequately addressed, especially in low- and middle-income country settings (LMICs). To help reveal ethical challenges, qualitative interviews were conducted…

The last decade has seen a rise in big data approaches, including in the humanities, whereby large quantities of data are collected and analysed. In this paper, we discuss long-form audio recordings that result from individuals wearing a recording device for many hours. Linguists, psychologists and anthropologists can use them, for example, to…