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Interdisciplinarity and Self-Injury: Toward an Inclusive Research and Treatment Paradigm
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Caroline L. Roberts; Madilyn Larsh; Frank Symons – Journal of Intellectual & Developmental Disability, 2024
Background: Historically, the research and treatment of self-injury has been disciplinarily siloed. As a result, the behaviour is understood and treated differently among individuals with and without intellectual and developmental disabilities. We explore the potential for an interdisciplinary research and practice agenda in self-injury. Method:…
Descriptors: Self Destructive Behavior, Therapy, Interdisciplinary Approach, Intellectual Disability
A Qualitative Analysis of Family Caregiver Experiences Accessing Treatment for Self-Injurious Behavior in Individuals with Intellectual and Developmental Disabilities
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Caroline L. Roberts; Ashleigh H. Avina; Frank J. Symons – Journal of Mental Health Research in Intellectual Disabilities, 2024
Introduction: There is evidence of a gap between individuals with intellectual and developmental disabilities (IDD) who need treatment for self-injurious behavior (SIB) and those who receive treatment. The purpose of this study (n = 15) was to begin to understand the treatment gap from the perspective of family caregivers. Methods: In…
Descriptors: Intellectual Disability, Family Role, Caregivers, Developmental Disabilities
Brief Report: Pediatrician Referral Practices for Early Self-Injury in Young Children with Intellectual and Developmental Disabilities
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Jill Cherie Fodstad; Alexus M. Gonzalez; McKenzie Barber; Michelle Curtin – Journal of Developmental and Physical Disabilities, 2023
The purpose of this study was to examine the frequency and quality of primary care physician (PCP) recommendations to investigate the management of young children with delays and self-injury (SIB; e.g., head banging) from the time of initial SIB concern to specialty referral as recommended by the American Academy of Pediatrics (AAP). Via a…
Descriptors: Injuries, Self Destructive Behavior, Intervention, Referral
Passing Laws Is Not Enough to Change Staff Practice: The Case of Legally Mandated "Incident" Reporting in Sweden
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Björne, Petra; Deveau, Roy; Nylander, Lena – Journal of Intellectual & Developmental Disability, 2021
Background: It is mandatory for staff in Swedish community services for people with intellectual disabilities to report incidents of error or malpractice. Aim The aim is to study if incident reports contribute to developing quality in services for people with intellectual disabilities who present with challenging behaviours. Method: 159 reports on…
Descriptors: Foreign Countries, Intellectual Disability, Reports, Disclosure
Demonstration of Parent Training to Address Early Self-Injury in Young Children with Intellectual and Developmental Delays
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Fodstad, Jill C.; Kirsch, Alexandra; Faidley, Micah; Bauer, Nerissa – Journal of Autism and Developmental Disorders, 2018
Individuals with intellectual and developmental disabilities (IDD) are at a high risk for engaging in self-injurious behavior (SIB). Prognosis is poor when SIB emerges early. Limited research exists on interventions teaching parents how to manage their young child's SIB. This investigation assessed the feasibility of adapting an applied behavior…
Descriptors: Parent Education, Self Destructive Behavior, Injuries, Young Children
Epidemiology of Injury-Related Emergency Department Visits in the US among Youth with Autism Spectrum Disorder
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Kalb, Luther G.; Vasa, Roma A; Ballard, Elizabeth D.; Woods, Steven; Goldstein, Mitchell; Wilcox, Holly C. – Journal of Autism and Developmental Disorders, 2016
Several reports suggest children with autism spectrum disorder (ASD) are more likely to be seen for injury-related ED visits; however, no nationally representative study has examined this question. Using data from the 2008 Nationwide Emergency Department Sample, over a quarter of all visits among those with ASD were related to injury. In the…
Descriptors: Epidemiology, Pervasive Developmental Disorders, Injuries, Hospitalized Children