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Nicola Gregson; Cathy Randle-Phillips; Sal Hillman – International Journal of Developmental Disabilities, 2024
Primary care health checks, screenings and GP consultations are often the gateway for people with intellectual disabilities to access their physical and mental healthcare. For a population who experience greater levels of health difficulties alongside significant health inequality, improving care quality and access is of major importance. This…
Descriptors: Intellectual Disability, Medical Services, Family Practice (Medicine), Primary Health Care
Manktelow, Nicholas; Chadwick, Darren D.; Brewster, Stephanie; Tilly, Liz – Journal of Applied Research in Intellectual Disabilities, 2023
Background: People with intellectual disabilities' voting rate within the United Kingdom remains significantly below the population average despite government enacted voting promotion measures. No published academic literature directly involves people with intellectual disabilities when considering their UK general election experiences -- this…
Descriptors: Intellectual Disability, Attitudes, Experience, Voting
Sue Caton; Chris Hatton; Jill Bradshaw; Andrew Jahoda; Rosemary Kelly; Roseann Maguire; Edward Oloidi; Laurence Taggart; Stuart Todd; Richard P. Hastings; the Coronavirus and People with Learning Disabilities Study Team – Journal of Applied Research in Intellectual Disabilities, 2024
Background: People with intellectual disabilities commonly experience multiple barriers to 'going out'. Aims: This paper explores what barriers prevented people from going out, and if the extent and nature of going out changed over time for people with intellectual disabilities as the COVID-19 pandemic progressed. Methods: Data are drawn from a…
Descriptors: Intellectual Disability, COVID-19, Pandemics, Foreign Countries
J. Jordan; M. Larkin; E. Tilley; J. Vseteckova; S. Ryan; L. Wallace – Journal of Applied Research in Intellectual Disabilities, 2025
Background: There are increasing numbers of ageing family carers of older (40+) adults with intellectual disabilities who convey behaviours that challenge others in the UK. It is important to understand the needs and experiences of these carers as they support their older family member to transition to different care contexts. Method: A rapid…
Descriptors: Foreign Countries, Literature Reviews, Caregivers, Older Adults
Laura Surley; Dave Dagnan; Kate Lawson; Andrew Jahoda – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Talking therapy for people with intellectual disabilities is often specifically adapted. One adaptation is the involvement of significant others in therapy, however, there is no systematic description of the use of this adaptation in routine clinical practice. Method: An online survey of UK psychologists regarding the inclusion of…
Descriptors: Foreign Countries, Intellectual Disability, Psychologists, Counselor Attitudes
Jennifer Jackson; Jessica Sinyor; Hayley Trower – British Journal of Learning Disabilities, 2024
Background: The hospital or health passport is widely acknowledged as a central element in making reasonable adjustments for patients with intellectual disabilities. Historically, the health passport has been used exclusively for patients with intellectual disabilities; however, it has wider applications for any patient requiring additional…
Descriptors: Intellectual Disability, Individual Characteristics, Barriers, Communication Strategies
McKenzie, Karen; Murray, George; Metcalfe, Dale; Robson, Ruth; Kaczmar, Matt; Shirley, Alex – Journal of Applied Research in Intellectual Disabilities, 2023
Background: We explored the accuracy of using the learning disability screening questionnaire (LDSQ) in services for people experiencing homelessness in the United Kingdom. Method: We examined the concordance between the LDSQ outcomes and assessments of intellectual disability. Seventy adults experiencing homelessness completed the LDSQ. Staff…
Descriptors: Homeless People, Intellectual Disability, Adults, Screening Tests
Helen Buxton; Manuel Gomes; Rafael Gafoor; Zac Taylor; Vaso Totsika – Journal of Applied Research in Intellectual Disabilities, 2024
Background: The Personal Outcomes Scale (POS) is a scale developed to measure quality of life of adults (18+) with intellectual disability. Previous studies have reported good fit for Spanish and Portuguese language versions of POS. Aims: This study aimed to evaluate the factor structure of the English language version of POS when used to measure…
Descriptors: Foreign Countries, Quality of Life, Intellectual Disability, Adults
Sawhney, Indermeet; Zia, Asif; Gates, Bob; Sharma, Anu; Adeniji, Adetayo – Journal of Intellectual Disabilities, 2023
Aim: This Quality Improvement Project sought to improve communication between patients with intellectual disabilities and their psychiatrists by sharing medical information using an easy read letter format following psychiatric review. Background: Writing directly to patients is in keeping with good medical practice. Previous studies have shown…
Descriptors: Patients, Intellectual Disability, Letters (Correspondence), Psychiatry
Bernal, Jane; Hunt, Katherine; Worth, Rhian; Shearn, Julia; Jones, Edwin; Lowe, Kathy; Todd, Stuart – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Considerable attention is rightly paid to preventable deaths in adults with intellectual disabilities. The pattern of these deaths and the implications for services have been less considered. Method: This paper forms part of a larger cross-sectional study of deaths in a defined population of adults with intellectual disabilities. Data…
Descriptors: Foreign Countries, Death, Adults, Intellectual Disability
Deb, Shoumitro; Limbu, Bharati; Nancarrow, Tom; Gerrard, David; Shankar, Rohit – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Overprescribing of off-licence psychotropic medications, particularly antipsychotics, for challenging behaviours in people with intellectual disabilities without a psychiatric disorder is a significant public health concern. In the United Kingdom, the National Health Service England launched an initiative in 2016, 'STopping…
Descriptors: Foreign Countries, Psychiatry, Experience, Adults
Laermans, P.; Morisse, F.; Lombardi, M.; Gérard, S.; Vandevelde, S.; de Kuijper, G.; Audenaert, K.; Claes, C. – International Journal of Developmental Disabilities, 2023
Introduction: Adults with intellectual disabilities have an increased vulnerability to mental health problems and challenging behaviour. In addition to psychotherapeutic or psychoeducational methods, off-label pharmacotherapy, is a commonly used treatment modality. Objective: The aim of this study was to establish evidence-based guideline…
Descriptors: Adults, Intellectual Disability, Drug Therapy, Behavior Problems
Rachel Abigail Harrison; Jill Bradshaw; Michelle McCarthy – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Since the introduction of austerity measures in 2008, funding for care, welfare, services and support systems in the United Kingdom has been reduced. There is little research that explores the experiences of parents of adults with intellectual disabilities and service providers regarding care, relationships and social networks in times…
Descriptors: Adults, Intellectual Disability, Economic Climate, Budgeting
Abraham, Julie; Purandare, Kiran; McCabe, Joanne; Wijeratne, Anusha; Eggleston, Evelina; Oak, Katy; Laugharne, Richard; Roy, Ashok; Shankar, Rohit – Journal of Applied Research in Intellectual Disabilities, 2022
Background: In the United Kingdom, policy change has led to specialist intellectual disability inpatient bed reduction. Little evidence exists assessing the results for patients admitted to such units. This study evaluates the outcomes of a specialist intellectual disability inpatient unit. Method: Gender/age/ethnicity/intellectual disability…
Descriptors: Intellectual Disability, Patients, Foreign Countries, Specialists
Beresford, Cathy J.; Kozlowska, Olga – Journal of Applied Research in Intellectual Disabilities, 2022
Background: People with intellectual disabilities are more likely to have diabetes and develop complications from it. Diabetes management is complex and insulin treatment in particular, people with intellectual disabilities may require additional support that is not always available. This review aimed to identify barriers and facilitators to…
Descriptors: Barriers, Affordances, Diabetes, Drug Therapy