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Karine Baumstarck; Sibylle Del Duca; Houria El Ouazzani; Ilyes Hamouda; Any Beltran Anzola; Marie-Anastasie Aim; Marie-Christine Rousseau – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Advancements in medicine have increased the life expectancy of the people with profound intellectual and multiple disabilities. The hypothesis is that as parents get older, they worry about no longer being there for their child. This paper explores the extent to which the experiences of older parents may differ from that of younger…
Descriptors: Quality of Life, Severe Disabilities, Multiple Disabilities, Intellectual Disability
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Damien Wright; Aisling Kenny; Lindsay A. M. Mizen; Andrew G. McKechanie; Andrew C. Stanfield – American Journal on Intellectual and Developmental Disabilities, 2024
This study aimed to describe the behavioral profile of individuals with SYNGAP1-ID. Parents/carers of 30 individuals aged 3-18 years old with a diagnosis of SYNGAP1-ID and 21 typically developing individuals completed the Vineland-3 Adaptive Behavior Scale and the Child Behavior Checklist. We found that those with SYNGAP1-ID showed fewer adaptive…
Descriptors: Behavior Problems, Age Differences, Epilepsy, Comorbidity
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Meredith Saletta Fitzgibbons; Amy Buros Stein; Omar M. Khan – Focus on Autism and Other Developmental Disabilities, 2025
Text comprehension can be facilitated in many ways, including enabling the listener to see pictures illustrating the story, to read along silently, or to read along aloud. The purpose of this study was to determine whether any of these three supports facilitated text comprehension in adults with intellectual and/or developmental disability (IDD).…
Descriptors: Adults, Intellectual Disability, Developmental Disabilities, Reading Comprehension
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Olsen, Monica Isabel; Halvorsen, Marianne Berg; Søndenaa, Erik; Strand, Bjørn Heine; Langballe, Ellen Melbye; Årnes, Anders; Michalsen, Henriette; Larsen, Frode Kibsgaard; Gamst, Wenche; Bautz-Holter, Erik; Anke, Audny – Journal of Applied Research in Intellectual Disabilities, 2022
Background: This study investigated the completion rates, scores and factors associated with non-completion and low scores on physical capability tests in a health survey administered to adults with intellectual disabilities. Method: Assessment comprised body mass index (BMI), the Short Physical Performance Battery (SPPB), the timed up-and-go…
Descriptors: Adults, Intellectual Disability, Physical Fitness, Tests
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Masahiko Inoue; Yoichi Gomi; Soichiro Matsuda – International Journal of Developmental Disabilities, 2024
Introduction: Individuals with intellectual disabilities (ID) are at heightened risk of behavioral problems. Methods: This study investigated differences in the severity of challenging behaviors (CBs) among individuals with IDs at varying life stages. Data were collected from parents' retrospective interviews. Surveys were completed by 47 parents…
Descriptors: Foreign Countries, Intellectual Disability, Adults, Children
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Ahlström, Gerd; Wallén, Eva Flygare; Tideman, Magnus; Holmgren, Marianne – Journal of Intellectual Disabilities, 2022
The aim of this study was to describe the social care provided for different age groups of people with intellectual disability, 55 years or above, and to investigate the association between such care and frailty factors for those with diagnosed level of intellectual disabilities. Descriptive and logistic regression analyses were used. Commonest…
Descriptors: Aging (Individuals), Intellectual Disability, Social Services, Residential Care
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Jarvis, Erin N.; McAuliffe, Danielle; Dayan, Mercedes; McDevitt, Jane – Journal of Intellectual & Developmental Disability, 2023
Background: Having an intellectual disability increases the likelihood for exhibiting impairments in vision, hearing, and balance. The intersection of these issues has yet to be described in a large cohort. Methods: By hosting the largest public health database for individuals with intellectual disability, Special Olympics (SO) offers…
Descriptors: Intellectual Disability, Athletics, Perceptual Impairments, Visual Impairments
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Verity Chester; Medha Cherukat; Nicholas Smith; Elizabeth Patteril; Indermeet Sawhney; Asif Zia; Regi Alexander – Journal of Applied Research in Intellectual Disabilities, 2025
Introduction: Hypothyroidism is a chronic health condition which causes physical, cognitive and psychiatric symptoms. The prevalence of hypothyroidism in adults with intellectual disabilities is under researched. Method: Hypothyroidism was examined among 463 patients within an outpatient intellectual disability psychiatric team. Clinic records…
Descriptors: Intellectual Disability, Physiology, Metabolism, Adults
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Hennessey, Robin E.; Goreczny, Anthony J. – Journal of Applied Research in Intellectual Disabilities, 2022
Background: Employment is often central to individuals' lives. However, individuals with intellectual or developmental disabilities are often absent from the workplace, and little research has examined their interest in working. Aims: This study examined whether people with intellectual and/or developmental disabilities want jobs; why they do or…
Descriptors: Employment, Preferences, Intellectual Disability, Developmental Disabilities
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Christina Carrier; Carly Magnacca; Ethan Rinaldo; Jeffrey Esteves; Adrienne Perry – Journal of Mental Health Research in Intellectual Disabilities, 2025
Introduction: Mental health concerns have been noted to be highly prevalent for youth with intellectual disability (ID), with or without autism spectrum disorder (ASD). The purpose of the current study was to examine a Canadian sample of youth with ID, with or without ASD, to explore caregiver-reported percentages, predictors, and treatment…
Descriptors: Parent Attitudes, Mental Disorders, Intellectual Disability, Autism Spectrum Disorders
Zablotsky, Benjamin; Ng, Amanda E.; Black, Lindsey I.; Blumberg, Stephen J. – National Center for Health Statistics, 2023
This report provides updated prevalence estimates for diagnosed autism spectrum disorder, intellectual disability, and other developmental delay among children 3-17 years from the 2019-2021 National Health Interview Survey, with differences in prevalence examined between years and by sex, age group, and race and Hispanic origin. Estimates are also…
Descriptors: Incidence, Developmental Disabilities, Autism Spectrum Disorders, Intellectual Disability
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Maher Tayseer Al-Sharadqah; Ghoufran Salem Ali Al-Ghamdi – Pegem Journal of Education and Instruction, 2024
This study aimed to identify the reality of the rehabilitation of people with intellectual disabilities and their employment from the point of view of their parents in the city of Mecca, where a questionnaire was designed as a tool for collecting data, and the sample of the study consisted of (142) parents of persons with intellectual disabilities…
Descriptors: Foreign Countries, Intellectual Disability, Employment Level, Parent Attitudes
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Erlend Refseth Pedersen; Audny Anke; Emmy Elizabeth Langøy; Monica Isabel Olsen; Erik Søndenaa – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Studies have found that presence of challenging behaviours and mental health problems limits employment for people with intellectual disabilities. This study investigates the associations between age, gender, living condition, level of intellectual disability, diagnoses, behaviour, mental health, and employment in adults with…
Descriptors: Foreign Countries, Intellectual Disability, Behavior Problems, Mental Disorders
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Miot, Stéphanie; Chancel, Raphaël; Peries, Marianne; Crepiat, Sophie; Couderc, Sylvie; Pernon, Eric; Picot, Marie-Christine; Gonnier, Véronique; Jeandel, Claude; Blain, Hubert; Baghdadli, Amaria – Autism: The International Journal of Research and Practice, 2023
Multimorbidity, defined as having two or more chronic health conditions, is associated with elevated polypharmacy and mortality. Autism spectrum disorder is a whole-body chronic health condition in which comorbidities -- in particular co-occurring intellectual disability -- contribute to high clinical heterogeneity, polypharmacy and premature…
Descriptors: Comorbidity, Adults, Autism Spectrum Disorders, Intellectual Disability
Dengiz, Güney; Kiran, Binnaz – Online Submission, 2020
Using a conjoint analysis design, this study aims to examine the importance of disability type, disability level, age, gender, and ethnic origin of individuals with disabilities in the attitude/preference formation of school counselors working with students with disabilities. Two hundred and ninety-one school counselors working in Mersin and…
Descriptors: Counselor Attitudes, School Counselors, Attitudes toward Disabilities, Students with Disabilities
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