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Caregiver Concerns about, and Clinical Characteristics of, Persons Referred to a Specialized Mental Health Service for Those with Intellectual Disabilities
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Donovan Seidel; John D. McLennan – Journal of Mental Health Research in Intellectual Disabilities, 2024
Introduction: As little is known about who uses specialty mental health clinics for persons with intellectual disabilities, this study aimed to identified caregiver concerns, clinical characteristics, and the relationship between these two constructs for referrals to such a clinic. Methods: Qualitative and quantitative analyses were applied to…
Descriptors: Foreign Countries, Mental Health, Clinics, Intellectual Disability
Mental Health and Coping Strategies of Caregivers of People with Intellectual and Developmental Disabilities: The Initial Impact of the COVID-19 Pandemic in Brazil
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Crystian Moraes Silva Gomes; Arthur Cassa Macedo; Evelyn Brunorio Salamão; Kellen Valladão Schiavo; Lilian Gazzoli Zanotelli – International Journal of Developmental Disabilities, 2024
Studies on the COVID-19 pandemic highlight detrimental effects of social distancing on mental health. These effects were also observed among caregivers of people with intellectual and developmental disabilities (IDD), who undergo particular challenges in this context. This study aimed to identify the coping strategies adopted by caregivers of…
Descriptors: Mental Health, Coping, Caregivers, Intellectual Disability
What Encourages Care Workers to Continue Working in Intellectual Disability Services in England? Interview Findings
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Stevens, Martin; Moriarty, Jo; Manthorpe, Jill; Harris, Jess; Hussein, Shereen; Cornes, Michelle – Journal of Intellectual Disabilities, 2021
The article reports research aimed at identifying factors relating to retention in English intellectual disability services, drawing on a study of the social care workforce. The research involved two rounds of interviews with social care managers and staff between 2009 and 2014. The study uses social exchange theory, particularly the idea of…
Descriptors: Social Services, Caregivers, Intellectual Disability, Foreign Countries
An Open Label Discontinuation Trial of Long-Term Used Off-Label Antipsychotic Drugs in People with Intellectual Disability: The Influence of Staff-Related Factors
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Kuijper, Gerda M.; Hoekstra, Pieter J. – Journal of Applied Research in Intellectual Disabilities, 2019
Background: Results of discontinuation of antipsychotics in people with intellectual disability are variable and may depend on staff factors. Method: We attempted to taper off antipsychotics in 14 weeks after which participants were free to restart. We investigated the influence of support professionals' feelings towards challenging behaviour,…
Descriptors: Intellectual Disability, Drug Therapy, Behavior Problems, Depression (Psychology)
Temper Outbursts in Lowe Syndrome: Characteristics, Sequence, Environmental Context and Comparison to Prader-Willi Syndrome
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Cressey, Helen; Oliver, Chris; Crawford, Hayley; Waite, Jane – Journal of Applied Research in Intellectual Disabilities, 2019
Background: There is limited research into the nature and aetiology of temper outbursts in people with intellectual disabilities. In this study, we describe the phenomenology and environmental context of temper outbursts in Lowe syndrome, a rare genetic syndrome in which outbursts are purportedly frequent. Method: A temper outburst interview (TOI)…
Descriptors: Psychological Patterns, Intellectual Disability, Environmental Influences, Phenomenology
Comparisons of Self and Proxy Report on Health-Related Factors in People with Intellectual Disability
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Scott, Haleigh M.; Havercamp, Susan M. – Journal of Applied Research in Intellectual Disabilities, 2018
Background: The intellectual disability field has learned about the lives of people with intellectual disabilities (ID), largely from the perspective of their family and caregivers. Information from caregivers has been critical to scientific advancement, especially when caregivers are engaged on behalf of individuals with significant language…
Descriptors: Comparative Analysis, Caregiver Attitudes, Language Impairments, Adults
No Matter How I Think, It Already Hurts: Self-Stigmatized Feelings and Face Concern of Chinese Caregivers of People with Intellectual Disabilities
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Yang, Xue – Journal of Intellectual Disabilities, 2015
This study used mixed-methods design to explore internalized self-stigma among family caregivers (ISFC) of people with intellectual disability (ID) in China, where face culture and collective emotions are emphasized. A total of 120 primary caregivers of people with ID were assessed for ISFC, face concern and psychological distress at the survey…
Descriptors: Foreign Countries, Self Concept, Social Bias, Human Body