Adults with Intellectual and Developmental Disabilities (IDD) are aging with chronic health issues. However, little is known about the racial disparities in chronic health conditions among adults with IDD. Do racial and ethnic minority adults with IDD experience elevated risk of chronic health conditions like in the general population? How do…

This report provides updated prevalence estimates for diagnosed autism spectrum disorder, intellectual disability, and other developmental delay among children 3-17 years from the 2019-2021 National Health Interview Survey, with differences in prevalence examined between years and by sex, age group, and race and Hispanic origin. Estimates are also…

Transition outcomes for Black youth with intellectual and developmental disabilities are especially dire, lagging even further behind already poor outcomes among their White peers. Self-determination is a key factor in predicting better outcomes, but it is unclear how self-determination is fostered or hindered within the transition process for…

This 10-year study followed 134 caregivers of young adults with autism and intellectual disability, examining the effects of caregivers' coping strategies, sociodemographic features, and young adult symptomatology on caregiver well-being and depression. Lower caregiver education and higher young adult externalizing behaviors predicted lower…

Barriers to health care access can greatly affect one's health status. Research shows that U.S. adults with intellectual and developmental disabilities (IDD) have poor health and face barriers such as long waits for appointments. However, whether barriers differ by race and ethnicity has not been examined. We conducted a secondary data analysis…

Objective: Transition from school to early adulthood incurs many changes and may be associated with deterioration in general health in youth with autism. We aimed to investigate this. Method: The National Longitudinal Transitions Study-2 is a USA nationally representative sample of youth receiving special education services, aged 13-17 at wave 1,…

Postsecondary education opportunities for students with intellectual disability (ID) steadily increased between 2015 and 2020, in part due to a federal model demonstration program called the Transition and Postsecondary Program for Students with Intellectual Disability (TPSID). This program, implemented by the Office of Postsecondary Education,…

Opportunities and experiences for all students, including students with intellectual and developmental disabilities, to build self-determination abilities and skills is critical to enable positive postsecondary outcomes (e.g., competitive and integrated employment, community access participation). However, racially and ethnically marginalized…

Special education provides an accessible route for children with intellectual disabilities (ID) to be evaluated and to access services. Understanding the factors that influence special education eligibility can provide valuable insight into the school evaluation and eligibility process. This study used structural equation modeling to examine the…

The "Self-Determination Inventory--Student Report" (SDI-SR) was developed to address the need in the field for new, theoretically aligned measures of self-determination. The purpose of this study was to establish the most robust and efficient set of items to assess the self-determination of adolescents with and without disabilities on…

These are the appendixes for the report, "College Enrollment and Completion among Texas High School Graduates with a Disability." The study used student-level administrative data from Texas, available through the data repository at the Texas Education Research Center at the University of Texas. The data repository contains administrative…

Genetic tests, such as Fragile X and Chromosomal Microarray, are recommended as a standard of care during the evaluation of autism spectrum disorder (ASD) and other neurodevelopmental disorders. However, previous research demonstrates low rates of genetic testing. This study aimed to identify the rates of genetic testing and patient demographic…

African American and Hispanic students receive more punitive school discipline than White students even when students of color commit similar infractions as Whites. Similarly, students with a disability status are more likely to experience harsher discipline in schools compared to their counterparts without a disability label. This study examines…

In this paper I study the impact of court-mandated school desegregation by race on student suspensions and special education classification. Simple descriptive statistics using student enrollment and outcome data collected from the largest school districts across the country in the 1970s and 1980s show that Black-White school integration was…

The Self-Determination Inventory: Student Report (SDI:SR) was developed to address a need in the field for tools to assess self-determination that are aligned with current best practices in assessment development and administration, and emerging research and best practices in promoting self-determination. The present study explored patterns of…