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M. F. Werkman; J. A. Landsman; A. S. Fokkens; Y. M. Dijkxhoorn; I. A. van Berckelaer-Onnes; S. Begeer; S. A. Reijneveld – Review Journal of Autism and Developmental Disorders, 2023
Autism spectrum disorder and intellectual disability (ID) are linked to atypical sensory processing, but consensus lacks on the impact of their co-occurrence. We studied the impact of the presence of ID in autistic individuals on (1) sensory processing and (2) the relation between sensory processing and behavioral outcomes. A systematic review was…
Descriptors: Intellectual Disability, Autism Spectrum Disorders, Sensory Experience, Emotional Response
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Keller, Aviva; Weintraub, Naomi – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Individuals with intellectual disabilities have decreased leisure participation, affecting their health and well-being. Existing measures of leisure participation are primarily based on self- or proxy reports. This study describes the initial validity and reliability of Leisure Participation Observation (LPO), developed for individuals…
Descriptors: Adults, Intellectual Disability, Leisure Time, Recreational Activities
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Freya Wright; Anastasia Hronis; Rachel Roberts; Lynette Roberts; Ian Kneebone – Educational and Developmental Psychologist, 2025
Objective: People with intellectual disabilities have historically often been excluded from cognitive based therapies, due to their cognitive deficits. However, adults with intellectual disabilities have been found to have the core cognitive abilities necessary to engage in Cognitive Behaviour Therapy. Despite this emerging evidence, the capacity…
Descriptors: Intellectual Disability, Cognitive Restructuring, Children, Child Behavior
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J. Jordan; M. Larkin; E. Tilley; J. Vseteckova; S. Ryan; L. Wallace – Journal of Applied Research in Intellectual Disabilities, 2025
Background: There are increasing numbers of ageing family carers of older (40+) adults with intellectual disabilities who convey behaviours that challenge others in the UK. It is important to understand the needs and experiences of these carers as they support their older family member to transition to different care contexts. Method: A rapid…
Descriptors: Foreign Countries, Literature Reviews, Caregivers, Older Adults
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Lauren A. Cameron; Bruce J. Tonge; Patricia Howlin; Stewart L. Einfeld; Roger J. Stancliffe; Kylie M. Gray – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Few studies have explored community participation for autistic adults, with or without intellectual disability. This study aims to investigate how autistic adults participate in the community, and the childhood and adulthood factors that predict community participation in adulthood. Method: Eighty-four autistic adults (mean age 34…
Descriptors: Adults, Autism Spectrum Disorders, Intellectual Disability, Predictor Variables
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Karine Baumstarck; Sibylle Del Duca; Houria El Ouazzani; Ilyes Hamouda; Any Beltran Anzola; Marie-Anastasie Aim; Marie-Christine Rousseau – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Advancements in medicine have increased the life expectancy of the people with profound intellectual and multiple disabilities. The hypothesis is that as parents get older, they worry about no longer being there for their child. This paper explores the extent to which the experiences of older parents may differ from that of younger…
Descriptors: Quality of Life, Severe Disabilities, Multiple Disabilities, Intellectual Disability
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Min Ah Kim; Jaehee Yi; Shinyeong Hwang; Jimin Sung; Seong Young Lee; Heejin Kim – Journal of Applied Research in Intellectual Disabilities, 2025
Background: This study sought a holistic understanding of lived experiences of individuals with a sibling who has intellectual and developmental disabilities using photovoice. Methods: Seven adult female siblings of individuals with intellectual and developmental disabilities in South Korea engaged in six weekly photovoice sessions, including an…
Descriptors: Foreign Countries, Females, Siblings, Sibling Relationship
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Agnieszka Wolowicz; Katarzyna Cwirynkalo – Journal of Applied Research in Intellectual Disabilities, 2025
Background: For many people with intellectual disabilities, the parenting role is inaccessible and/or constrained. This study provides insight into the lived experiences of parents with intellectual disabilities regarding violence and limiting their rights to parenthood in Poland. Method: Twenty-seven parents with intellectual disabilities who…
Descriptors: Parents with Disabilities, Intellectual Disability, Attitudes toward Disabilities, Child Rearing
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Raji, Oyepeju; Javaid, Shafaq – British Journal of Learning Disabilities, 2022
Background: Diagnosing and managing attention deficit hyperactivity disorder in adults with intellectual disabilities is currently largely based on findings from assessment and treatment in children or adults without intellectual disabilities. Current evidence suggests that individuals with intellectual disabilities are more likely to have…
Descriptors: Disability Identification, Clinical Diagnosis, Attention Deficit Hyperactivity Disorder, Intellectual Disability
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Roy Deveau; Georgina Rickard – British Journal of Learning Disabilities, 2024
Background: As practice leaders, frontline managers observe staff working, provide feedback and use organisational structures to improve staff skills and focus on service-user quality of life. This qualitative study explored the experiences and barriers for frontline managers providing practice leadership to staff in community services for adults…
Descriptors: Barriers, Leadership Training, Community Services, Adults
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Rebecca J. Anderson-Kittow; Richard Keagan-Bull; Jo Giles; Irene Tuffrey-Wijne – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Increasing numbers of older adults with intellectual disabilities are living with ageing parents. These families need support to plan for the future to avoid crisis interventions following parental death. Method: Interviews and focus groups were conducted with people with intellectual disabilities (aged 40+) (N = 9), parents (N = 11)…
Descriptors: Family (Sociological Unit), Older Adults, Long Range Planning, Intellectual Disability
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Marissa A. Diaz; Jerome E. Bickenbach; Carla Sabariego; Renaldo M. Bernard – Journal of Applied Research in Intellectual Disabilities, 2024
Background: A paucity of qualitative research on sensitive topics that focuses on participants with intellectual disabilities leaves their views unexplored. This scoping review mainly aimed to provide an overview of qualitative data collection methods used in research involving participants with intellectual disabilities to explore death and…
Descriptors: Research Methodology, Intellectual Disability, Death, Research
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Apphia Bunting; Claire Palmer; Rajnish Attavar; Helena Wythe; Natalie Pattison – Journal of Intellectual Disabilities, 2024
The COVID-19 pandemic resulted in changes in all areas of clinical practice, including clinical research and within the intellectual disability population. While there have been some benefits from this rapid adoption of change, those involved in research have had to overcome a number of additional challenges. These adaptive changes, which have…
Descriptors: Research, Intellectual Disability, COVID-19, Pandemics
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Aylin Kurt; Ebru Cirban Ekrem; Betül Akkoç; Fatma Dinç – International Journal of Developmental Disabilities, 2024
Nurses have important responsibilities in the development of health and care services for children with intellectual disabilities. This is because it is usually the nurse who first encounters the child in all kinds of care and treatment services. Barriers to the provision of sexual healthcare by nurses have not yet been clearly discovered. This…
Descriptors: Nurses, Sex Education, Health Education, Children
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Brand, Fiona; Scior, Katrina; Loewenberger, Alana – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Befriending is an intervention intended to provide companionship and support to socially isolated populations. This review aimed to understand the key characteristics and psychological and social outcomes of befriending interventions for adults with intellectual disabilities. Methods: Systematic searches of electronic databases…
Descriptors: Adults, Intellectual Disability, Friendship, Intervention
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