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'What Matters, Doctor?' A Qualitative and Inclusive Study of the Experience of Mainstream Healthcare among People with Intellectual Disabilities in Belgium
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A. Miceli; L. Lucassen; R. Rinaldi; N. Van Ooteghem; D. Walter; M. Perau; C. Kahwaji; A. Mayart; E. Batselé – Journal of Applied Research in Intellectual Disabilities, 2025
Background: This study investigates the healthcare needs and experiences of adults with intellectual disabilities, focusing on identifying areas for improvement. Its innovation lies in including individuals with intellectual disabilities as co-researchers in the research process. Method: Thematic analysis was performed on five focus groups with 30…
Descriptors: Foreign Countries, Adults, Intellectual Disability, Health Needs
Paid Carers' Understanding and Experiences of Meaningful Involvement in Bereavement for People with Intellectual Disability When a Significant Other Is Dying
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Hedayioglu, Julie; Marsden, Sue; Sackree, Amy; Oliver, David – Journal of Applied Research in Intellectual Disabilities, 2022
Background: Wider communication about death and dying for those with intellectual disabilities has been highlighted as being of key importance. Objective: To gain the perspective of paid carers based in residential homes about meaningfully supporting individuals with intellectual disabilities in the bereavement process. Methods: Semi-structured…
Descriptors: Caregivers, Residential Care, Group Homes, Intellectual Disability
Fostering Emotion Expression and Affective Involvement with Communication Partners in People with Congenital Deafblindness and Intellectual Disabilities
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Martens, Marga A. W.; Janssen, Marleen J.; Ruijssenaars, Wied A. J. J. M.; Huisman, Mark; Riksen-Walraven, J. Marianne – Journal of Applied Research in Intellectual Disabilities, 2017
Background: Recent studies have shown that it is possible to foster affective involvement between people with congenital deafblindness and their communication partners. Affective involvement is crucial for well-being, and it is important to know whether it can also be fostered with people who have congenital deafblindness and intellectual…
Descriptors: Disabilities, Deaf Blind, Affective Behavior, Interpersonal Communication
Barriers Faced by Adults with Intellectual Disabilities Who Experience Sexual Assault: A Systematic Review and Meta-Synthesis
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McGilloway, Connie; Smith, David; Galvin, Rose – Journal of Applied Research in Intellectual Disabilities, 2020
Background: Sexual violence is associated with significant morbidity and mortality. The incidence of sexual violence against adults with intellectual disability is significantly higher than in the general population. The aim of this systematic review and qualitative meta-synthesis was to explore the barriers faced by adults with intellectual…
Descriptors: Barriers, Adults, Intellectual Disability, Rape
Attuning: A Communication Process between People with Severe and Profound Intellectual Disability and Their Interaction Partners
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Griffiths, Colin; Smith, Martine – Journal of Applied Research in Intellectual Disabilities, 2016
Background: People with severe and profound intellectual disability typically demonstrate a limited ability to communicate effectively. Most of their communications are non-verbal, often idiosyncratic and ambiguous. This article aims to identify the process that regulates communications of this group of people with others and to describe the…
Descriptors: Severe Intellectual Disability, Interpersonal Relationship, Interpersonal Communication, Communication Problems
Autism Symptoms in Toddlers with Down Syndrome: A Descriptive Study
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Hepburn, Susan; Philofsky, Amy; Fidler, Deborah J.; Rogers, Sally – Journal of Applied Research in Intellectual Disabilities, 2008
Background: Research suggests that children with Down syndrome may be at increased risk of having an autism spectrum disorder; however, previous studies have not utilized comprehensive, state-of-the-art diagnostic tools to address the question of comorbid autism and Down syndrome. Method: Comprehensive evaluations for autism were conducted in 20…
Descriptors: Autism, Down Syndrome, Toddlers, Symptoms (Individual Disorders)