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A Systematic Review of Research on Staff Training as an Intervention to Develop Communication in Children and Adults with Profound Intellectual and Multiple Disabilities
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Jean Ware; Susan Buell; Darren D. Chadwick; Jill Bradshaw; Juliet Goldbart – Journal of Applied Research in Intellectual Disabilities, 2024
Introduction: This paper aims to identify to what extent staff training interventions are successful in enhancing the development of communication skills in people with profound intellectual and multiple disabilities. Methods: A systematic review was undertaken, conforming to PRISMA guidelines. English language, peer reviewed, empirical studies of…
Descriptors: Children, Adults, Intellectual Disability, Severe Disabilities
Parental Experiences of Quality of Life When Caring for Their Children with Intellectual Disability: A Meta-Aggregation Systematic Review
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Macey Barratt; Peter Lewis; Natalie Duckworth; Natasha Jojo; Viktorija Malecka; Signe Tomsone; Dita Rituma; Nathan J. Wilson – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Parents of children with moderate to profound intellectual disabilities play a crucial role in providing direct care but often demonstrate heightened parental stress and reduced quality of life. This review explores perceived quality of life from the experiences of parents when caring for young and adult children. Method: A qualitative…
Descriptors: Parent Attitudes, Quality of Life, Child Rearing, Parent Child Relationship
Postural Care for People with Intellectual Disabilities and Severely Impaired Motor Function: A Scoping Review
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Robertson, Janet; Baines, Susannah; Emerson, Eric; Hatton, Chris – Journal of Applied Research in Intellectual Disabilities, 2018
Background: Poor postural care can have severe and life-threatening complications. This scoping review aims to map and summarize existing evidence regarding postural care for people with intellectual disabilities and severely impaired motor function. Method: Studies were identified via electronic database searches (MEDLINE, CINAHL, PsycINFO and…
Descriptors: Human Posture, Intellectual Disability, Physical Disabilities, Severe Disabilities
Effects of the Attune & Stimulate-Checklist for Caregivers of People with Severe and Profound Intellectual Disabilities: A Randomised Controlled Trial
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Doodeman, Tanja W. M.; Schuengel, Carlo; Sterkenburg, Paula S. – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Sensitive responsiveness is an important aspect in affect-regulation of people with severe to profound intellectual disabilities. Aim: This randomized controlled trial evaluated the Attune & Stimulate-checklist, a tool for detecting subtle and idiosyncratic communicative behaviours and responding adequately. Methods: Effects on the…
Descriptors: Severe Intellectual Disability, Interpersonal Communication, Responses, Caregivers
Behavioural Interventions to Treat Anxiety in Adults with Autism and Moderate to Severe Intellectual Disabilities: The BEAMS-ID Feasibility Study
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Peter E. Langdon; Magdalena M. Apanasionok; Emma Scripps; Alastair Barrowcliff; Asit Biswas; Karen Bunning; Cheryl Burbidge; Katherine Byron-Daniel; Alex Cookson; Sarah Croom; Malwina Filipczuk; David Gillespie; Richard P. Hastings; Andrew Jahoda; Rachel McNamara; Lawrence Patterson; Dheeraj Rai; Robyn Steward; Kylie M. Gray – Journal of Applied Research in Intellectual Disabilities, 2024
Background: The aim of this feasibility study was to adapt and model a behavioural intervention for anxiety with autistic adults with moderate to severe intellectual disabilities. Method: Twenty-eight autistic adults with moderate or severe intellectual disabilities, 37 carers, and 40 therapists took part in this single-group non-randomised…
Descriptors: Autism Spectrum Disorders, Adults, Severe Intellectual Disability, Moderate Intellectual Disability
Behavioural Activation for Depressive Symptoms in Adults with Severe to Profound Intellectual Disabilities: Modelling and Initial Feasibility Study
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Amanda Gillooly; Dave Dagnan; Richard Hastings; Chris Hatton; Nicola McMeekin; Susie Baines; S. -A. Cooper; Lucy Crawford; David Gillespie; Jenny Miller; Andrew Jahoda – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Almost no research has been published reporting on evaluations of the effectiveness of psychological interventions for people with severe to profound intellectual disabilities and depression. This paper describes the development and initial feasibility testing of an adapted Behavioural Activation therapy (BeatIt2) for this population.…
Descriptors: Severe Intellectual Disability, Psychological Needs, Intervention, Depression (Psychology)
Adapting Psychological Interventions for People with Severe and Profound Intellectual Disabilities: A Behavioural Activation Exemplar
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Andrew Jahoda; Dave Dagnan; Richard Hastings; Amanda Gillooly; Jenny Miller; Susie Baines; Chris Hatton – Journal of Applied Research in Intellectual Disabilities, 2024
Background: People with severe to profound intellectual disabilities experience similar or higher levels of depression than those with more mild intellectual disabilities. Yet, there is an absence of evidence about how to adapt existing psychological therapies for this population. Method: A behavioural activation intervention (BeatIt) for people…
Descriptors: Intellectual Disability, Severe Intellectual Disability, Depression (Psychology), Intervention
Use of Behaviour Change Techniques by Direct Support Professionals to Support Healthy Lifestyle Behaviour for People with Moderate to Profound Intellectual Disabilities
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Overwijk, Annelies; van der Putten, Annette A. J.; van der Schans, Cees P.; Willems, Mariël; Hilgenkamp, Thessa I. M.; Waninge, Aly – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Behaviour change techniques (BCTs) can be employed to support a healthy lifestyle for people with intellectual disabilities. The aim of this study is to determine whether and which BCTs are used by direct support professionals (DSPs) for supporting healthy lifestyle behaviour of people with moderate to profound intellectual…
Descriptors: Behavior Modification, Behavior Change, Health Promotion, Moderate Intellectual Disability
Intervention Effects on Professionals' Attitudes towards the Participation of Adults with Visual and Severe or Profound Intellectual Disabilities
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Hanzen, Gineke; Waninge, Aly; van Nispen, Ruth M. A.; Vlaskamp, Carla; Post, Wendy J.; van der Putten, Annette A. J. – Journal of Applied Research in Intellectual Disabilities, 2021
Background: We investigated the effects of the "Care for Participation+" (CFP+) intervention on direct support professionals' (DSPs') attitudes regarding the participation of adults with visual and severe or profound intellectual disabilities (VSPID). Methods: We implemented a pilot non-randomized controlled trial with two control groups…
Descriptors: Intervention, Allied Health Personnel, Caregiver Attitudes, Attitudes toward Disabilities
Challenging Behaviours: Views and Preferences of People with Intellectual Disabilities
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Wolkorte, Ria; van Houwelingen, Ingrid; Kroezen, Marieke – Journal of Applied Research in Intellectual Disabilities, 2019
Background: Challenging behaviour is a common problem among people with ID and in services for people with ID. This paper aims to provide an overview of the views and preferences of people with ID on challenging behaviour. Method: Semi-structured interviews were conducted with thirteen adults with mild to moderate ID and seven proxies (family or…
Descriptors: Behavior Problems, Preferences, Attitudes, Mild Intellectual Disability
Identification and Analysis of Factors Contributing to the Reduction in Seclusion and Restraint for a Population with Intellectual Disability
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Larue, Caroline; Goulet, Marie-Hélène; Prevost, Marie-Josée; Dumais, Alexandre; Bellavance, Jacques – Journal of Applied Research in Intellectual Disabilities, 2018
Background: A cohort of 11 patients with an intellectual disability and a psychiatric diagnosis present severe behavioural disorders in psychiatric hospital of Quebec in 2009. Control-measure use for this clientele has now been reduced. How do management personnel, families and care teams explain the changes? What clinical interventions did…
Descriptors: Severe Intellectual Disability, Patients, Clinical Diagnosis, Behavior Problems
Teaching Early Reading Skills to Children with Severe Intellectual Disabilities Using Headsprout Early Reading
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Herring, Emma; Grindle, Corinna; Kovshoff, Hanna – Journal of Applied Research in Intellectual Disabilities, 2019
Background: Beginning reading skills are often taught using phonics. Research has demonstrated the effectiveness of phonics with typically developing students, but less research has evaluated this method with students with intellectual disabilities. Method: This paper evaluated the computerized phonics-based intervention Headsprout Early Reading®…
Descriptors: Early Reading, Reading Programs, Reading Instruction, Beginning Reading
Intensive Interaction as a Novel Approach in Social Care: Care Staff's Views on the Practice Change Process
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Firth, Graham; Elford, Helen; Leeming, Catherine; Crabbe, Marion – Journal of Applied Research in Intellectual Disabilities, 2008
Background: Intensive Interaction is an approach to developing the pre-verbal communication and sociability of people with severe or profound and multiple learning disabilities and autism. Previous research has indicated many potential benefits; however, the approach is not consistently used in social care. Aim: To report on the significant and…
Descriptors: Interviews, Intervention, Grounded Theory, Verbal Communication
The Prevalence, Incidence, and Factors Predictive of Mental Ill-Health in Adults with Profound Intellectual Disabilities
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Cooper, Sally-Ann; Smiley, Elita; Finlayson, Janet; Jackson, Alison; Allan, Linda; Williamson, Andrew; Mantry, Dipali; Morrison, Jillian – Journal of Applied Research in Intellectual Disabilities, 2007
Background: There are no previous studies of the prevalence and incidence of mental ill-health in adults with profound intellectual disabilities. Method: In this population-based prospective cohort study, adults with profound intellectual disabilities underwent psychiatric assessment (n = 184), with further assessment after 2 years (n = 131).…
Descriptors: Incidence, Mental Retardation, Mental Disorders, Learning Disabilities