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Direct linkFriedman, Carli – Intellectual and Developmental Disabilities, 2018
Direct Support Professionals (DSPs) are the "backbone" of long term services and supports (LTSS) in the United States (Bogenschutz, Hewitt, Nord, & Hepperlen, 2014, p. 317). This study examined the relationship between DSPs and people with intellectual and developmental disabilities' (IDD) quality of life. To do so, we utilized…
Descriptors: Intellectual Disability, Developmental Disabilities, Quality of Life, Paraprofessional Personnel
Clark, Lauren; Pett, Marjorie A.; Cardell, Elizabeth M.; Guo, Jia-Wen; Johnson, Erin – Intellectual and Developmental Disabilities, 2017
Using principles of community-based participatory research we developed a new theory-based measure of health-related quality of life (HRQOL) for individuals with intellectual disability (ID). We recruited adults with ID (n = 129) to take part in interviews and review successive versions of HRQOL items. Critical input about content and…
Descriptors: Intellectual Disability, Quality of Life, Adults, Interviews
Chou, Yueh-Ching; Lee, Yue-Chune; Lin, Li-Chan; Kroger, Teppo; Chang, Ai-Ning – Intellectual and Developmental Disabilities, 2009
A structured interview survey was conducted in a major city in Taiwan to explore and compare older and younger family primary caregivers' well being and their future caregiving plans for these adults with intellectual disability. The sample size was 315 caregivers who were 55 years or older and who cared for adults with intellectual disability and…
Descriptors: Caregivers, Adults, Mental Retardation, Interviews
