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Giltaij, H. P.; Sterkenburg, P. S.; Schuengel, C. – Journal of Intellectual Disability Research, 2015
Background: Children with intellectual disability (ID) are at risk for maladaptive development of social relatedness. Controversy exists whether Pervasive Developmental Disorder (PDD) takes precedence over disordered attachment for describing maladaptive social behaviour. The aim of this study was to assess the prevalence of disordered attachment…
Descriptors: At Risk Persons, Children, Interpersonal Competence, Pervasive Developmental Disorders
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Clark, M.; Brown, R.; Karrapaya, R. – Journal of Intellectual Disability Research, 2012
Background: While there is a growing body of literature in the quality of life of families that include children with disabilities, the majority of research has been conducted in western countries. The present study provides an initial exploration of the quality of life of Malaysian families that include children with developmental/intellectual…
Descriptors: Family Characteristics, Mental Retardation, Quality of Life, Life Satisfaction
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Yoong, A.; Koritsas, S. – Journal of Intellectual Disability Research, 2012
Background: Because of an increase in life expectancy and de-institutionalisation, many adults with intellectual disability (ID) live with and are cared for by their parents throughout their adult lives. Because of caring demands, the quality of life (QOL) of parents may be affected. The study explored the impact of caring for an adult with ID on…
Descriptors: Mental Retardation, Quality of Life, Questionnaires, Employment Opportunities
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Sloneem, J.; Oliver, C.; Udwin, O.; Woodcock, K. A. – Journal of Intellectual Disability Research, 2011
Background: The prevalence, phenomenology aetiology and correlates of four forms of challenging behaviour in 32 children and adults with Smith-Magenis syndrome (SMS) were investigated. Methods: Cognitive assessments, questionnaires and semi-structured interviews were used to gather data on intellectual disability, verbal and physical aggression,…
Descriptors: Aggression, Incidence, Mental Retardation, Injuries
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Nierse, C. J.; Abma, T. A. – Journal of Intellectual Disability Research, 2011
Background: Although people with intellectual disabilities (ID) are increasingly consulted in research, participation in research agenda setting processes is limited. This is not surprising as their voice can easily be dominated in consultations with researchers. The aim of this article is to explore the potentials of enclave deliberation as a…
Descriptors: Mental Retardation, Focus Groups, Agenda Setting, Stakeholders
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Bertelli, M.; Bianco, A.; Rossi, M.; Scuticchio, D.; Brown, I. – Journal of Intellectual Disability Research, 2011
Background: There is substantial literature investigating quality of life (QoL) of individuals with intellectual disability (ID). QoL of families of people with ID is emerging as an important field of research. Despite this, there is a lack of studies regarding their relationship. Aim: The present paper aimed to study the relationship between QoL…
Descriptors: Mental Retardation, Family Programs, Quality of Life, Questionnaires
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Dusseljee, J. C. E.; Rijken, P. M.; Cardol, M.; Curfs, L. M. G.; Groenewegen, P. P. – Journal of Intellectual Disability Research, 2011
Background: Community participation has been defined as performing daytime activities by people while interacting with others. Previous studies on community participation among people with intellectual disability (ID) have mainly focused on the domestic life aspect. This study investigates the variation in community participation in the domains…
Descriptors: Community Programs, Foreign Countries, Social Isolation, Participation
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van Balkom, I. D. C.; Shaw, A.; Vuijk, P. J.; Franssens, M.; Hoek, H. W.; Hennekam, R. C. M. – Journal of Intellectual Disability Research, 2011
Background: Marshall-Smith syndrome (MSS) is an infrequently described entity characterised by failure to thrive, developmental delay, abnormal bone maturation and a characteristic face. In studying the physical features of a group of patients, we noticed unusual behavioural traits. This urged us to study cognition, behavioural phenotype and…
Descriptors: Mental Retardation, Autism, Developmental Delays, Communication Skills
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Mitchell, D. B.; Hauser-Cram, P. – Journal of Intellectual Disability Research, 2010
Background: The importance of positive parent-adolescent relationships is stressed in research on adolescents, although very little is known about this relationship when a teen has developmental disabilities (DD). We investigated the relationships of adolescents with disabilities with their mothers and their fathers in order to answer a number of…
Descriptors: Early Intervention, Socioeconomic Status, Mothers, Developmental Disabilities
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Wulffaert, J.; van Berckelaer-Onnes, I.; Kroonenberg, P.; Scholte, E.; Bhuiyan, Z.; Hennekam, R. – Journal of Intellectual Disability Research, 2009
Background: Studies into the phenotype of rare genetic syndromes largely rely on bivariate analysis. The aim of this study was to describe the phenotype of Cornelia de Lange syndrome (CdLS) in depth by examining a large number of variables with varying measurement levels. Virtually the only suitable multivariate technique for this is categorical…
Descriptors: Age Differences, Severity (of Disability), Mental Retardation, Child Rearing
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Willems, D. L.; de Vries, J.-N.; Isarin, J.; Reinders, J. S. – Journal of Intellectual Disability Research, 2007
Background: As a sequel to a report by the Health Council of the Netherlands on contraception in persons with intellectual disabilities (IDs), a fierce debate about parenthood by such persons occurred, in which a lack of knowledge about parenting competences became clear. Therefore, the Ministry of Health commissioned a study investigating…
Descriptors: Foreign Countries, Child Rearing, Caregivers, Social Networks
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Mirza, I.; Tareen, A.; Davidson, L. L.; Rahman, A. – Journal of Intellectual Disability Research, 2009
Background: Pakistan has one of the highest reported rates of childhood intellectual disabilities (ID) in the world. Prevalence estimates vary from 19.1/1000 for serious ID to 65/1000 for mild ID. Methods: We surveyed carers of persons with ID (n = 100) using quantitative and qualitative instruments. We conducted in-depth interviews of carers (n =…
Descriptors: Mental Retardation, Focus Groups, Caregivers, Home Management
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Beck, A.; Daley, D.; Hastings, R. P.; Stevenson, J. – Journal of Intellectual Disability Research, 2004
To identify factors associated with maternal expressed emotion (EE) towards their child with intellectual disability (ID). A total of 33 mothers who had a child with ID and at least one child without disabilities between the ages of 4 and 14 years participated in the study. Mothers completed self-assessment questionnaires which addressed their…
Descriptors: Emotional Problems, Mothers, Mental Retardation, Child Rearing