Expanded newborn screening programs and subsequent detection of rare genetic disorders challenge parents and their medical providers to learn about the treatment and management of these disorders. Many people seek medical information on the Internet but may encounter requests for registration or fees, or find that resources are out of date,…

Examines the effects of safety nets (government information transfer mechanisms that guarantee minimum access to government information) on the ability of U.S. industries to compete internationally. The need for research that explores methods of improving information dissemination and the role of libraries and information centers in fostering…