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Galende-Domínguez, Inés; Rivero-Lezcano, Octavio M. – Research Ethics, 2023
Progress in precision medicine is being achieved through the design of clinical trials that use genetic biomarkers to guide stratification of patients and assignation to treatment or control groups. Genetic analysis of biomarkers is, therefore, essential to complete their objectives, and this involves the study of biological samples from donor…
Descriptors: Genetics, Medical Research, Patients, Ethics
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Ranieri, V.; Stynes, H.; Kennedy, E. – Research Ethics, 2021
The Confidentiality Advisory Group (CAG) is a specialised body that advises the Health Research Authority (HRA) and the Secretary of State for Health on requests for access to confidential information, in the absence of informed consent from its owners. Its primary role is to oversee the safe use of such information and to counsel the governing…
Descriptors: Foreign Countries, Advisory Committees, Confidentiality, Access to Information