This manual provides information to assist individuals in working together more effectively to provide comprehensive services and improve outcomes for children with special health care needs. The manual emphasizes the need for a union of services that places the child and family at the center and exists to provide educational, medical/health, and…

Participants from five states (Colorado, Minnesota, Virginia, Washington, and Wisconsin) met to establish a national network to promote state and community-based models of comprehensive coordinated planning and service delivery to adults who survived pediatric disorders in their childhood. Results of state caucuses, which discussed and listed…

This paper reviews literature on the support needed by families of infants in neonatal intensive care units (NICUs). A survey of 94 California NICUs indicated that they generally provide comprehensive services to families while infants are in the hospital, less service during the transition home, and very little support and follow-up after the…

This document contains information about the medical transition of youth with disabilities from child-centered to adult health care. The generic characteristics and needs of young people with long-term illnesses and disabilities are especially emphasized. Guidance is provided for appropriate health care of the adolescent during the transition…

This report presents the findings of a study which examined the service delivery system for adolescents with chronic illness, through a survey of 248 directors of public agencies and programs of the 50 states and the District of Columbia, with a 73 percent response rate. The seven programs surveyed within each state were Maternal and Child Health…

This policy paper explains the educational rights available to certain students with disabilities and chronic conditions under Section 504 of the Rehabilitation Act of 1973. It describes the federal law and regulations, eligibility criteria, complaint procedures available to enforce the law, and ways that state Title V agencies can collaborate…

This paper outlines the principles of the rehabilitation process; describes the role of rehabilitation medicine with reference to services in the Saint George district of southern Sydney (Australia); and discusses the problem of the transition of patients to adult services. (Author/JDD)

Designed for Massachusetts health care providers, this booklet provides information on transition planning for adolescents with special health care needs and disabilities. It includes resources and strategies to guide interventions with families and to focus their attention on four key facets of adulthood: health care, education, employment, and…

We examined the service needs of foster families with children who have disabilities. Foster parents in a large Canadian city were asked "What services or supports would be helpful to you?" The responses to this question were edited for clarity and to eliminate redundancies, and sorted into piles of like statements by a group of 15…

This article describes the use of ecological assessments for medically fragile students to ensure transitions across service settings. A multi-step process involving the collaboration of multidisciplinary medical and educational teams to develop a Health Care Plan is described. The school health nurse is targeted as the liaison who facilitates…

The annotated bibliography is intended to give health care providers and planners background information and other resources on health transition issues for young adults with chronic health conditions. The 23 bibliographic citations date from 1972 to 1989 and are grouped into the following categories: U.S. demographics and health services…

The paper describes the Iowa Plan, a network approach to providing home care services for children with handicaps and chronic diseases who require medical technology services. The Iowa Regional Child Health Center Network is reviewed. The centers are based on shared responsibility between major state agencies and the community and serve as focal…

The workbook presents a model of care for children with severe medical involvement that features the professional care manager. Three phases in planning for home/community discharge are identified: identification of the candidate for in-home care; identification of specific objectives, service providers, funding sources, etc.; and full…

This paper proposes and describes use of a Transition Liaison individual, together with a discharge plan, to facilitate the successful discharge and transition of hospitalized children to the family and community-based services. Increased and more accurate communication between the family and professionals is seen as one of the primary benefits of…

This guide evaluates more than 130 training curricula that were published or completed in or after 1987 and are targeted to training direct service staff or trainers of direct service staff working with people with developmental disabilities. The reviews are organized alphabetically by publisher. Topics and issues that were used to categorize the…