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Kjersti Karlsen; Ellen Kathrine Munkhaugen; Hanne Kari Fossum; Trine Lise Bakken; Arvid Nikolai Kildahl – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Individuals with intellectual disabilities are at increased risk of mental health disorders, but may struggle to access appropriate services. While assessment/treatment may need to be adapted, knowledge is limited about what such adaptations may entail. Method: During a service development project, the participants (33 professionals,…
Descriptors: Intellectual Disability, Mental Health, Comorbidity, Adults
Ashley Scott; Ryan Gould; Liam Quidore; Keryden Koeut-Futch; Emily Bock; Prisha Sujin Kumar; Staci Christensen; Augusta Edouard; Benjamin Golden; Eden Rapp; Kaethe Sigelko; Alexis Sokoloff; Caley Versfelt; Eric Rubenstein – Journal of Applied Research in Intellectual Disabilities, 2025
Background: At least half of children and adults with Down syndrome have a major mental health concern during their life but few studies ask people with Down syndrome directly about their experience. We used a co-research model to explore anxiety, stress, and coping in adults with Down syndrome. Methods: Our group of researchers and adults with…
Descriptors: Down Syndrome, Adults, Stress Variables, Anxiety
Lianne Bakkum; Célinde Paalman; Annelieke Müller; Agnies van Eeghen; Carlo Schuengel – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Experience sampling may be useful for mental health research with people with intellectual disability, and evidence of the potential benefits is starting to emerge. This multiple-method study identified potential avenues for tailoring this method to the needs of people with intellectual disability. Method: A scoping review was…
Descriptors: Mental Health, Research Methodology, Intellectual Disability, Adults
Andrea Almas; Rosemary Lysaght; Susan Farrell; Lorrie Heffernan – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Engagement of individuals with an intellectual disability and their caregivers in health care has been highlighted as an essential factor in developing services that better meet client needs; however, few studies have focused on the engagement of individuals with a dual diagnosis (intellectual disability co-occurring with a mental…
Descriptors: Intellectual Disability, Caregivers, Health Services, Comorbidity
Cameron, Lauren A.; Borland, Ross L.; Tonge, Bruce J.; Gray, Kylie M. – Journal of Applied Research in Intellectual Disabilities, 2022
Background: This systematic review aimed to explore how adults with autism participate in the community, the impact of community participation on quality of life and mental health, and factors that support and hinder participation. Method: A systematic review was conducted including studies published from inception to 17 January 2021. Results:…
Descriptors: Adults, Autism, Quality of Life, Mental Health
Sellitto, Teresa; Fraser-Thomas, Jessica; Bassett-Gunter, Rebecca L.; Lee, Vivian; Lunsky, Yona; Balogh, Robert; Weiss, Jonathan A. – Journal of Applied Research in Intellectual Disabilities, 2024
Background: The COVID-19 pandemic has had a negative impact on the mental health of people with intellectual and developmental disabilities. Numerous pandemic-related stressors experienced by people with intellectual and developmental disabilities may have impacted their ability to thrive, which has been linked to mental health outcomes. The…
Descriptors: Mental Health, Intellectual Disability, Developmental Disabilities, COVID-19
Santoro, Stephanie L.; Cabrera, Maria J.; Haugen, Kelsey; Krell, Kavita; Merker, Vanessa L. – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Down syndrome has a unique medical and psychological profile. To date, few studies have asked individuals with Down syndrome about their views of health. Methods: Eight focus groups of 20 parents and 8 individuals with Down syndrome, were conducted virtually via videoconferencing to obtain participants' views of health indicators.…
Descriptors: Down Syndrome, Parents, Attitudes, Physical Health
Chemerynska, Nataliya; Marczak, Magda; Kucharska, Jo – Journal of Applied Research in Intellectual Disabilities, 2022
Background: People with intellectual disabilities are a particularly vulnerable group, at an increased risk of mortality from COVID-19 and of poor mental health. Psychologists providing mental health support to people with intellectual disabilities report poorer mental wellbeing and higher occupational stress. Moreover, they raise concerns about…
Descriptors: Clinical Psychology, Psychologists, Intellectual Disability, COVID-19
Caroline Kassee; Patrick Jachyra; Vijitha Mahalingam; Ami Tint; Hsiang-Yuan Lin; Stephanie H. Ameis; Adriana Di Martino; Yona Lunsky; Meng-Chuan Lai – Journal of Applied Research in Intellectual Disabilities, 2024
Purpose: Understanding the experiences of people with developmental disabilities during the initial period of COVID-19 pandemic. Methods: Individuals with developmental disabilities and their caregivers completed baseline and up to five follow-up online surveys using the CRISIS-AFAR measures, between July 2020 and September 2021. We used…
Descriptors: Foreign Countries, COVID-19, Pandemics, Developmental Disabilities
Stephanie Corrigan; Mary McCarron; Philip McCallion; Éilish Burke – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Negative mental health implications of menopause found in the general population, combined with high rates of mental health conditions found in women with intellectual disabilities, provide rationale to examine the existing literature to determine the impact of menopause on women with intellectual disabilities. Methods: The review was…
Descriptors: Adults, Females, Intellectual Disability, Aging (Individuals)
Madelaine Carter; Nicole Bobbette; Sabrina Campanella; Yona Lunsky – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Workers in the intellectual disability sector encounter significant work-related stress impacting their mental health. This study explores the barriers faced by these workers when accessing mental health support during the pandemic. Methods: 1831 surveys were completed by intellectual disability support workers from Ontario, Canada…
Descriptors: Employees, Intellectual Disability, Barriers, Mental Health
M. J. Delforterie; A. Turhan; M. Driessen; L. Neijmeijer; B. Hesper; R. Didden – Journal of Applied Research in Intellectual Disabilities, 2024
Introduction: This study investigated the reliability and validity of the dynamic risk outcome scales--short version (DROS-SV). This instrument is developed to monitor treatment progress using dynamic risk factors in clients with mild intellectual disabilities or borderline intellectual functioning and behavioural and/or mental health problems.…
Descriptors: Measures (Individuals), Reliability, Validity, Risk
Laura C. Koch; Yona Lunsky; Laura St. John – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Canadian 24-h movement guidelines recommend that adults achieve 150 min per week of moderate-to-vigorous physical activity (MVPA), 7-9 h of sleep per night and spend no more than 8-h per day sedentary to optimise health and wellbeing. Method: Using a cross-sectional survey of 131 family caregivers of adults with intellectual and…
Descriptors: Foreign Countries, Physical Activity Level, Sleep, Adults
MacHale, Rosemary; Ffrench, Cathal; McGuire, Brian – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Technology is ubiquitous in all aspects of daily life and research interest in the topic of digital mental health interventions (DMHI) for people with intellectual disabilities is growing. In addition, the COVID-19 pandemic has accelerated technology use in delivering mental health supports. Method: This review used a qualitative…
Descriptors: Experience, Attitudes, Adults, Intellectual Disability
Taylor, Joshua; Avellone, Lauren; Brooke, Valerie; Wehman, Paul; Inge, Katherine; Schall, Carol; Iwanaga, Kanako – Journal of Applied Research in Intellectual Disabilities, 2022
Background: Although competitive integrated employment (CIE) has been established as a goal of employment research, policy, and practice for individuals with intellectual and developmental disabilities, the secondary benefits of CIE are rarely discussed. Aims: The purpose of this systematic review was to analyze and synthesise research related to…
Descriptors: Intellectual Disability, Developmental Disabilities, Employment Level, Mental Health