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Direct linkMcCarron, Mary; McCallion, Philip; Fahey-McCarthy, Elizabeth; Connaire, Kevin – Journal of Applied Research in Intellectual Disabilities, 2011
Aim: To better describe the role and timing of palliative care in supporting persons with intellectual disabilities and advanced dementia (AD). Background: Specialist palliative care providers have focused mostly on people with cancers. Working with persons with intellectual disabilities and AD offers opportunities to expand such palliative care…
Descriptors: Mental Retardation, Dementia, Focus Groups, Interviews
Fahey-McCarthy, Elizabeth; McCarron, Mary; Connaire, Kevin; McCallion, Philip – Journal of Policy and Practice in Intellectual Disabilities, 2009
Generally, staff working in settings that provide care for adults with intellectual disabilities (ID) have not received specific education with respect to extended care for terminal illnesses or late-stage dementia. Equally, staff working in specialist palliative care often are not familiar with the unique issues of supporting persons with…
Descriptors: Intervention, Mental Retardation, Dementia, Focus Groups
