Adults with and without complex support needs (CSN; e.g. with intellectual disability, autism spectrum disorder, multiple disabilities) experience benefit in many areas of their lives from developing or improving literacy skills. However, adults with CSN often face unique barriers to acquiring these critical skills, and few researchers have…

Background: Within the context of the Special Interest Research Group (SIRG) on Persons with Profound Intellectual and Multiple Disabilities (PIMD), researchers often discuss the methodological problems and challenges they are confronted with. The aim of the current article was to give an overview of these challenges. Methods: The challenges are…

Background: Persons with profound and multiple learning disabilities (PMLD) risk exclusion, both in research and as members of society. Because of their embodied communication, they face the challenges in being understood. Oftentimes, others speak on their behalf making inferences on what their perspective might be. Methods: Empathy is suggested…

Students with multiple disabilities (MD) and concomitant impairments in domains such as vision and communication may experience restrictions in social interactions throughout their school days. These restrictions may be due in part to the intrinsic characteristics and skills of the students with MD, as well as potential barriers from communication…

The transition from early intervention to preschool is a major early milestone for children with multiple disabilities and their families and the first of many transitions they will experience across the lifespan. However due to the low-incidence nature of multiple disabilities, this group has been largely left out of the literature surrounding…

The aim of this study, which was carried out according to the life story/narrative research design, which is one of the qualitative research methods, is to examine the life story of a mother living with a child with an additional disability. In this context, a 5-year-old child with deficiencies such as hearing loss, autism and ADHD and his mother…

The COVID-19 global pandemic provided an opportunity to reassess pedagogies, practices, and policies in higher education. In this dissertation, I explored the experiences of undergraduate and graduate students with dis/abilities (SWDs) in higher education before and during the COVID-19 global pandemic. The first manuscript is a descriptive study…

In pediatric health care there is increasing attention for a child-centered approach, also referred to as personalized care (Coyne, Hallstrom, & Soderback, 2016). In this care it is essential to assess personal relevant functioning, hence, to explore which activities are important for a child and to assess the quality of performance of these…

Background: Families struggle to support family members with profound intellectual and multiple disabilities (PIMD), especially in low resourced settings where formal services may not be available. Method: The adapted Family Community Participation survey, measuring perceptions of community participation, was administered to 67 primary caregivers…

Background: Parents of children with profound intellectual and multiple disabilities (PIMD) have extensive care duties. This study describes the phenomenon "parenting a child with PIMD." Method: We conducted in-depth interviews with 25 Dutch parents. A reflective lifeworld research was used. Findings: The essential meaning of the…

Since March 2020, when the worldwide COVID-19 pandemic hit, education in the United States has undergone significant change. As both a deaf professional in deaf education and as the parent of an OHKODA (only hearing kid of deaf adults) teenage son, a deafdisabled tween son, and deaf elementaryage fraternal twin sons, I have been in the unique…

Supporting children and young people's mental health and well-being is central to UK Government policy, with statistics suggesting post-16 students and those with learning difficulties are vulnerable. This case study explored how practitioners at a special school for students with severe and profound and multiple learning difficulties promote…

The purpose of this systematic review was to investigate the learning, social, and psychological outcomes of students with moderate, severe, and complex disabilities (MSCD) in inclusive settings. The review discusses barriers to conducting rigorous research in this field. Whilst an initial literature search located 1,338 records, only 18 were…

Background: Young adults with intellectual/developmental disabilities and co-occurring mental health conditions (IDD-MH) experience significant mental health disparities. Barriers to services include transportation and stigma associated with services. Peer mentoring (PM) may be one solution to these barriers. Methods: We conducted exploratory…

Background: For almost two decades, students with intellectual, developmental and multiple disabilities have attended undergraduate classes at the University of Manitoba, in Winnipeg, Canada as part-time auditing students. They are supported by the Campus Life program. Campus Life employs graduate and undergraduate university students as academic…