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Hoogsteyns, Maartje; Zaal-Schuller, Ilse; Huisman, Sylvia; Nieuwenhuijse, Appolonia Marga; Etten-Jamaludi, Faridi; Willems, Dick; Kruithof, Kasper – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Caring for persons with profound intellectual and multiple disabilities (PIMD) demands specific expertise. Tacit knowledge seems to play an important role, but little is known about its nature, including what is necessary for its development and transfer. Aim: To gain understanding of the nature and development of tacit knowledge…
Descriptors: Severe Intellectual Disability, Multiple Disabilities, Severe Disabilities, Knowledge Level
Skarsaune, Synne Nese; Hanisch, Halvor Melbye – Research and Practice for Persons with Severe Disabilities, 2023
Persons with profound intellectual and multiple disabilities (PMID) are in danger of not being granted the human right to experience self-determination. Attitudes questioning the relevance of the rights of persons with significant support needs and a lack of guidance on how to practically go about ensuring self-determination might explain this.…
Descriptors: Self Determination, Severe Intellectual Disability, Multiple Disabilities, Civil Rights
Venus W. S. Tse; Jiedi Lei; Jason Crabtree; William Mandy; Joshua Stott – Review Journal of Autism and Developmental Disorders, 2022
Autism is a neurodevelopmental condition that affects individuals across their lifetime, though the effects of ageing in older adulthood are poorly understood to date. This systematic review assessed six characteristics in older autistic adults (cognitive functioning, co-occurring difficulties, autism symptom severity, social integration, adaptive…
Descriptors: Older Adults, Autism Spectrum Disorders, Interpersonal Relationship, Language Processing
Željka Nikolaševic; Karolina Cuckovic; Ksenija Gebauer-Bukurov; Vojislava Bugarski Ignjatovic – Journal of Intellectual & Developmental Disability, 2024
Background: Multiple disabilities represent separate entities that cannot be reduced to the sum of disabilities or the main disability. This study compared the health-related quality of life (HRQoL) of children and adolescents with multiple disabilities and those with one developmental disability. We further assessed how comorbidities and…
Descriptors: Multiple Disabilities, Quality of Life, Children, Adolescents
Nieuwenhuijse, A. M.; Willems, D. L.; van Goudoever, J. B.; Olsman, E. – International Journal of Developmental Disabilities, 2022
Persons with Profound Intellectual and Multiple Disabilities (PIMD) are supported by professional caregivers for a large part of their lives. However, the perspectives of professional caregivers on good or poor Quality of Live (QoL) of persons with PIMD have hardly been explored. To explore the perspective of professional caregivers on QoL of…
Descriptors: Severe Intellectual Disability, Multiple Disabilities, Caregiver Attitudes, Caregivers
Geuze, Liesbeth; Goossensen, Anne; Schrevel, Samuel – Journal of Intellectual & Developmental Disability, 2023
Background: Parents of children with profound intellectual and multiple disabilities (PIMD) have extensive care duties. This study describes the phenomenon "parenting a child with PIMD." Method: We conducted in-depth interviews with 25 Dutch parents. A reflective lifeworld research was used. Findings: The essential meaning of the…
Descriptors: Foreign Countries, Children, Parent Attitudes, Child Rearing
Johnels, Linn; Vehmas, Simo; Wilder, Jenny – International Journal of Developmental Disabilities, 2023
This scoping review addresses peer-reviewed research on musical interaction with children and young people with severe/profound intellectual and multiple disabilities (S/PIMD). Twenty-five articles published between the years 2000 and 2020 met the inclusion criteria. A narrative synthesis was used to summarise and evaluate different features,…
Descriptors: Music, Interaction, Children, Youth
Thompson, Samantha; Atkinson, Cathy – British Journal of Special Education, 2022
Supporting children and young people's mental health and well-being is central to UK Government policy, with statistics suggesting post-16 students and those with learning difficulties are vulnerable. This case study explored how practitioners at a special school for students with severe and profound and multiple learning difficulties promote…
Descriptors: Foreign Countries, Mental Health, Well Being, Special Schools
Dell'Anna, Silvia; Pellegrini, Marta; Ianes, Dario; Vivanet, Giuliano – International Journal of Disability, Development and Education, 2022
The purpose of this systematic review was to investigate the learning, social, and psychological outcomes of students with moderate, severe, and complex disabilities (MSCD) in inclusive settings. The review discusses barriers to conducting rigorous research in this field. Whilst an initial literature search located 1,338 records, only 18 were…
Descriptors: Students with Disabilities, Severity (of Disability), Multiple Disabilities, Inclusion
Freeze, Trevi B.; Lutfiyya, Zana Marie; Freeze, Rick; Magana, Janjo; Cauthers, Nick; Mukai, Michael; Antonio, Jacintha; Batta, Anusha – British Journal of Learning Disabilities, 2023
Background: For almost two decades, students with intellectual, developmental and multiple disabilities have attended undergraduate classes at the University of Manitoba, in Winnipeg, Canada as part-time auditing students. They are supported by the Campus Life program. Campus Life employs graduate and undergraduate university students as academic…
Descriptors: Undergraduate Students, College Students, Students with Disabilities, Foreign Countries
Nieuwenhuijse, Appolonia M.; Willems, Dick L.; Olsman, Erik – Journal of Intellectual & Developmental Disability, 2020
Background: Quality of Life (QoL) may be a factor in physicians' decisions on treatment of persons with Profound Intellectual and Multiple Disabilities (PIMD). We explored the perception of physicians on the QoL of persons with PIMD. Method: We conducted semi-structured interviews with seven experienced physicians treating persons with PIMD,…
Descriptors: Physicians, Attitudes, Quality of Life, Severe Intellectual Disability
Toews, Samantha Gross; Hanreddy, Amy; Mahoney, Elia – Teachers College Record, 2023
Background and Purpose: The unprecedented shift to distance learning during the COVID-19 pandemic intensified educational inequities for students with disabilities, a historically marginalized population in terms of access to quality instruction. Caregivers assumed an integral role in access to education during distance learning, making it…
Descriptors: Special Needs Students, Student Needs, Child Caregivers, Distance Education
Mietola, Reetta; Miettinen, Sonja; Vehmas, Simo – International Journal of Social Research Methodology, 2017
This paper discusses possibilities of designing ethical research practice in relation to people with profound intellectual and multiple disabilities (PIMD). We will argue that in the case of this group of people, research ethics is about ethically justifiable research aims, design, methods, and practices that are based on the recognition of their…
Descriptors: Ethics, Research Methodology, Severe Intellectual Disability, Multiple Disabilities
Neerinckx, Heleen; Maes, Bea – Journal of Applied Research in Intellectual Disabilities, 2016
Background: In spite of the profound cognitive and physical problems, people with profound intellectual and multiple disabilities (PIMD) are able to develop joint attention behaviours (JAB) and benefit from positive interactions. Aims: To investigate which context factors influence the JAB of people with PIMD. Method: Based on video recordings of…
Descriptors: Familiarity, Context Effect, Multiple Disabilities, Severe Intellectual Disability
Kamstra, Aafke; van der Putten, Annette A. J.; Vlaskamp, Carla – Journal of Intellectual Disabilities, 2017
Most people with profound intellectual and multiple disabilities (PIMD) have limited social contact and it is unclear what is done to maintain or increase these contacts. Individual support planning (ISP) can be used in the systematic enhancement of social contacts. This study analyses the content of ISPs with respect to the social contacts of…
Descriptors: Severe Intellectual Disability, Multiple Disabilities, Interpersonal Relationship, Individualized Programs