Background: Persons with profound intellectual and multiple disabilities (PIMD) are vulnerable when it comes to experiencing pain. Reliable assessment of pain-related behaviour in these persons is difficult. "Aim" To determine how pain items can be reliably scored in adults with PIMD. Methods: We developed an instruction protocol for the…

Background: Most research into interactions with people who are congenitally deafblind involves observational data. In order for practitioners and researchers to have confidence in the findings of observational studies, researchers need to demonstrate that the processes employed are replicable and trustworthy. This paper draws on data from an…

Caregivers of persons with profound intellectual and multiple disabilities (PIMD) often describe the quality of the daily movements of these persons in terms of flexibility or stiffness. Objective outcome measures for flexibility and stiffness are muscle tone or level of spasticity. Two instruments used to grade muscle tone and spasticity are the…

Background: Speech and language therapists (SLTs) working with adults who have multiple learning disabilities and complex communication needs often deliver their care via indirect therapy where SLTs train carers to communicate with their clients. Yet, very little is known about how SLTs assess the carers' communication skills prior to the training…

An observational research study based on sensory integration theory was conducted to examine the observed impact of student selected multi-sensory experiences within a multi-sensory intervention center relative to the sustained focus levels of students with special needs. A stratified random sample of 50 students with severe developmental…

Recently, several instruments have been developed to measure the subjective component of the quality of life (QOL) of people with profound intellectual and multiple disabilities (PIMD). A next step, however, must be the further validation of these instruments. The present study aimed at evaluating the psychometric properties of one of these…

Two studies assessed the reliability and utility of the Stimulus Preference Coding System (SPCS) to measure approach, avoidance, and happy and unhappy behaviors in persons with developmental disorders. Study 1 took place in an institutional setting. The nine participants were all adults with mental retardation and multiple associated disabilities.…

This study assessed the psychometric properties of two subscales of the Adelaide Behaviour Disorder Scale that have been hypothesized to describe conduct problems and emotional problems of adults with intellectual disability. Criterion scores for identifying individuals needing clinical intervention were established and validated against…

Continuous observational recording over 57 hours evaluated behavior states of three adults with profound and multiple disabilities. Two independent observers also recorded for 22 hours. Although overall percentage agreement was satisfactory (above 80%), agreement on occurrence was unsatisfactory (mean of 65%). Agreement data were superimposed on…

This study examined the relationship of teachers' and parents' ratings of the employability skills of 15 students (ages 8-16) with multiple disabilities. Five teachers and 14 sets of parents used the Ohio Employability/Life Skills Assessment, Parent Form to assess student mastery of employability attitudes and skills. Significant differences were…

Nurses applied standard behavioral criteria for major depression to evaluate 89 institutionalized adults with severe or profound intellectual disability. Results suggested that several additional behaviors listed on the Aberrant Behavior Checklist and the Developmental Behavior Checklist may be associated with this disorder in this population.…