Publication Date
| In 2025 | 3 |
| Since 2024 | 6 |
| Since 2021 (last 5 years) | 10 |
| Since 2016 (last 10 years) | 17 |
| Since 2006 (last 20 years) | 37 |
Descriptor
| Multiple Disabilities | 64 |
| Quality of Life | 64 |
| Severe Disabilities | 25 |
| Foreign Countries | 17 |
| Adults | 11 |
| Well Being | 10 |
| Children | 9 |
| Developmental Disabilities | 9 |
| Interpersonal Relationship | 9 |
| Mental Retardation | 9 |
| Severe Intellectual Disability | 9 |
| More ▼ | |
Source
Author
| Maes, Bea | 7 |
| Petry, Katja | 6 |
| Vlaskamp, Carla | 4 |
| Lancioni, Giulio E. | 3 |
| Olsman, Erik | 3 |
| Reid, Dennis H. | 3 |
| Singh, Nirbhay N. | 3 |
| Turnbull, Ann P. | 3 |
| Aly Waninge | 2 |
| Green, Carolyn W. | 2 |
| Hostyn, Ine | 2 |
| More ▼ | |
Publication Type
Education Level
| Higher Education | 2 |
| Postsecondary Education | 2 |
| Elementary Education | 1 |
| Elementary Secondary Education | 1 |
| High Schools | 1 |
| Secondary Education | 1 |
Audience
| Practitioners | 4 |
| Researchers | 4 |
| Administrators | 2 |
Location
| Netherlands | 8 |
| Ireland | 3 |
| Australia | 2 |
| United Kingdom | 2 |
| Belgium | 1 |
| Finland | 1 |
| Germany | 1 |
| Kentucky | 1 |
| New York | 1 |
| Norway | 1 |
| Poland | 1 |
| More ▼ | |
Laws, Policies, & Programs
Assessments and Surveys
| Maslach Burnout Inventory | 1 |
What Works Clearinghouse Rating
Peer reviewed
Direct linkLotte Piekema; Annet ten Brug; Aly Waninge; Annette van der Putten – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Although particular technologies can enhance the quality of life (QoL) of people with profound intellectual and multiple disabilities (we use the term pervasive support needs), their objectives and outcomes are understudied. A systematic literature review was therefore conducted to explore this topic. Method: A search of four databases…
Descriptors: Quality of Life, Disabilities, Intellectual Disability, Assistive Technology
Karine Baumstarck; Sibylle Del Duca; Houria El Ouazzani; Ilyes Hamouda; Any Beltran Anzola; Marie-Anastasie Aim; Marie-Christine Rousseau – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Advancements in medicine have increased the life expectancy of the people with profound intellectual and multiple disabilities. The hypothesis is that as parents get older, they worry about no longer being there for their child. This paper explores the extent to which the experiences of older parents may differ from that of younger…
Descriptors: Quality of Life, Severe Disabilities, Multiple Disabilities, Intellectual Disability
Siméon T. A. Lahaije; Jorien Luijkx; Aly Waninge; Annette A. J. van der Putten – Intellectual and Developmental Disabilities, 2024
Persons with profound intellectual and multiple disabilities (PIMD) have pervasive support needs, which are often managed by their families. By being resilient and positively adapting to this challenge, families may maintain a positive family quality of life (FQOL). We therefore aimed to understand how families with a child with PIMD experience…
Descriptors: Severe Intellectual Disability, Multiple Disabilities, Quality of Life, Children
Jakub Niedbalski – Journal of Intellectual & Developmental Disability, 2025
Background: The aim of this study was to establish the perceived quality of life in twin siblings of individuals with profound intellectual and multiple disabilities (PIMD) living in Poland. Method: Semi-structured interviews were conducted with siblings of people with PMID. The interviews were subjected to thematic analysis according to grounded…
Descriptors: Twins, Quality of Life, Siblings, Severe Intellectual Disability
Željka Nikolaševic; Karolina Cuckovic; Ksenija Gebauer-Bukurov; Vojislava Bugarski Ignjatovic – Journal of Intellectual & Developmental Disability, 2024
Background: Multiple disabilities represent separate entities that cannot be reduced to the sum of disabilities or the main disability. This study compared the health-related quality of life (HRQoL) of children and adolescents with multiple disabilities and those with one developmental disability. We further assessed how comorbidities and…
Descriptors: Multiple Disabilities, Quality of Life, Children, Adolescents
Kruithof, Kasper; Olsman, Erik; Nieuwenhuijse, Appolonia; Willems, Dick – Journal of Intellectual & Developmental Disability, 2022
Background: The life expectancy of people with profound intellectual and multiple disabilities (PIMD) is increasing and parents express concerns about being possibly outlived by their child with PIMD. However, little is known about the nature of these concerns. Method: We interviewed 27 parents of persons with PIMD and analysed the data…
Descriptors: Severe Intellectual Disability, Multiple Disabilities, Parent Attitudes, Children
Pilar Trelles; Behrang Mahjani; Emma Wilkinson; Nicholas Buonagura; Lauren Donnelly; Jennifer Foss Feig; Danielle Halpern; Mary McKay; Paige Siper; Joseph D. Buxbaum; Alexander Kolevzon – Journal of Developmental and Physical Disabilities, 2025
Purpose: Family Peer Advocates (FPA) are used in healthcare broadly to facilitate engagement and address disparities in care. We previously reported on the benefit of FPAs in the care of autistic children on caregiver stress. Caregivers of autistic children report significant levels of caregiver stress, in particular when associated with…
Descriptors: Autism Spectrum Disorders, Attention Deficit Hyperactivity Disorder, Multiple Disabilities, Advocacy
Nieuwenhuijse, Appolonia M.; Willems, Dick L.; van Goudoever, Johannes B.; Echteld, Michael A.; Olsman, Erik – Journal of Intellectual & Developmental Disability, 2019
Background: The objective of this study was to provide an overview of concepts, methods of assessment and assessors in empirical studies on quality of life (QoL) of persons with Profound Intellectual and Multiple Disabilities (PIMD). Method: A narrative literature review was conducted by searching electronic databases until December 2016, and the…
Descriptors: Quality of Life, Severe Intellectual Disability, Multiple Disabilities, Evaluation Methods
Download full textEmrah Marul; Hasan Hüseyin Yildirim – International Journal of Contemporary Educational Research, 2023
The aim of this study, which was carried out according to the life story/narrative research design, which is one of the qualitative research methods, is to examine the life story of a mother living with a child with an additional disability. In this context, a 5-year-old child with deficiencies such as hearing loss, autism and ADHD and his mother…
Descriptors: Mothers, Children, Disabilities, Young Children
Nieuwenhuijse, A. M.; Willems, D. L.; van Goudoever, J. B.; Olsman, E. – International Journal of Developmental Disabilities, 2022
Persons with Profound Intellectual and Multiple Disabilities (PIMD) are supported by professional caregivers for a large part of their lives. However, the perspectives of professional caregivers on good or poor Quality of Live (QoL) of persons with PIMD have hardly been explored. To explore the perspective of professional caregivers on QoL of…
Descriptors: Severe Intellectual Disability, Multiple Disabilities, Caregiver Attitudes, Caregivers
Jennifer Marie Sprague – ProQuest LLC, 2022
Individuals with profound intellectual and multiple disabilities (PIMD) rely on direct support professionals (DSPs) to communicate with them and plan meaningful activities of daily living (ADL) for them. This qualitative descriptive study explored how DSPs providing ongoing care who work directly with individuals with PIMD describe the use of…
Descriptors: Quality of Life, Severe Disabilities, Intellectual Disability, Multiple Disabilities
Talman, Lena; Wilder, Jenny; Stier, Jonas; Gustafsson, Christine – Journal of Applied Research in Intellectual Disabilities, 2019
Background: Participation is a central aspect of quality of life, and it is indicative of high-quality outcomes for people with intellectual disabilities. However, participation is difficult to achieve for adults with profound intellectual and multiple disabilities. Aim: To describe staff members' perceptions of what participation means for adults…
Descriptors: Severe Intellectual Disability, Multiple Disabilities, Adults, Participation
Nieuwenhuijse, Appolonia M.; Willems, Dick L.; Olsman, Erik – Journal of Intellectual & Developmental Disability, 2020
Background: Quality of Life (QoL) may be a factor in physicians' decisions on treatment of persons with Profound Intellectual and Multiple Disabilities (PIMD). We explored the perception of physicians on the QoL of persons with PIMD. Method: We conducted semi-structured interviews with seven experienced physicians treating persons with PIMD,…
Descriptors: Physicians, Attitudes, Quality of Life, Severe Intellectual Disability
Aktan, Osman; Orakci, Senol; Durnali, Mehmet – European Journal of Special Needs Education, 2020
The aim of this study was to investigate the relationship between burnout, life satisfaction and quality of life in parents of disabled children and the mediating role of burnout in the relationship between life satisfaction and quality of life. Relational comparison, which is a quantitative research method, was used. The study sample consisted of…
Descriptors: Burnout, Life Satisfaction, Quality of Life, Parent Child Relationship
McConnell, Mary Susan – ProQuest LLC, 2019
Individuals with severe disabilities often face significant challenges after high school. During the last years of secondary school, transition teams develop plans for individuals who are receiving special education services. Little is known about the outcomes of those efforts. In this qualitative multiple case study, the researcher examined the…
Descriptors: Severe Disabilities, Students with Disabilities, Transitional Programs, Multiple Disabilities
