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Peer reviewed
Direct linkRaven Bureau; Céline Clément – Autism: The International Journal of Research and Practice, 2024
Research on how adults react to receiving an autism diagnosis is focused on the United States or the United Kingdom context even though cultural differences might have an impact on these experiences. Few interventions for autistic adults exist, and when they do, they are often described as inappropriate. Our study aimed to explore the experiences…
Descriptors: Foreign Countries, Adults, Autism Spectrum Disorders, Clinical Diagnosis
Maretha de Jonge; Mohamed Boutjdir; Tahar El-Korchi; Hafida Torres; Arun Karpur; Andy Shih; Abdeslem Elidrissi – Autism: The International Journal of Research and Practice, 2024
Understanding caregivers' needs is crucial for service planning and empowering caregivers around the world. Although research on autism from Arab countries is emerging, many countries are still unrepresented. Moreover, within-country disparities are understudied. This study investigated differences in needs, service use, and satisfaction between…
Descriptors: Rural Urban Differences, Satisfaction, Caregiver Attitudes, Autism Spectrum Disorders
Paulina Buffle; Thalia Cavadini; María de Lourdes Ortega; Cristina Armijos; Patricia Soto; Edouard Gentaz; Laura Crane – Autism: The International Journal of Research and Practice, 2025
There has been limited research on families of autistic children in Ecuador, especially in relation to their experiences of accessing a diagnosis and associated support. In this study, we surveyed 767 families about their diagnostic and post-diagnostic journeys. Of these, 651 families had children who had received a formal autism diagnosis. In…
Descriptors: Foreign Countries, Autism Spectrum Disorders, Clinical Diagnosis, Family Attitudes
Jade Eloise Norris; Rebecca Harvey; Laura Hull – Autism: The International Journal of Research and Practice, 2025
Autism diagnoses in adulthood have risen substantially over recent years. While providing potential benefits, many autistic adults struggle to navigate their new diagnosis. Our review aimed to synthesise the evidence for post-diagnostic support for autistic adults without intellectual disability diagnosed in adulthood in the UK: investigating…
Descriptors: Autism Spectrum Disorders, Adults, Needs, Services
Laura Moore; Sarah Foley; Fionnuala Larkin – Autism: The International Journal of Research and Practice, 2025
Available research suggests autistic mothers experience greater dissatisfaction with maternity care compared to non-autistic mothers. Limited research exists exploring autistic mothers' experiences of maternity care, and no research to date has considered maternity care professionals' experiences of delivering care to autistic mothers. This…
Descriptors: Autism Spectrum Disorders, Mothers, Birth, Barriers
Ishler, Karen J.; Berg, Kristen A.; Olgac, Tugba; Obeid, Rita; Biegel, David E. – Autism: The International Journal of Research and Practice, 2023
Many of the nearly six million autistic adolescents and adults in the United States require support to navigate daily life. Family members often provide the first line of support for autistic youth by providing care and coordinating services. Although considerable research has examined the perspectives of family members caring for young autistic…
Descriptors: Autism Spectrum Disorders, Adolescents, Young Adults, Caregivers
Grant, Aimee; Jones, Sara; Williams, Kathryn; Leigh, Jennifer; Brown, Amy – Autism: The International Journal of Research and Practice, 2022
Low breastfeeding rates are driven by multiple bio-psycho-social factors. Experience of breastfeeding is known to differ by maternal demographic factors (age, education and ethnicity) but there is less recognition of factors such as neurodivergence. This review, prospectively registered with PROSPERO (registration number: CRD42021271465),…
Descriptors: Autism Spectrum Disorders, Females, Infants, Nutrition
Lee, Gloria K.; Krizova, Katarina; Shivers, Carolyn M. – Autism: The International Journal of Research and Practice, 2019
This study investigated the relationships among caregiving strain, coping, and mental health among caregivers of individuals with autism spectrum disorder (ASD) and the mediational moderation of caregiver needs. One hundred and ninety-three caregivers of individuals with ASD completed an online survey. Results showed that maladaptive coping…
Descriptors: Caregivers, Stress Variables, Autism, Pervasive Developmental Disorders
Davy, Gemma; Unwin, Katy L.; Barbaro, Josephine; Dissanayake, Cheryl – Autism: The International Journal of Research and Practice, 2022
Parenting an autistic child can reduce the time parents have to participate in their own interests, but the impact this has on caregiver quality of life is not well understood. The aim in undertaking this scoping review was to examine and describe current research about occupational participation and quality of life among parents of autistic…
Descriptors: Autism Spectrum Disorders, Child Rearing, Quality of Life, Leisure Time
Cooper, Kate; Mandy, William; Russell, Ailsa; Butler, Catherine – Autism: The International Journal of Research and Practice, 2023
Autistic people are over-represented at gender clinics, but there is limited research to guide clinical practice with this group. We investigated the perspectives of clinicians working with autistic patients who experience gender dysphoria. We asked clinicians about the relationship between autism and gender dysphoria, and whether they work…
Descriptors: Autism Spectrum Disorders, Sexual Identity, Correlation, Patients
Tint, Ami; Weiss, Jonathan A. – Autism: The International Journal of Research and Practice, 2018
It is recognized that the experiences of women with autism spectrum disorder are often underrepresented in the literature. In this study, 20 women with autism spectrum disorder participated in five focus groups with discussions centered on their service use, unmet service needs, and barriers to care. Overall, women emphasized high unmet service…
Descriptors: Autism, Pervasive Developmental Disorders, Females, Needs
Hampton, Sarah; Man, Joyce; Allison, Carrie; Aydin, Ezra; Baron-Cohen, Simon; Holt, Rosemary – Autism: The International Journal of Research and Practice, 2023
Pregnancy may pose a number of physical and healthcare-related challenges for autistic people, who experience differences in sensory processing and can face barriers to accessing healthcare. However, little research has explored autistic pregnancy experiences. Semi-structured interviews were conducted with 24 autistic and 21 non-autistic women…
Descriptors: Pregnancy, Mothers, Autism Spectrum Disorders, Barriers
Hampton, Sarah; Man, Joyce; Allison, Carrie; Aydin, Ezra; Baron-Cohen, Simon; Holt, Rosemary – Autism: The International Journal of Research and Practice, 2022
Navigating childbirth and the postnatal period may pose additional challenges for autistic people, who can face communication and sensory barriers to accessing healthcare. However, research exploring autistic experiences of parenthood is scarce. Semi-structured interviews were conducted with 21 autistic and 25 non-autistic women 2-3 months after…
Descriptors: Birth, Autism Spectrum Disorders, Barriers, Mothers
Dugdale, Amber-Sophie; Thompson, Andrew R.; Leedham, Alexandra; Beail, Nigel; Freeth, Megan – Autism: The International Journal of Research and Practice, 2021
Knowledge of how parenthood is experienced by autistic women is currently poor. Nine autistic mothers to children aged 5-15 years completed semi-structured interviews, analysed using Interpretative Phenomenological Analysis. All mothers considered at least one of their children to also be autistic. Four superordinate themes emerged: 1.…
Descriptors: Autism, Pervasive Developmental Disorders, Mothers, Child Rearing
Taylor, Helen; Ingham, Barry; Mason, David; Finch, Tracy; Wilson, Colin; Scarlett, Clare; Moss, Sebastian; Buckley, Carole; Urbanowicz, Anna; Raymaker, Dora; Seiboth, Charlotte; Lees, Rhianna; Garland, Deborah; Osbourne, Malcolm; Lennox, Nicholas; Cooper, Sally-Ann; Nicolaidis, Christina; Parr, Jeremy R. – Autism: The International Journal of Research and Practice, 2023
Autistic people experience more health conditions and earlier mortality. This study investigated views about a primary care health check for autistic adults to inform its design. Fifty-one people participated in consultation groups and interviews, comprising autistic adults (some with co-occurring intellectual disabilities), adults with…
Descriptors: Foreign Countries, Autism Spectrum Disorders, Access to Health Care, Primary Health Care
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