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Pendl, Dominik; Glatz, Mathieu; Gasteiger-Klicpera, Barbara – Journal of Applied Research in Intellectual Disabilities, 2024
Background: In Austria, due to its history, only relatively little research on the topic of intellectual disabilities and dementia has been conducted to date. The present study thus aims to explore the challenges and tasks currently facing formal caregivers, together with assessing their wishes for further development. Methods: Ten semi-structured…
Descriptors: Foreign Countries, Caregivers, Intellectual Disability, Dementia
Thalen, Marloes; Volkers, Karin M.; van Oorsouw, Wietske M. W. J.; Embregts, Petri J. C. M. – Journal of Applied Research in Intellectual Disabilities, 2022
Background: The life expectancy of people with intellectual disabilities has increased. The implications of ageing have resulted in changes in their support needs and challenges to support staff. Access to evidence based strategies for support staff providing care to elderly with intellectual disabilities remains scarce. A systematic review was…
Descriptors: Intervention, Older Adults, Intellectual Disability, Aging (Individuals)
Esther H. Bisschops; Noud Frielink; J. Clasien de Schipper; Carlo Schuengel; Petri J. C. M. Embregts – Journal of Applied Research in Intellectual Disabilities, 2025
Background: The Needs Assessment Framework (NAF) stimulates awareness of care staff to consider perspectives of clients with intellectual disabilities in decisions on involuntary care. We explored the effect of implementers' participation in a Virtual Community-of-Practice (VCoP) for designing implementation plans, on NAF implementation and staff…
Descriptors: Communities of Practice, Intellectual Disability, Social Services, Computer Mediated Communication
Lianne Bakkum; Célinde Paalman; Annelieke Müller; Agnies van Eeghen; Carlo Schuengel – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Experience sampling may be useful for mental health research with people with intellectual disability, and evidence of the potential benefits is starting to emerge. This multiple-method study identified potential avenues for tailoring this method to the needs of people with intellectual disability. Method: A scoping review was…
Descriptors: Mental Health, Research Methodology, Intellectual Disability, Adults
Toews, Samantha Gross; Hanreddy, Amy; Mahoney, Elia – Teachers College Record, 2023
Background and Purpose: The unprecedented shift to distance learning during the COVID-19 pandemic intensified educational inequities for students with disabilities, a historically marginalized population in terms of access to quality instruction. Caregivers assumed an integral role in access to education during distance learning, making it…
Descriptors: Special Needs Students, Student Needs, Child Caregivers, Distance Education
Muireann Ní Riain; Sheelagh Wickham – Journal of Intellectual Disabilities, 2024
Learning Disability Liaison Nurses have been shown to improve hospital experiences and this is an emerging role in Ireland. This research qualitatively explored the impact of a Clinical Nurse Specialist Acute Hospital Liaison from the perspective of staff in an intellectual disability community organisation. Participants identified significant…
Descriptors: Intellectual Disability, Nurses, Role, Hospitals
Oulton, Kate; Gibson, Faith; Kenten, Charlotte; Russell, Jessica; Carr, Lucinda; Hassiotis, Angela; Kelly, Paula; Kerry, Sam; Tuffrey-Wijne, Irene; Whiting, Mark; Wray, Jo – Journal of Applied Research in Intellectual Disabilities, 2024
Background: There is limited qualitative research focussed specifically on what it is like for children and young people with intellectual disabilities coming into hospital, with much of the evidence-base being about those with Autism Spectrum Condition or adults with intellectual disabilities. Aim: To share rich detail of the emotional and…
Descriptors: Children, Intellectual Disability, Hospitalized Children, Hospitals
Wark, Stuart; Bryant, Lia; Morales-Boyce, Tyson; Deuter, Kate – Journal of Intellectual & Developmental Disability, 2023
Background: Australian research indicates that post-parental care transitions are rarely planned and primarily occur following a crisis for a primary carer. This paper examines disability staff perceptions of transitions for people with intellectual disability and their ageing carers in rural South Australia. Method: A focus group interview model…
Descriptors: Foreign Countries, Delivery Systems, Rural Areas, Intellectual Disability
Tal Araten-Bergman; Christine Bigby – Journal of Intellectual & Developmental Disability, 2024
Background: This study explores the perceptions of supported accommodation staff and their managers of the support needs of residents ageing with intellectual disabilities, and their experiences of adjusting services for this group in the context of individualised funding. Method: Qualitative interviews were conducted with 21 staff working in…
Descriptors: Aging (Individuals), Intellectual Disability, Group Homes, Caregiver Attitudes
Kelli A. Sanderson; Meghan M. Burke; Jennifer L. Bumble – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Many parents are the primary caregivers for their adult children with intellectual and/or developmental disabilities. While there can be many benefits of caregiving, there can also be negative consequences for the parent caregiver and, in turn, for their adult child with intellectual and/or developmental disabilities. Given the…
Descriptors: Adults, Children, Intellectual Disability, Developmental Disabilities
Kasperski, Ronen; Blau, Ina – Education and Information Technologies, 2023
This study examined whether and how an online mentoring social network (SN) assists students with special needs--Intellectual Disabilities (ID) or Autism Spectrum Disorder (ASD), in coping with their disabilities and accumulating bonding and bridging types of social capital. The study used a qualitative research paradigm--Netnography to crosscheck…
Descriptors: Students with Disabilities, High School Students, Undergraduate Students, Teachers
Marelle, Chelsea; Vinoski Thomas, Erin; Donehower Paul, Claire – Journal of Special Education Technology, 2023
Despite the enactment of the Americans with Disabilities Act and its amendments, there are still barriers to successful employment for people with intellectual and developmental disabilities (IDD). Known barriers include lack of accommodations; negative stigma; and lack of investment in education, on-the-job training, and work experiences.…
Descriptors: Intellectual Disability, Developmental Disabilities, Employees, Barriers
Angus Y. K. Lam; Matthew K. S. Yau; Richard C. Franklin; Peter A. Leggat – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Sexual well-being significantly impacts the overall quality of life for individuals with and without intellectual disabilities. Notably, parents play a pivotal role in influencing their children's sexual development, and their attitudes towards this topic are shaped by Chinese sociocultural values. Methods: This study employed…
Descriptors: Foreign Countries, Well Being, Quality of Life, Intellectual Disability
Ariana M. Mastrogiannis; Caren Steinway; Telmo C. Santos; Jack Chen; John Berens; Thomas Davis; Michelle Cornacchia; Jason Woodward; Ilka Riddle; Brittany Spicer; Charmaine Wright; Lee A. Lindquist; Sophia Jan – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Long-term care services are funded primarily by Medicaid long-term services and support in the United States, where eligibility is based on care needs of the individual with intellectual and developmental disability alone. Impact of Medicaid waiver services on self-reported caregiver needs is not well understood. Method: Caregivers (n…
Descriptors: Caregivers, Intellectual Disability, Developmental Disabilities, Needs
Tournier, T.; Hendriks, A.H.C.; Jahoda, A.; Hastings, R.P.; Embregts, P.J.C.M. – Journal of Intellectual Disabilities, 2023
The tacit practical knowledge of psychologists and support staff to foster a real connection between support staff and people with intellectual disabilities and challenging behaviour was explored. Therefore, six dyads comprising individuals with intellectual disabilities and challenging behaviour and their support staff were video recorded during…
Descriptors: Intellectual Disability, Behavior Problems, Interpersonal Relationship, Interaction