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Direct linkElise J. Matthews; Jan Gelech; Raissa Graumans; Michel Desjardins; Isabelle Gélinas – Journal of Developmental and Physical Disabilities, 2021
The nature of relationships between service providers and parents of children with disabilities influences the health and wellbeing of parents and ultimately the quality of life of their children. The aim of this study was to explore parents' perceptions of their partnerships with service providers. We explored what was and was not working within…
Descriptors: Disabilities, Neurodevelopmental Disorders, Parent Attitudes, Children
Henrik Danielsson; Christine Imms; Magnus Ivarsson; Lena Almqvist; Lars-Olov Lundqvist; Gillian King; Liz Adams Lyngbäck; Anna Karin Andersson; Susann Arnell; Patrik Arvidsson; Lilly Augustine; Rob Brooks; Maria Eldh; Lisa Engde; Helena Engkvist; Ingalill Gimbler Berglund; Dido Green; Karina Huus; Charlotte Karlsson; Frida Lygnegård; Linda Sjödin; Mats Granlund – Journal of Developmental and Physical Disabilities, 2024
To review the longitudinal trajectories -- and the factors influencing their development -- of mental health problems in children with neurodevelopmental disabilities. Systematic review methods were employed. Searches of six databases used keywords and MeSH terms related to children with neurodevelopmental disabilities, mental health problems, and…
Descriptors: Longitudinal Studies, Mental Health, Children, Neurodevelopmental Disorders
Clare Carroll; Miriam Twomey – Journal of Developmental and Physical Disabilities, 2021
With the increasing recognition that the voices of children need to be included in matters that affect their lives, this scoping review aimed to investigate the methods that have been used in qualitative studies to support the participation of children with neurodevelopmental disorders in research. Studies were identified through a systematic…
Descriptors: Children, Neurodevelopmental Disorders, Attitudes, Empowerment
Emma C. Woodford; Laurie McLay; Neville M. Blampied; Karyn G. France; Rosina Gibbs; Charis Whitaker; Emma McCaughan – Journal of Developmental and Physical Disabilities, 2023
Sleep problems are prevalent among autistic children and children with Rare Genetic Neurodevelopmental Disorders (RGND). Behavioral interventions are commonly used to treat sleep problems, with most involving extinction. While effective, the occurrence of a response burst (i.e., temporary worsening of the behavior) can result in a temporary…
Descriptors: Sleep, Neurodevelopmental Disorders, Intervention, Behavior Modification
John Joe Forde; Sinéad Smyth – Journal of Developmental and Physical Disabilities, 2022
Although it is now widely accepted that developmental co-ordination disorder (DCD) persists into adolescence and adulthood, few studies have assessed the concept of Quality of Life (QOL) within the adult DCD population. This is despite a growing recognition that children and adolescents with DCD experience poorer QOL than their typically developed…
Descriptors: Behavior Patterns, Adults, Developmental Disabilities, Neurodevelopmental Disorders
Emily Gardiner; Anton R. Miller; Lucyna M. Lach – Journal of Developmental and Physical Disabilities, 2021
Background: Given the significant behavioral heterogeneity characterizing children with neurodevelopmental disorders and disabilities (NDD/D), the current study examined whether cluster analysis could classify a diverse sample into more homogeneous subgroups. Aims: We first utilized cluster analysis to identify subgroups of children demonstrating…
Descriptors: Intellectual Disability, Children, Neurodevelopmental Disorders, Cluster Grouping
Valérie Côté; Inga S. Knoth; Ève Lalancette; Jade-Audrey Lavergne; Lucie Côté; Philippe Major; Sarah Lippé – Journal of Developmental and Physical Disabilities, 2021
This study investigated which specific behavioural issues is best associated with adaptive functioning in three specific genetic syndromes. Behavioural issues were assessed in neurotypical (NT) (n = 43), Tuberous sclerosis complex (TSC) (n = 19), Down syndrome (DS) (n = 24) and Fragile X syndrome (FXS) (n = 23) participants ranging from 3 to…
Descriptors: Genetic Disorders, Behavior Problems, Down Syndrome, Intellectual Disability
Andrew Shlesinger; Frank Bird; Jill M. Harper; James K. Luiselli; Melmark New England – Journal of Developmental and Physical Disabilities, 2022
We describe a computer-assisted program for conducting well-body assessments of children with neurodevelopmental disabilities attending a private special education school. Classroom instructors completed daily assessments to detect the presence of bodily injuries and other skin trauma, determine the need for medical treatment, and monitor healing…
Descriptors: Neurodevelopmental Disorders, Students with Disabilities, Private Schools, Special Schools
Julia M. Ranieri; Nicole Neil; Monica Sadowski; Mohammad Azzam – Journal of Developmental and Physical Disabilities, 2024
Children with neurodevelopmental disabilities are among the most vulnerable to experiencing exclusion from community settings. Informal education settings (IES), such as camps, museums, and zoos, provide rich learning opportunities beyond the classroom, yet inclusion efforts have primarily focused on physical accessibility. A review of research is…
Descriptors: Inclusion, Students with Disabilities, Informal Education, Content Analysis
K. Fjermestad; P. Pat; S. Dearozet; T. Vatne; M. Hafting; B. Jegannathan – Journal of Developmental and Physical Disabilities, 2021
Siblings of children with neurodevelopmental disorders (ND) are at increased risk of mental health problems. The burden on families of children with ND is exacerbated in low-income countries with limited health services and dependency on informal care systems. Yet, there is little research on family impacts of ND in non-Western settings, and no…
Descriptors: Siblings, Neurodevelopmental Disorders, At Risk Persons, Mental Disorders
