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Families' Perspectives on the Process of Community Transitions of Individuals with Severe Intellectual and Developmental Disabilities
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Maria Baranowski; Margherita Cameranesi; Javier Mignone; Lindsay McCombe; Kayla Kostal; Jenna Heschuk; Shahin Shooshtari – Journal of Intellectual & Developmental Disability, 2024
Background: Deinstitutionalisation refers to the transition of individuals with intellectual and developmental disabilities from large institutions to smaller homes in the community. The purpose of this study was to explore how family members of persons with intellectual and developmental disabilities perceived their loved ones' community…
Descriptors: Severe Intellectual Disability, Severe Disabilities, Developmental Disabilities, Family Attitudes
Reducing Restrictive Measures in Complex Long-Term Care for People with Intellectual Disabilities: Implementation Interventions through the Lens of Normalisation Process Theory
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Bisschops, Esther H.; de Schipper, J. Clasien; Schippers, Baukje; Embregts, Petri J. C. M.; Schuengel, Carlo – Journal of Intellectual & Developmental Disability, 2022
Background: The multi-disciplinarity of long-term care for people with intellectual disabilities makes organisations seek stability and predictability, complicating implementing innovations. Interventions to implement a method for reducing restrictive measures were analysed through the lens of Normalisation Process Theory to understand the social…
Descriptors: Health Services, Intellectual Disability, Social Influences, Normalization (Disabilities)
Could I, Should I? Parenting Aspirations and Personal Considerations of Five Young Women with 22q11.2 Deletion Syndrome
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Phillips, Lisa; Goodwin, Jane; Johnson, Martin P.; Campbell, Linda E. – Journal of Intellectual & Developmental Disability, 2017
Background: This phenomenological study explores the perceptions, hopes, and dreams of relationships and parenting of women with a genetic intellectual disability. Method: Five women with both 22q11.2 deletion syndrome (22q11DS) and intellectual disability took part in semistructured interviews. Their subjective interpretations were analysed using…
Descriptors: Intellectual Disability, Females, Genetic Disorders, Phenomenology
Social Aspects of Eating Events among People with Intellectual Disability in Community Living
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Adolfsson, Paivi; Sydner, Ylva Mattsson; Fjellstrom, Christina – Journal of Intellectual & Developmental Disability, 2010
Background: In Sweden, a process involving the deinstitutionalisation of services and the establishment of community-based settings for people with intellectual disability has meant changes in meal arrangements. In the present study, we focus on the social arrangements of meals in community-based settings. Method: Participant observations were…
Descriptors: Mental Retardation, Group Homes, Foreign Countries, Eating Habits
Meta-Analysis of Deinstitutionalisation Adaptive Behaviour Outcomes: Research and Clinical Implications
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Hamelin, Jeffery P.; Frijters, Jan; Griffiths, Dorothy; Condillac, Rosemary; Owen, Frances – Journal of Intellectual & Developmental Disability, 2011
Background: A meta-analysis examined the effects of deinstitutionalisation on adaptive behaviour outcomes in persons with intellectual disability. The need for an updated review in this area is reflected by recent policy shifts in community care practices and the international status of deinstitutionalisation efforts. Method: Twenty-three studies…
Descriptors: Community Services, Research Design, Sample Size, Mental Retardation
Age-Appropriateness: Enabler or Barrier to a Good Life for People with Profound Intellectual and Multiple Disabilities?
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Forster, Sheridan – Journal of Intellectual & Developmental Disability, 2010
The principle of age-appropriateness is widespread throughout government policy and nongovernment practice guidelines, but the exact meaning of the term is rarely defined. It is commonly assumed to mean activities and approaches commensurate with an individual's chronological age. Dress, furnishing, object selection, and the style of interactions,…
Descriptors: Age, Multiple Disabilities, Quality of Life, Guidelines
Known Well by No-One: Trends in the Informal Social Networks of Middle-Aged and Older People with Intellectual Disability Five Years after Moving to the Community
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Bigby, Christine – Journal of Intellectual & Developmental Disability, 2008
Background: Informal relationships are central to conceptualisations of quality of life. Deinstitutionalisation studies consistently suggest a trend of increased contact with family and friends by people with intellectual disability (ID) following relocation from an institution to the community. In this study, changes in the nature of the informal…
Descriptors: Mental Retardation, Older Adults, Adults, Social Networks