NotesFAQContact Us
Collection
Advanced
Search Tips
Showing all 6 results Save | Export
Hidden Lives and Deaths: The Last Months of Life of People with Intellectual Disabilities Living in Long-Term, Generic Care Settings in the UK
Peer reviewed Peer reviewed
Direct linkDirect link
Todd, Stuart; Bernal, Jane; Worth, Rhian; Shearn, Julia; Brearley, Sarah; McCarron, Mary; Hunt, Katherine – Journal of Applied Research in Intellectual Disabilities, 2021
Background: This paper concerns mortality and needs for end-of-life care in a population of adults with ID living in generic care homes. Methods: Various sampling strategies were used to identify a difficult to find a population of people with ID in generic care homes. Demographic and health data were obtained for 132 people with ID. This included…
Descriptors: Foreign Countries, Death, Intellectual Disability, Older Adults
'A Potentially Ticking Time Bomb' -- Barriers for Prevention, Diagnosis, and Treatment of Cardiovascular Disease in People with Intellectual Disabilities
Peer reviewed Peer reviewed
Direct linkDirect link
Tanja Plasil; Ellen Margrete Iveland Ersfjord; Kim Berge; Line M. Oldervoll – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Research suggests that people with intellectual disabilities have a higher risk for cardiovascular disease than the general population. The aim of this study was to identify barriers for the prevention, diagnosis, and treatment of cardiovascular disease for people with intellectual disabilities. Method: We conducted individual…
Descriptors: Barriers, Prevention, Clinical Diagnosis, Medical Services
An Investigation of the Neurological and Neuropsychiatric Disturbances in Adults with Undiagnosed and/or Untreated Phenylketonuria in Poland
Peer reviewed Peer reviewed
Direct linkDirect link
Mazur, Artur; Jarochowicz, Sabina; Oltarzewski, Mariusz; Sykut-Cegielska, Jolanta; Gradowska, Wanda; Januszek-Trzciakowska, Aleksandra; O'Malley, Grace; Kwolek, Andrzej – Journal of Applied Research in Intellectual Disabilities, 2011
Background: The aim of the study was to determine neurological and neuropsychiatric manifestations in a group of patients with previously undiagnosed or untreated phenylketonuria (PKU) in the south-eastern part of Poland. Methods: The study was conducted among 400 adults with severe intellectual disability who were born prior to neonatal screening…
Descriptors: Mental Retardation, Seizures, Quality of Life, Patients
Service Use and Costs of Support 12 Years after Leaving Hospital
Peer reviewed Peer reviewed
Direct linkDirect link
Hallam, Angela; Beecham, Jennifer; Knapp, Martin; Carpenter, John; Cambridge, Paul; Forrester-Jones, Rachel; Tate, Alison; Coolen-Schrijner, Pauline; Wooff, David – Journal of Applied Research in Intellectual Disabilities, 2006
Background: There have been major changes in the provision and organization of services for people with intellectual disabilities in England over the last 30 years, particularly deinstitutionalization and the development of the mixed economy of care. The experiences of the people who participated in the Care in the Community Demonstration…
Descriptors: Health Services, Individual Characteristics, Mental Retardation, Hospitals
The Social Networks of People with Intellectual Disability Living in the Community 12 Years after Resettlement from Long-Stay Hospitals
Peer reviewed Peer reviewed
Direct linkDirect link
Forrester-Jones, Rachel; Carpenter, John; Coolen-Schrijner, Pauline; Cambridge, Paul; Tate, Alison; Beecham, Jennifer; Hallam, Angela; Knapp, Martin; Wooff, David – Journal of Applied Research in Intellectual Disabilities, 2006
Background: The social inclusion of people with intellectual disabilities presents a major challenge to services. As part of a 12-year follow up of people resettled from long-stay hospitals, the size of 213 individuals' social networks and the types of social support they received were investigated, as viewed by people with intellectual…
Descriptors: Social Support Groups, Social Integration, Mental Retardation, Hospitals
People with Intellectual Disabilities Living in Generic Residential Services for Older People in the UK
Peer reviewed Peer reviewed
Direct linkDirect link
Thompson, D. J.; Ryrie, I.; Wright, S. – Journal of Applied Research in Intellectual Disabilities, 2004
Background: As part of a UK programme of work focusing on older people with intellectual disabilities, the circumstance of those who reside in generic services for older people were investigated. Materials and methods: Questionnaires were sent to 2570 residential and nursing homes in 53 local authorities across the UK. Results: Five hundred and…
Descriptors: Mental Retardation, Quality of Life, Nursing Homes, Organizational Change