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McMahon, Suzanne M.; Wilson, Charlotte E.; Sharry, John – Journal of Applied Research in Intellectual Disabilities, 2023
Objective: This study evaluated the effectiveness of the Parents Plus Special Needs (PPSN) programme, a seven-week parenting group intervention for parents of adolescents with intellectual disabilities. Method: In a cluster randomised controlled trial, 24 intellectual disability services supporting families of adolescents with an intellectual…
Descriptors: Program Effectiveness, Child Rearing, Parent Education, Adolescents
Droogmans, Gilles; Vergaelen, Elfi; Van Buggenhout, Griet; Swillen, Ann – Journal of Applied Research in Intellectual Disabilities, 2021
Background Individuals with Phelan-McDermid syndrome (PMS) are characterised by phenotypical traits that can be experienced as challenging by their environment. This study assessed parenting stress and Family Quality of Life (FQOL) in parents of individuals with PMS and identified potential contributing variables. Method: Mothers (n = 14) and…
Descriptors: Genetic Disorders, Child Rearing, Stress Variables, Family Environment
Ridding, Anna; Williams, James – Journal of Applied Research in Intellectual Disabilities, 2019
Background: Historically, research exploring the impact of having a child with an Intellectual Disability (ID), has focussed exclusively on mothers. The present study aimed to investigate fathers' experiences of parenting a child with Down's syndrome (DS), their contributions, influences on family functioning and inclusion in their child's support…
Descriptors: Child Rearing, Down Syndrome, Fathers, Adjustment (to Environment)
Scallan, Susan; Senior, Joyce; Reilly, Colin – Journal of Applied Research in Intellectual Disabilities, 2011
Background: Despite the distinctive physical, cognitive, personality and behavioural characteristics associated with Williams syndrome, few studies to date have examined parental experiences of raising a child with this genetic syndrome. Methods: This explorative pilot study employed predominantly qualitative methodologies via face-to-face…
Descriptors: Family Environment, Developmental Disabilities, Interviews, Genetic Disorders
Tehee, Erin; Honan, Rita; Hevey, David – Journal of Applied Research in Intellectual Disabilities, 2009
Background: The study explores the experiences of parents of individuals with autistic spectrum disorders (ASDs), and examines the influences of parent gender and child age on perceived stress, stress and coping, child-rearing involvement, support and information/education accessed. Methods and Materials: Questionnaires assessed general perceived…
Descriptors: Mothers, Autism, Access to Information, Coping
Trudgeon, Clare; Carr, Deborah – Journal of Applied Research in Intellectual Disabilities, 2007
Background: In the UK, Early Intensive Behavioural Intervention [EIBI] programmes typically are conducted within the homes of children with autism. Despite evidence for their effectiveness in producing appreciable developmental gains in children with autism, a concern expressed about EIBI programmes is that stressful effects from the high levels…
Descriptors: Grounded Theory, Educational Needs, Intervention, Autism
Mak, Winnie W. S.; Ho, Gladys S. M. – Journal of Applied Research in Intellectual Disabilities, 2007
Background: In this study, we tested the effects of three different coping strategies (i.e. problem-focused, emotion-focused and relationship-focused coping) on both positive and negative caregiving perceptions. Materials and Methods: Two hundred and twelve Chinese mothers of children with intellectual disability from a major non-governmental…
Descriptors: Mental Retardation, Family Environment, Mothers, Coping