Genetic testing is recommended as part of an autism assessment, and most parents support genetic testing for their minor children. However, the impact on parents of receiving a monogenetic/ copy number variant diagnosis for autism in their child is not well understood. To explore this, we surveyed and interviewed parents of children in the SPARK…

Autism spectrum disorder (ASD) has a significant impact on the quality of life (QoL) of families. This study aimed to examine, for parents of children with ASD, the dyadic effect of each parent's coping strategy on the perception of the impact of ASD on their QoL. In total, 164 couples completed self-report questionnaires, including the…

Mothers and fathers of children on the autism spectrum may differ in their perception of their interpersonal resources and risk factors. Fathers (114) and mothers (507) of children on the autism spectrum participated in the study. Fathers (vs. mothers) reported lower interpersonal resources (interpersonal emotion regulation and perceived support…

Loneliness has been associated with several adverse psychosocial outcomes in childhood and adolescence. The present study aimed to investigate feelings of loneliness and social dissatisfaction in school-aged typically-developing (TD) siblings of children with an autism spectrum disorder (ASD). For this purpose, 118 siblings of children with ASD…

The post-secondary transition for autistic youth is a complex process, with hopes and expectations serving as malleable mediators often overlooked in research and practice. Career awareness, exploration, and counseling services play a critical role in facilitating vocational transition, but the vocational hopes and expectations of autistic youth…

Objective: The aim of this study was to explore the range of experiences encountered by parents and caretakers of children with autism spectrum disorder. Materials and methods: An inductive conventional content analysis approach was utilized for this study. Twenty-four (N = 24) parent responses to open-ended questions about their experience…

The aim of this study is to examine perceived social support and levels of happiness in mothers of children with autism spectrum disorder. The study group of the research consists of 30 mothers providing primary care to 30 subjects (5 girls and 25 boys) aged 7-25 attending the Armagan Dönertas Handicapped Children Education and Rehabilitation…

Parental stress among parents of children with autism spectrum disorder (ASD) is well-documented in the literature. This study used the mediation model to investigate the relationship between the phenomenon of affiliate stigma and parental stress among parents of children diagnosed with ASD. This cross-sectional study involved 196 parents between…

Caregivers of children with autism spectrum disorder (ASD) experience greater stress, expressed emotion (EE), and affiliate stigma than caregivers of children without ASD. Siblings of children with ASD often experience greater negative functioning than siblings of individuals without ASD. The current study found significant interrelations among…

Many autistic children have co-occurring behavioural problems influencing core autism symptomology potentially relevant for intervention planning. Parental Expressed Emotion -- reflecting critical, hostile and overprotective comments -- contributes to understanding and predicting behaviour in autistic school-aged children, adolescents and adults…

The aim of the study was to examine the relationship between parental stress and parental depression symptoms. A total of 67 mothers took part in this study, of whom 39 mothers of children with autism spectrum disorder (ASD) and 28 mothers of typically developing children. The self-reported measures of the Parental Stress Index III and the…

In Part 1 of this UK-based study, across four timepoints between March and October 2020, autistic children and young people showed higher levels of parent-reported depression and anxiety symptoms than those with other special educational needs and disabilities. In this study, we draw on qualitative data from 478 parents/carers of autistic pupils…

To investigate the contribution made by autistic children's Challenging Behaviour (CB) to their parents' anxiety and depression, parents of 32 autistic boys and 32 autistic girls (aged 6 to 18 years) completed standardised instruments on their children's behaviour and their own anxiety and depression. Significant associations were found between…

The purpose of this qualitative study was to evaluate a summer music camp, designed using principles of Universal Design for Learning, for children with disabilities. Data included one parent-child group interview, a children's musical self-efficacy rating scale, children's drawings, and children's explanations of their drawings. Participants were…

We examined the effects of insurance type on health service utilization among children with autism spectrum disorder (ASD) following autism insurance reform by analyzing the most recent data from the 2019 National Survey of Children's Health. Families with private insurance were less likely to report that their health insurance covered needed…