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Forslund, Tommie; Fernqvist, Stina; Tegler, Helena – Journal of Applied Research in Intellectual Disabilities, 2022
Background: Parents with intellectual disability are vulnerable to parenting stress and overwhelming life events. The COVID-19 pandemic constitutes a potentially overwhelming event, but there is little knowledge concerning the effects on parents' caregiving. The present study aimed to fill this gap. Method: Semi-structured interviews with 10…
Descriptors: Parents, Intellectual Disability, Child Rearing, Stress Variables
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Kurtek, Pawel – Journal of Applied Research in Intellectual Disabilities, 2020
Although interactions among parents and Youth with Mild Intellectual Disability (MID) may be stressful at times, most studies focus on the effects of stressful interactions on the parents. This study considers the Youth's perspective -- particularly their beliefs about the reason for the parent's actions as well as how they would respond in the…
Descriptors: Parents, Mild Intellectual Disability, Youth, Attribution Theory
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Fernández-Ávalos, María Inmaculada; Pérez-Marfil, María Nieves; Ferrer-Cascales, Rosario; Cruz-Quintana, Francisco; Fernández-Alcántara, Manuel – Journal of Applied Research in Intellectual Disabilities, 2021
Background: The diagnosis of intellectual disability in children can produce complex grief-related feelings in their parents. Previous studies have focused on the moment of the diagnosis or the early life of the children, and little research has been conducted on their feelings of grief in adulthood. The objective was to analyse the process of…
Descriptors: Intellectual Disability, Children, Parent Attitudes, Grief
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Beighton, Carole; Wills, Jane – Journal of Applied Research in Intellectual Disabilities, 2019
Background: Identifying what parents describe to be positive about parenting their child who has intellectual disabilities is important for professional practice and how parents can be supported over a lifespan. Methods: Studies in which parents describe the positive aspects of parenting their child with intellectual disabilities were identified…
Descriptors: Parent Attitudes, Parenting Styles, Parent Child Relationship, Intellectual Disability
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Celik, Pelin; Kara Uzun, Aysun – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Previous studies have focused mostly on the negative experiences of parents of children with Down syndrome. We aimed to explore both the stressful experiences and coping strategies of parents from a non-Western country. Methods: Twenty-six parents of children aged 8-48 months with Down syndrome were included. Semi-structured interviews…
Descriptors: Stress Variables, Parent Attitudes, Parent Child Relationship, Down Syndrome
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Susanty, Dessy; Noel, Pia; Sabeh, Meta Saraswati; Jahoda, Andrew – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Evidence and awareness of the importance of culturally adapting psychosocial interventions is growing. The aim of this paper is to systematically review studies on cultural adaptations of psychosocial interventions for parents and their children with intellectual disabilities, in low- and middle-income countries. Methods: Studies were…
Descriptors: Intellectual Disability, Children, Parents, Intervention
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Walker, Ruth; Belperio, Irene; Gordon, Sally; Hutchinson, Claire; Rillotta, Fiona – Journal of Applied Research in Intellectual Disabilities, 2020
Background: Little is known about how older parent caregivers from culturally and linguistically diverse (CALD) backgrounds experience caring for their family member with intellectual disability into late life. Method: In-depth semi-structured interviews were carried out with N = 19 family caregivers aged 50-91 from ten Italian and four Greek…
Descriptors: Coping, Stress Variables, Older Adults, Caregivers
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Lee, Gloria K.; Shivers, Carolyn M. – Journal of Applied Research in Intellectual Disabilities, 2019
Background: Although studies have examined quality of life (QOL) among family caregivers of individuals with autism spectrum disorder (ASD), little is known about potential differences in QOL based on the age of the individual with ASD, particularly in relation to caregivers' needs, beliefs and coping mechanisms. Method: This study investigated…
Descriptors: Mental Health, Physical Health, Young Adults, Autism
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Thackeray, Lisa A.; Eatough, Virginia – Journal of Applied Research in Intellectual Disabilities, 2018
Background: An in-depth exploration of the experience of midlife fathers of developmentally disabled young adults (aged 19-32 years) was motivated by a dearth of research in this area (McKnight, "PsyPAG Quarterly," 94, 2015, 10). Method: Five fathers participated in semi-structured interviews which were subjected to interpretative…
Descriptors: Fathers, Developmental Disabilities, Young Adults, Experience
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Kim, Go-en; Chung, Soondool – Journal of Applied Research in Intellectual Disabilities, 2016
Background: This study examines the utility of Pearlin's caregiving stress model for understanding the caregiving satisfaction of elderly mothers of adult children with intellectual disability. Methods: Mothers living in Seoul, Kyonggi, and Incheon who were 55 years of age or older and providing care for adult children with intellectual disability…
Descriptors: Foreign Countries, Mothers, Caregivers, Stress Variables
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Crabtree, Sara Ashencaen – Journal of Applied Research in Intellectual Disabilities, 2007
Background: This qualitative study discusses family care-giving of children with developmental disabilities in the United Arab Emirates. Findings were reviewed in terms of the influence of culture on gender norms governing parental behaviour and aspirations. Method: An ethnographic approach is used in which parent participants were interviewed…
Descriptors: Mothers, Daughters, Developmental Disabilities, Arabs
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Mak, Winnie W. S.; Ho, Gladys S. M. – Journal of Applied Research in Intellectual Disabilities, 2007
Background: In this study, we tested the effects of three different coping strategies (i.e. problem-focused, emotion-focused and relationship-focused coping) on both positive and negative caregiving perceptions. Materials and Methods: Two hundred and twelve Chinese mothers of children with intellectual disability from a major non-governmental…
Descriptors: Mental Retardation, Family Environment, Mothers, Coping