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Direct linkFreeman, Nerelie C.; Paradis, Pascale – Autism: The International Journal of Research and Practice, 2023
The process of getting an autism diagnosis can be a stressful and uncertain time for families. While the experiences of parents seeking an autism diagnosis for their child have been explored in previous research, the experiences of families with a daughter have been underrepresented. It is likely that their experience is markedly different given…
Descriptors: Parent Role, Autism Spectrum Disorders, Daughters, Clinical Diagnosis
Jurek, Lucie; Leadbitter, Kathy; Falissard, Bruno; Colin, Cyrille; Touzet, Sandrine; Geoffray, Marie-Maude – Autism: The International Journal of Research and Practice, 2023
While the effectiveness of parent-mediated interventions in the field of autism spectrum disorder is well documented, information on the experience of parents involved in parent-mediated interventions is limited. We performed a systematic review with qualitative evidence synthesis to explore the experience of parent-mediated interventions in…
Descriptors: Parent Influence, Parent Role, Intervention, Literature Reviews
Aspasia Stacey Rabba; Jodie Smith; Gabrielle Hall; Vanessa Alexander; Kate Batty; Poulomee Datta; Emma Goodall; Melanie Heyworth; Siobhan Lamb; Wenn Lawson; Rozanna Lilley; Katy Reid; Najeeba Syeda; Elizabeth Pellicano – Autism: The International Journal of Research and Practice, 2025
Successful partnerships between families and schools can substantially improve children's success in and out of school. Yet parents of autistic children often report considerable challenges with their children's education. Almost no research, however, has examined autistic parents' own experiences. We, therefore, sought the views and experiences…
Descriptors: Autism Spectrum Disorders, Mothers, Parent Attitudes, Parent School Relationship
Themis Karaminis; Costas Gabrielatos; Ursula Maden-Weinberger; Geoffrey Beattie – Autism: The International Journal of Research and Practice, 2025
A recent large-scale study on the portrayal of autism in British newspapers revealed a deficit-based coverage, which concentrated on children and boys in particular, typically represented from the mothers' perspective. This follow-up study refines these representations, considering how they differ by gender and family role. We analysed 2998 text…
Descriptors: Autism Spectrum Disorders, Newspapers, Social Bias, Attitudes toward Disabilities
Yael Mayer; Mor Cohen-Eilig; Janice Chan; Natasha Kuzyk; Armansa Glodjo; Tal Jarus – Autism: The International Journal of Research and Practice, 2024
Over the past few years, screen-based usage among children and youth has increased significantly, particularly among those with autism. Yet current screen time guidelines do not address the specific needs of autistic children and youth. Therefore, the objective of this study was to develop specific and clear guidelines and strategies that…
Descriptors: Technological Literacy, Children, Adolescents, Autism Spectrum Disorders
Priscilla Brandi Gomes Godoy; Lorna McWilliams; Leticia Rodrigues da Silveira; Mirian de Cesaro Revers Biasão; Fernanda Speggiorin Pereira Alarcão; Leonardo Seda; Renata Generoso Campoli; Holan Liang; Gauri Divan; Kathy Leadbitter; Jonathan Green; Elizabeth Shephard – Autism: The International Journal of Research and Practice, 2024
Effective support for autistic individuals is lacking in Brazil. Few centres offer services and those that do are limited in therapeutic options and geographical location. Paediatric Autism Communication Therapy is a low-intensity, evidence-based parent-mediated social-communication intervention that may be useful for this scenario. This…
Descriptors: Foreign Countries, Parent Role, Interpersonal Communication, Communication Skills
Lee, Chung eun; Burke, Meghan M.; DaWalt, Leann Smith; Li, Chak; Taylor, Julie Lounds – Autism: The International Journal of Research and Practice, 2022
Youth with autism spectrum disorder (ASD) face challenges accessing needed services as they transition to adulthood. Correlates of service access identified in the literature--such as family resources, race/ethnicity, or youth functioning--can be difficult to change and may not be feasible targets for intervention. This study focused on a…
Descriptors: Parent Role, Advocacy, Autism, Pervasive Developmental Disorders
Jessie B. Northrup; Kaitlyn B. Cortez; Carla A. Mazefsky; Jana M. Iverson – Autism: The International Journal of Research and Practice, 2024
Emotion dysregulation is a common challenge for autistic individuals, yet research examining early emotion regulation processes in autism is lacking. The present study examined negative emotion expression and parent-child co-regulatory processes in 18-month-old younger siblings of autistic children (children with an "elevated likelihood"…
Descriptors: Emotional Response, Self Control, Autism Spectrum Disorders, Parent Influence
Phoebe Jordan; Carla Wallace-Watkin; Jessica Tupou; Sarah Pillar; Hannah Waddington – Autism: The International Journal of Research and Practice, 2025
There has been considerable research into the barriers and facilitators of coaching parents of autistic children. However, little is known about parents' preferences for this approach compared to support provided directly by a clinician to an autistic or potentially autistic child. This study aimed to examine parents' relative preferences for…
Descriptors: Foreign Countries, Autism Spectrum Disorders, Parents, Parent Attitudes
Borbála Gabriella Koltai; Eszter Pados; József Rácz – Autism: The International Journal of Research and Practice, 2025
This study addresses the underrepresentation of fathers in autism research, particularly those with adult-aged autistic offspring. The authors explored the lifelong experiences and interpretations of fathers raising their autistic sons. Ten Hungarian fathers participated in a one-time semi-structured interview. Interpretative phenomenological…
Descriptors: Foreign Countries, Autism Spectrum Disorders, Fathers, Sons
Guthrie, Whitney; Wetherby, Amy M.; Woods, Juliann; Schatschneider, Christopher; Holland, Renee D.; Morgan, Lindee; Lord, Catherine E. – Autism: The International Journal of Research and Practice, 2023
Robust evidence supports the efficacy of early autism intervention. Despite broad consensus that earlier intervention leads to better outcomes, evidence for this has been limited to correlational studies. This study examined timing effects of the Early Social Interaction (ESI) model, a parent-implemented intervention, using a complete crossover…
Descriptors: Autism Spectrum Disorders, Early Intervention, Toddlers, Interaction
Download full textSchertz, Hannah H.; Liu, Xinyue; Odom, Samuel L.; Baggett, Kathleen M. – Autism: The International Journal of Research and Practice, 2022
How parents support social learning at the preverbal level for toddlers with autism is rarely reported, limiting the field's understanding of factors that may influence early development of social competency. As a central challenge in autism that is resistant to intervention, preverbal social initiating is an important indicator of social…
Descriptors: Toddlers, Autism Spectrum Disorders, Social Development, Parent Role
Edmunds, Sarah R.; Frost, Kyle M.; Sheldrick, R. Chris; Bravo, Alice; Straiton, Diondra; Pickard, Katherine; Grim, Valerie; Drahota, Amy; Kuhn, Jocelyn; Azad, Gazi; Pomales Ramos, Anamiguel; Ingersoll, Brooke; Wainer, Allison; Ibanez, Lisa V.; Stone, Wendy L.; Carter, Alice; Broder-Fingert, Sarabeth – Autism: The International Journal of Research and Practice, 2022
Defining the central components of an intervention is critical for balancing fidelity with flexible implementation in both research settings and community practice. Implementation scientists distinguish an intervention's essential components (thought to cause clinical change) and adaptable periphery (recommended, but not necessary). While…
Descriptors: Intervention, Autism, Pervasive Developmental Disorders, Fidelity
Monique Seymour; Laura Pecora; Grace McMahon; Catherine E. Wood; Mark Feinberg; Rob Hock; Rebecca Giallo – Autism: The International Journal of Research and Practice, 2025
Most research on the mental health of fathers with children on the autism spectrum has been cross-sectional. Little is currently known about the trajectories of fathers' mental health across their parenting journey. Using longitudinal latent class analysis, this study aimed to: (1) report on the estimates of fathers' psychological distress across…
Descriptors: Foreign Countries, Fathers, Autism Spectrum Disorders, Parent Attitudes
Carruthers, Sophie; Mleczko, Natasha; Page, Stephanie; Ahuja, Shalini; Ellis, Ceri; Howlin, Patricia; Leadbitter, Kathy; Taylor, Lauren; Slonims, Vicky; Charman, Tony – Autism: The International Journal of Research and Practice, 2023
One core component of the Paediatric Autism Communication Therapy--Generalised involves supporting parents to change their interaction and communication style with their child. This behaviour change has been found to affect child outcomes. Implementation science methodologies offer a range of opportunities to investigate how interventions are…
Descriptors: Autism Spectrum Disorders, Parent Role, Parent Child Relationship, Intervention
