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"Autism Voices": A Novel Method to Access First-Person Perspective of Autistic Youth
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Courchesne, Valérie; Tesfaye, Rackeb; Mirenda, Pat; Nicholas, David; Mitchell, Wendy; Singh, Ilina; Zwaigenbaum, Lonnie; Elsabbagh, Mayada – Autism: The International Journal of Research and Practice, 2022
Opportunities to communicate first-person perspectives are essential for self-determination. However, many autistic youth are excluded from sharing their perspectives, specifically those who are minimally verbal or with lower intellectual functioning. Current challenges to capturing their voices include a lack of appropriate inclusive…
Descriptors: Autism Spectrum Disorders, Interviews, Nonverbal Communication, Communication Strategies
Effectiveness of a Parent-Mediated Intervention for Toddlers with Autism Spectrum Disorder: Evidence from a Large Community Implementation
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Brian, Jessica; Drmic, Irene; Roncadin, Caroline; Dowds, Erin; Shaver, Chantelle; Smith, Isabel M.; Zwaigenbaum, Lonnie; Sacrey, Lori-Ann R.; Bryson, Susan E. – Autism: The International Journal of Research and Practice, 2022
Recent efforts have focused on developing and evaluating early intervention for toddlers with probable or emerging autism spectrum disorder. Parent-mediated approaches have gained traction, with mounting evidence of efficacy, but a research-to-practice gap exists, and community effectiveness remains to be firmly established. We report outcomes of…
Descriptors: Autism Spectrum Disorders, Early Intervention, Toddlers, Parents
Construct Validity of the Autism Classification System of Functioning: Social Communication (ACSF:SC) across Childhood and Adolescence
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Tajik-Parvinchi, Diana; Rosenbaum, Peter; Hidecker, Mary Jo Cooley; Duku, Eric; Zwaigenbaum, Lonnie; Roncadin, Caroline; Georgiades, Stelios; Gentles, Stephen; Fang, Hanna; Di Rezze, Briano – Journal of Autism and Developmental Disorders, 2023
This study examined the construct validity of the Autism Classification System of Functioning: Social Communication (ACSF). Participants included 145 parents of children with autism (2-19 years). The degree of convergent and discriminant validity between parent reported ACSF and subscales from Social Responsiveness Scale 2nd edition and Behavior…
Descriptors: Children, Adolescents, Autism Spectrum Disorders, Parents
Parent Support of Preschool Peer Relationships in Younger Siblings of Children with Autism Spectrum Disorder
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Estes, Annette; Munson, Jeffrey; St. John, Tanya; Dager, Stephen R.; Rodda, Amy; Botteron, Kelly; Hazlett, Heather; Schultz, Robert T.; Zwaigenbaum, Lonnie; Piven, Joseph; Guralnick, Michael J.; Chappell, J. C.; Dager, S.; Shaw, D; McKinstry, R.; Constantino, J.; Pruett, J.; Schultz, R.; Paterson, S.; Evans, A. C.; Collins, D. L.; Pike, G. B.; Kostopolous, P.; Das, S.; Gerig, G.; Styner, M.; Gu, H.; Sullivan, P.; Wright, G. – Journal of Autism and Developmental Disorders, 2018
Preschool-aged siblings of children with ASD are at high-risk (HR) for ASD and related challenges, but little is known about their emerging peer competence and friendships. Parents are the main providers of peer-relationship opportunities during preschool. Understanding parental challenges supporting early peer relationships is needed for optimal…
Descriptors: Parents, Parent Participation, Peer Relationship, Birth Order
Screening for Behavioral Signs of Autism Spectrum Disorder in 9-Month-Old Infant Siblings
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Sacrey, Lori-Ann R.; Zwaigenbaum, Lonnie; Bryson, Susan; Brian, Jessica; Smith, Isabel M.; Roberts, Wendy; Szatmari, Peter; Vaillancourt, Tracy; Roncadin, Caroline; Garon, Nancy – Journal of Autism and Developmental Disorders, 2021
Despite considerable progress in characterizing the early signs of autism spectrum disorder (ASD), more remains to be learned about how symptoms emerge in the first year of life. Parents with a new baby who already had at least one biological child diagnosed with ASD (high-risk) or no family history of ASD (low-risk) completed two measures when…
Descriptors: Siblings, Screening Tests, Autism, Pervasive Developmental Disorders
Parent-Reported Rates and Clinical Correlates of Suicidality in Children with Autism Spectrum Disorder: A Longitudinal Study
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Hunsche, Michelle C.; Saqui, Sonja; Mirenda, Pat; Zaidman-Zait, Anat; Bennett, Teresa; Duku, Eric; Elsabbagh, Mayada; Georgiades, Stelios; Smith, Isabel M.; Szatmari, Peter; Ungar, Wendy J.; Vaillancourt, Tracy; Waddell, Charlotte; Zwaigenbaum, Lonnie; Kerns, Connor M. – Journal of Autism and Developmental Disorders, 2020
This study investigated rates of suicidal ideation (SI) and suicidal and/or self-injurious behaviour (SSIB) reported by parents on the Child Behavior Checklist for 178 children with ASD over four annual assessments (ages 7-11 years). Analyses examined the frequency and persistence of SI and SSIB, and the association of SI and SSIB at any time…
Descriptors: Suicide, Self Destructive Behavior, Children, Check Lists
Assuming Ability of Youth with Autism: Synthesis of Methods Capturing the First-Person Perspectives of Children and Youth with Disabilities
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Tesfaye, Rackeb; Courchesne, Valerie; Yusuf, Afiqah; Savion-Lemieux, Tal; Singh, Ilina; Shikako-Thomas, Keiko; Mirenda, Pat; Waddell, Charlotte; Smith, Isabel M.; Nicholas, David; Szatmari, Peter; Bennett, Terry; Duku, Eric; Georgiades, Stelios; Kerns, Connor; Vaillancourt, Tracy; Zaidman-Zait, Anat; Zwaigenbaum, Lonnie; Elsabbagh, Mayada – Autism: The International Journal of Research and Practice, 2019
Most research regarding youth with autism spectrum disorder has not focused on their first-person perspectives providing limited insight into methodologies best suited to eliciting their voices. We conducted a synthesis of methods previously used to obtain the first-person perspectives of youth with various disabilities, which may be applicable to…
Descriptors: Autism, Pervasive Developmental Disorders, Youth, Disabilities
Brief Report: Preliminary Feasibility of the TEDI: A Novel Parent-Administered Telehealth Assessment for Autism Spectrum Disorder Symptoms in the First Year of Life
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Talbott, Meagan R.; Dufek, Sarah; Zwaigenbaum, Lonnie; Bryson, Susan; Brian, Jessica; Smith, Isabel M.; Rogers, Sally J. – Journal of Autism and Developmental Disorders, 2020
Families with early concerns about infant symptoms of ASD have limited access to experienced professionals for screening and guidance. Telehealth has been used to reduce access disparities in other pediatric populations and has shown promise in parent-implemented interventions for ASD. We investigated the feasibility of a novel level-2 telehealth…
Descriptors: Autism, Pervasive Developmental Disorders, Infants, Parents
Psychometric Properties of the Spence Children's Anxiety Scale: Parent Report in Children with Autism Spectrum Disorder
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Jitlina, Katia; Zumbo, Bruno; Mirenda, Pat; Ford, Laurie; Bennett, Teresa; Georgiades, Stelios; Waddell, Charlotte; Smith, Isabel M.; Volden, Joanne; Duku, Eric; Zwaigenbaum, Lonnie; Szatmari, Peter; Vaillancourt, Tracy; Elsabbagh, Mayada – Journal of Autism and Developmental Disorders, 2017
Although anxiety is frequently reported in children with autism spectrum disorder (ASD), existing anxiety scales are often psychometrically inappropriate for this population. This study examined the internal structure, reliability, convergent and discriminant validity of the Spence Children's Anxiety Scale-Parent Report (SCAS-P; Spence 1999) in…
Descriptors: Autism, Pervasive Developmental Disorders, Psychometrics, Children
Parent and Health Care Provider Perspectives Related to Disclosure of Autism Spectrum Disorder in Pediatric Emergency Departments
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Muskat, Barbara; Greenblatt, Andrea; Nicholas, David B.; Ratnapalan, Savithiri; Cohen-Silver, Justine; Newton, Amanda S.; Craig, William R.; Kilmer, Christopher; Zwaigenbaum, Lonnie – Autism: The International Journal of Research and Practice, 2016
Children and youth with autism spectrum disorder presenting in emergency departments face potential cognitive, sensory, and behavioral challenges, and it is crucial for providers to be aware of their unique needs. However, disclosure of a child's autism spectrum disorder can be complex for parental caregivers and is not well understood. This…
Descriptors: Autism, Pervasive Developmental Disorders, Children, Hospitals
The Autism Parent Screen for Infants: Predicting Risk of Autism Spectrum Disorder Based on Parent-Reported Behavior Observed at 6-24 Months of Age
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Sacrey, Lori-Ann R.; Bryson, Susan; Zwaigenbaum, Lonnie; Brian, Jessica; Smith, Isabel M.; Roberts, Wendy; Szatmari, Peter; Vaillancourt, Tracy; Roncadin, Caroline; Garon, Nancy – Autism: The International Journal of Research and Practice, 2018
This study examined whether a novel parent-report questionnaire, the Autism Parent Screen for Infants, could differentiate infants subsequently diagnosed with autism spectrum disorder from a high-risk cohort (siblings of children diagnosed with autism spectrum disorder (n = 66)) from high-risk and low-risk comparison infants (no family history of…
Descriptors: Autism, Infants, Pervasive Developmental Disorders, Parents
Immunization Uptake in Younger Siblings of Children with Autism Spectrum Disorder
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Kuwaik, Ghassan Abu; Roberts, Wendy; Zwaigenbaum, Lonnie; Bryson, Susan; Smith, Isabel M.; Szatmari, Peter; Modi, Bonnie M.; Tanel, Nadia; Brian, Jessica – Autism: The International Journal of Research and Practice, 2014
Background: Parental concerns persist that immunization increases the risk of autism spectrum disorder, resulting in the potential for reduced uptake by parents of younger siblings of children with autism spectrum disorder ("younger sibs"). Objective: To compare immunization uptake by parents for their younger child relative to their…
Descriptors: Siblings, Autism, Pervasive Developmental Disorders, Immunization Programs
Cortical Serotonin Type-2 Receptor Density in Parents of Children with Autism Spectrum Disorders
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Goldberg, Jeremy; Anderson, George M.; Zwaigenbaum, Lonnie; Hall, Geoffrey B. C.; Nahmias, Claude; Thompson, Ann; Szatmari, Peter – Journal of Autism and Developmental Disorders, 2009
Parents (N = 19) of children with autism spectrum disorders (ASD) and adult controls (N = 17) underwent positron emission tomography (PET) using [[superscript 18]F]setoperone to image cortical serotonin type-2 (5-HT2) receptors. The 5-HT2 binding potentials (BPs) were calculated by ratioing [[superscript 18]F]setoperone intensity in regions of…
Descriptors: Autism, Parents, Pervasive Developmental Disorders, Control Groups
Phenotypic Overlap between Core Diagnostic Features and Emotional/Behavioral Problems in Preschool Children with Autism Spectrum Disorder
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Georgiades, Stelios; Szatmari, Peter; Duku, Eric; Zwaigenbaum, Lonnie; Bryson, Susan; Roberts, Wendy; Fombonne, Eric; Mirenda, Pat; Smith, Isabel; Vaillancourt, Tracy; Volden, Joanne; Waddell, Charlotte; Thompson, Ann – Journal of Autism and Developmental Disorders, 2011
This study examined the phenotypic overlap between core diagnostic features and emotional/behavioral problems in a sample of 335 preschool children with autism spectrum disorder (ASD). Results from principal component analysis (2 components; 49.70% variance explained) suggested substantial phenotypic overlap between core diagnostic features and…
Descriptors: Autism, Preschool Children, Pervasive Developmental Disorders, Behavior Problems
Alexithymia in Parents of Children with Autism Spectrum Disorder
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Szatmari, Peter; Georgiades, Stelios; Duku, Eric; Zwaigenbaum, Lonnie; Goldberg, Jeremy; Bennett, Terry – Journal of Autism and Developmental Disorders, 2008
Given the recent findings regarding the association between alexithymia and Autism Spectrum Disorder (ASD) and the accumulating evidence for the presence of the Broader Autism Phenotype (BAP) in relatives of individuals with ASD, we further explored the construct of alexithymia in parents of children with ASD as a potential part of the BAP. We…
Descriptors: Control Groups, Autism, Parents, Psychometrics