Background: Many fathers with intellectual disabilities experience some difficulties in fulfilling their parenting role due external factors. The quality of their parenting depends on various factors, including the availability and adequacy of support. The aim of this study was to understand the lived experiences associated with social support of…

Background: This article reports on the perspectives of fathers with a learning disability in England about being fathers and the support they have received. Although there is an established literature that considers parenting with a learning disability, few studies have focused on the perspectives of fathers. Method: We adopted a qualitative…

The purpose of this study was to examine the challenges that Hispanic parents in the autism spectrum disorder encounter with their child in the autism spectrum disorder, and how these difficulties impact their quality of life. This study is important because there is an increase in the number of adults in the spectrum who have not received the…

Background: There might be a need for support for families where the mother has an intellectual disability, in order to counteract the effects of potential parental inadequacy and other detrimental aspects of the family situation. The purpose of this study was to describe how professionals characterized such support and the collaboration required.…

This paper considers the impact of research and development work around parenting by adults with a learning difficulty undertaken at the Norah Fry Research Centre (NFRC) since 2005. It discusses how our understanding of the support needs of parents with learning difficulties grew through an initial mapping study which led to the concept of…

Background: Despite an increase in international studies examining the experiences of parents with intellectual impairments and their children, few have utilised population-based data. This study investigated the behavioural and cognitive outcomes of 3-year-old US children of mothers with intellectual impairments compared with children of mothers…

Focus groups with youth and their parents were used in this research study to better understand the impact of the On Belay Program, an adventure-based support group for youth whose parents have cancer. Results demonstrated that challenge course programs reduce isolation in youth by creating a caring community and normalizing the cancer experience.…

There are increasing numbers of parents with a learning disability living in the community although the exact numbers are unknown. Existing research suggests that this group of parents faces disadvantage and discrimination on a number of levels. This study reports on the findings of a small pilot study that examined the lived experience of five…

Christine lives with her three children, Elizabeth, George and Louise. Following the unexpected death of her husband in December 2001, she has been offered practical support into the home, so that she can continue to look after her children. It has been a long struggle, getting the right support package into the home, and here, we tell Christine's…

Background: This longitudinal study of 20 average and bright adults with parents with cognitive difficulties follows a study 20 years earlier of their childhood adaptation to their parents. Method: Semistructured interviews about life situation and changes and perception of family-of-origin. Results: The participants' socioeconomic status changed…

This paper examines the development of fieldwork methodology in a study that investigated the parenting experiences and parent support needs of a group of parents with an intellectual disability. It considers the ways in which the original planning for the project changed as the fieldwork unfolded, requiring adaptations to our methodological…

Background: Given appropriate supports mothers with intellectual disabilities can successfully raise their children. Historically, this support has been provided by extended family members while support from formal services is a recent development. This paper examines the role of extended family members in assisting mothers with intellectual…

Background: Studies support the use of family-centred practices in service delivery to families where a parent has an intellectual disability. This paper examines the importance of such practices to parents. Materials and Methods: Interview responses from 32 parents with intellectual disability were coded by two independent raters as reflecting…

The international literature on parents with intellectual disabilities (ID) has focused on concerns about their ability to parent and strategies to enable them to develop parenting skills. Traditionally, the views and experiences of parents themselves have not been the focus of studies. With this in mind, the authors talked to a cohort of 30…

This study examined agreement between recipients and providers about social support and personality. One hundred daughter caregivers of a parent with Alzheimer's disease and each caregiver's most important support provider independently reported supportive behaviors provided to caregivers, the perceived supportiveness of the provider, and…