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Direct linkAnderson, Emily E.; Hurley, Elisa A.; Serpico, Kimberley; Johnson, Ann; Rowe, Jessica; Singleton, Megan; Bierer, Barbara E.; Cholka, Brooke; Chaudhari, Swapnali; Fernandez Lynch, Holly – Research Ethics, 2023
The primary purpose of Institutional Review Boards (IRBs) is to protect the rights and welfare of human research participants. Evaluation and measurement of how IRBs satisfy this purpose and other important goals are open questions that demand empirical research. Research on IRBs, and the Human Research Protection Programs (HRPPs) of which they…
Descriptors: Research, Ethics, Stakeholders, Barriers
Sankary, Lauren R.; Zelinsky, Megan E.; Ford, Paul J.; Blackstone, Eric C.; Fox, Robert J. – Research Ethics, 2023
The ethical recruitment of participants with neurological disorders in clinical research requires obtaining initial and ongoing informed consent. The purpose of this study is to characterize barriers faced by research personnel in obtaining informed consent from research participants with neurological disorders and to identify strategies applied…
Descriptors: Informed Consent, Medical Research, Neurological Impairments, Barriers
Constand, Marissa; Tanel, Nadia; Ryan, Stephen E. – Research Ethics, 2015
We systematically reviewed contemporary literature to create an evidence-informed framework for research studies involving children and adolescents who can assent to participate. We searched seven citation indices to locate peer-reviewed research published in English language journals between 2000 and 2012. After screening 1,231 titles and…
Descriptors: Ethics, Research Methodology, Children, Adolescents
