In this article we describe how an advance care planning (ACP) program was developed, implemented, and evaluated. Our aim was to improve ACP in palliative care for people with intellectual disability (ID). The program was based on 10 competencies needed for ACP and was developed in a co-design process with people with ID, relatives, and…

Public libraries are ideal contexts for supporting child development and family involvement (Families and Work Institute, 2015; IMLS, 2013). Families with children often attend public libraries to participate in educational programming and experiences, yet university-based developmental scientists who study how people develop and adapt across the…

Each year, the Interagency Autism Coordinating Committee (IACC) releases a list of scientific advances that represent significant progress in the field. The "2019 IACC Summary of Advances" provides short, plain language summaries of the top research breakthroughs selected by the IACC from a pool of research articles nominated by the…

The need for evidence-based non-pharmacological community programs to improve care of older adults with dementia is self-evident, considering the sheer numbers of affected individuals; the emotional, physical, and financial toll on affected individuals and their caregivers; the impact on our health care system; and the growing availability of…

Asthma is a chronic respiratory disease that affects millions of children and adolescents each year. In 2009, 7.1 million children ages 0 to 17 years were reported to have asthma. Unfortunately, when children and teens are unable to manage and cope with their disease, it can compromise their physical, academic, and social development. Therefore,…

In the Baltimore region, a successful housing mobility program is providing families living in very disadvantaged inner city communities with a new home and a chance for a new life. Minority voucher holders in the federal Housing Choice Voucher Program (formerly titled Section 8) have often been limited to living in "voucher submarkets"…

This report is the result of a year-long effort by the National Council on Disability (NCD) to identify valid federal data and to describe the status of the U.S. population of Americans with disabilities. During the past 30 years, advocates, policymakers, and a variety of public and private organizations have undertaken significant efforts to…

Describes the Nursing Home Community Council Project which was developed to improve the quality of resident life through organized community involvement. Reports issues in organizing nursing homes, the group-to-group approach, and providing advocacy in the context of service. (Author/ABB)

This article describes a project to improve the health and quality of life of minority ethnic communities in the West Midlands. The project demonstrates the difference adult learning can make to agendas such as health and community cohesion. "Tandrusti" is a Punjabi word meaning a sound condition of the body or mind. It's also the name…

Operated as a pair of philanthropic funds, the Hyde Family Foundations works to improve the quality of life in Memphis. In order to counteract persistent socioeconomic and racial barriers and improve opportunities for underserved families in Memphis, the foundations have made improving the city's education system a priority of its grantmaking.…

Supports for families of young children with disabilities--as provided by Part C of the Individuals with Disabilities Education Act--are vital, according to a study that assessed family outcomes at the end of early intervention near their child's third birthday. This report summarizes the main findings of the study in response to the five broad…

Efforts to qualitatively measure the effectiveness of military recreational programs have met only negligible success. This is due in part to a lack of definitive data and a lack of scientific assessment tools for adequately measuring performance objectives. (JN)

Attrition in weight loss programs is a complex process, influenced by patients' pretreatment characteristics and treatment variables, but available data are contradictory. Only a few variables have been confirmed by more than one study as relevant risk factors, but recently new data of clinical utility emerged from "real world" large observational…

Background: Actual practice in the Netherlands has shown the need of an instrument to evaluate the quality of support plans. This article describes the development of an instrument for such evaluation. Method: The concept of quality of life (QOL) domains were used to develop an instrument to evaluate the quality of support plans within a QOL…

The Community Care Organization-Milwaukee, sought to provide care at less cost and with higher resultant quality of life than nursing home care. Most frequently used services were transportation and nutrition. Much of the cost savings resulted from reduced hospitalization and nursing home utilization. (Author)