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Kim, Jinsook; Gray, Jennifer A. – Intellectual and Developmental Disabilities, 2021
We evaluated the effectiveness of an online training on palliative care knowledge and self-efficacy among staff working with people with intellectual and developmental disabilities (IDD) using a one-group pretest-posttest design. Staff from four nonprofit residential and day services organizations in a U.S. Midwestern state participated. Among 132…
Descriptors: Online Courses, Training, Knowledge Level, Self Efficacy
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Voss, Hille; Vogel, Anique G. F. M.; Wagemans, Annemieke M. A.; Francke, Anneke L.; Metsemakers, Job F. M.; Courtens, Annemie M.; de Veer, Anke J. E. – Intellectual and Developmental Disabilities, 2021
In this article we describe how an advance care planning (ACP) program was developed, implemented, and evaluated. Our aim was to improve ACP in palliative care for people with intellectual disability (ID). The program was based on 10 competencies needed for ACP and was developed in a co-design process with people with ID, relatives, and…
Descriptors: Intellectual Disability, Planning, Medical Services, Quality of Life
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Wilson, Thomas; Geer, Betty; Guerra, Nichole; Karber, Brystal; Ervin, David A. – Intellectual and Developmental Disabilities, 2020
Health disparities are documented between adults with intellectual and developmental disabilities (IDD) and neurotypical peers. As progress has been slow in improving health outcomes in people with IDD, the aim of this retrospective study was to compare effectiveness of a new Cross-Systems Care Integration (CSCI) model of care coordination to…
Descriptors: Access to Health Care, Adults, Intellectual Disability, At Risk Persons
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Bachman, Sara S.; Comeau, Margaret; Tobias, Carol; Allen, Deborah; Epstein, Susan; Jantz, Kathryn; Honberg, Lynda – Intellectual and Developmental Disabilities, 2012
We provide the first descriptive summary of selected programs developed to help expand the scope of coverage, mitigate family financial hardship, and provide health and support services that children with intellectual and developmental disabilities need to maximize their functional status and quality of life. State financing initiatives were…
Descriptors: Program Effectiveness, Quality of Life, Developmental Disabilities, Mental Retardation
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Badia, Marta; Orgaz-Baz, M. Begona; Verdugo, Miguel-Angel; Martinez-Aguirre, M. Magdalena; Longo-Araujo-de-Melo, Egmar; Ullan-de-la-Fuente, Ana M. – Intellectual and Developmental Disabilities, 2012
"Participation"--defined as engagement in life situations, including leisure and recreational activities--is associated with the improvement of people with disabilities' quality of life. Several specific instruments assess leisure, but none of them has been adapted to the Spanish context. The goal of this study is to adapt and validate the Spanish…
Descriptors: Disabilities, Program Effectiveness, Quality of Life, Recreational Activities