Genetic testing is recommended as part of an autism assessment, and most parents support genetic testing for their minor children. However, the impact on parents of receiving a monogenetic/ copy number variant diagnosis for autism in their child is not well understood. To explore this, we surveyed and interviewed parents of children in the SPARK…

Background: Rett syndrome (RTT) causes multiple disabilities with a lifelong need for substantial care, placing a tremendous lifelong responsibility on the parents. Parenting an individual with RTT can therefore be challenging. Research on the psychological aspects of parenting individuals with RTT is limited and unclear. We aimed to identify and…

Amid the intensifying phenomenon of educational "involution," parental anxiety regarding education has become a widespread social issue, prompting parents to engage in reflection and adjust their educational strategies accordingly. This paper, framed by Archer's reflexivity theory, employs the method of digital ethnography to examine the…

Autism spectrum disorder (ASD) has a significant impact on the quality of life (QoL) of families. This study aimed to examine, for parents of children with ASD, the dyadic effect of each parent's coping strategy on the perception of the impact of ASD on their QoL. In total, 164 couples completed self-report questionnaires, including the…

Background: This qualitative study explored the attitudes and experiences of Hong Kong Chinese parents/carers relating to the sexual needs of their child with intellectual disabilities. Methods: Semi-structured interviews were conducted in Hong Kong with seven parents/carers applying Interpretative Phenomenological Analysis to explore their…

Background: Families in high-risk communities for COVID-19 transmission experienced a disproportionate burden during the pandemic. This study assessed these families' needs, changes in children's well-being, and perceptions related to the pandemic. Methods: Four online surveys were administered January 2021 to September 2021 to parents of…

Mothers and fathers of children on the autism spectrum may differ in their perception of their interpersonal resources and risk factors. Fathers (114) and mothers (507) of children on the autism spectrum participated in the study. Fathers (vs. mothers) reported lower interpersonal resources (interpersonal emotion regulation and perceived support…

The aim of this study was to find out if educational activities about friendship can lead to children's well-being, socialization and adaptation in the preschool setting according to parents' perceptions. It is generally accepted that there are strong links between subjective feelings of well-being and companionship (family solidarity and…

Psychological problems are prevalent among adolescents, and previous studies have robustly demonstrated that individual and family factors play a role in the formation and maintenance of these problems. On the other hand, not all adolescents show the same characteristics in terms of these factors and can be categorized into different groups.…

The purpose of this study was to examine the physical activity of parents of young children with disabilities and the effect of physical activity enjoyment on those physical activity behaviors. 135 participants completed an online survey which included the International Physical Activity Questionnaire-Short Form and the physical activity enjoyment…

Using a cross-sectional design, this study examined the relationships between parental guilt, shame, need frustration, and homework stress in students with learning disabilities (LD) and typically developing students (TD) and their parents. One hundred and eight parent-child dyads (54 LD, 54 TD) completed questionnaires to assess homework stress,…

Background: Biased parental attributions, or biased thinking about the cause of children's behavior, are linked to harsh and negative parenting in parents of children with disruptive behavior disorders. However, little is known about moderators of this link. Objective: The current study explored whether child callous-unemotional (CU) traits may be…

Background: The development of communication, speech and language follows three stages (development of the parent--child relationship, interactions and actual speech and language acquisition). Children born with cleft lip and/or palate are at increased risk of communicative problems while parents may be going through an emotionally difficult time.…

Emotionally-based school non-attendance (EBSNA) is believed to impact one to two percent of children and young people (CYP): it is understood to present as severe emotional upset at the prospect of attending school. The aim of this study was to further understand parental experiences of EBSNA to enhance professional understanding and support.…

The interplay between sense of entitlement and hope might have a unique contribution to mothers of children with developmental disabilities (DD) life satisfaction. Seventy-three mothers of children with DD and 47 mothers of children without DD participated in the study. Mothers of children with DD (vs. without DD) experienced low levels of life…